Forget the clichés, this is where autism, neurodiversity, and inchstones collide to challenge every assumption about what parenting a profoundly autistic, nonspeaking child actually means. Sarah Kernion and The OG Autism Dad, Rob Gorski go far beyond surface-level conversations, exposing the unseen emotional labor, systemic failures, and community blind spots families face every day. This discussion reframes profound autism as not just a diagnosis but a catalyst for resilience, courage, and radical community-building. Together, they explore how embracing nonspeaking autism as part of a broader neurodiversity movement transforms stigma into solidarity while underscoring the urgent need for inclusive policies, authentic dialogue, and parent-led support networks that actually work.
Takeaways:
Raw Truth Drives Change: Rob Gorski underscores that unfiltered storytelling is the engine of real autism advocacy.
Hidden Emotional Labor: Parents of profoundly autistic, nonspeaking children shoulder unique emotional and logistical challenges rarely acknowledged by society.
Neurodiversity ≠ One Size Fits All: The autism community spans from low to high support needs, demanding nuanced understanding and tailored support.
Systemic Barriers Require Disruption: Families face institutional red tape and fragmented systems, calling for parent-led reform and policy influence.
Self-Care as Strategic Survival: Caring for yourself is not indulgence—it’s the foundation of sustainable advocacy and family stability.
Normalize Asking for Help: Courage in seeking support should be celebrated, not stigmatized, to reduce isolation and burnout.
Bridge the Divide: Open dialogue between families, professionals, and policymakers can dismantle harmful stereotypes and improve outcomes.
Respect the Inchstones: Progress in profound or nonspeaking autism isn’t always linear—inchstones matter more than milestones.
Compassion as a Competitive Advantage: Building a culture of empathy within the autism community strengthens resilience and collective impact.
Chapters
- (00:00:00) - Autism Dad on Inchtones Podcast
- (00:01:42) - Autism Moms on Medium
- (00:07:21) - Rosie on the Autism Community
- (00:13:44) - Rosie on the Autism Community
- (00:19:51) - On the High Support Need for Autism Parents
- (00:26:50) - Autism Parents on the Wait List
- (00:30:54) - On Autism and the Need for Help
- (00:34:00) - Robyn on the Autistic Community
- (00:41:41) - On Autism Parenting
- (00:46:11) - Ask for Support
- (00:47:29) - A Few Words for Rob
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