Collaboration between caregivers and biopharma companies can lead to innovations that benefit both the patient and their support systems, leading to better health outcomes, more effective therapies, and a higher quality of life for all involved. In this special Rare Disease Day 2025 podcast you will hear the story of Ron and Marla Chapleau and how they have cared for their Aiden who has an ultrarare neurodegenerative disease for over two decades. You will also hear how one company, Vigil Neuroscience, is developing a therapy to help treat Aiden’s condition and the strong bond that has developed between Vigil and the Chapleau family. to learn more, go to insickness.org.
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