INside the OUTcomes is produced by the Center for Rehabilitation Outcomes Research (CROR) at Shirley Ryan AbilityLab and hosted by CROR communications coordinator, Sharon Parmet. On this podcast, we feature interviews with CROR scientists and other leading experts in rehabilitation research. Transcripts: https://www.sralab.org/research/labs/cror/projects/inside-outcomes-rehabilitation-research-podcast This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).
On this episode of INside the OUTcomes, we explore an international study led by Shirley Ryan AbilityLab that examines how inpatient rehabilitation — and key factors such as length of stay, intensity, and more — shapes outcomes for people with spinal cord injury (SCI).
As part of the research, individuals with SCI participated in focus groups to share their firsthand experiences of inpatient rehabilitation.
Our...
Health outcomes after amputation aren’t the same for everyone — and racial disparities remain a critical issue. Understanding what drives these differences is key to directing resources, improving care and advancing equity.
On this episode of INside the OUTcomes, our guest is Emily Dinelli, PhD, CPO. She is a certified prosthetist orthotist and former graduate student researcher with the Center for Rehabilitation Outcome...
On this episode of INside the OUTcomes, we shine the spotlight on an important and rapidly evolving field in healthcare: cancer rehabilitation.
Following a cancer diagnosis, patients often develop neurological, musculoskeletal, cardiovascular and other impairments caused by the disease and its aggressive treatments. In fact, more than 8 million cancer survivors experience functional limitations. Fortunately, cancer rehabilitation c...
On this episode of INside the OUTcomes, we explore assistive technology with a focus on wheelchair breakdowns, repairs and real-world considerations for people who rely on wheelchairs.
Our guests are Lynn Worobey, PhD, DPT, ATP, assistant professor of physical medicine and rehabilitation at the University of Pittsburgh and principal investigator of the multi-center Equity and Assistive Technology for Individuals with Spinal Cord I...
Shirley Ryan AbilityLab is at the forefront of advancing the study of “osseointegration,” a novel surgical technique in the field of prosthetics in which a metal rod is surgically implanted into the bone of the residual limb, allowing for a direct connection to the prosthesis. For patients with limb loss, the procedure offers numerous benefits, from improved comfort, control and balance to an enhanced quality of life.
What happens when people with Parkinson’s disease (PD) use storytelling to share their lived experiences? Can telling their own stories spark connection, confidence and even hope? In this episode of INside the OUTcomes, we explore how the simple, creative act of storytelling can have a profound impact.
Join us as we step inside Tellin’ Tales of Parkinson’s Disease, a unique storytelling project of the Parkinson&rsq...
On this episode of INside the OUTcomes, we talk with Viraj, 29, about living independently in Utrecht, the Netherlands, after a spinal cord injury. Viraj shares his journey from a life-changing accident in India to intensive rehabilitation and returning to work in Utrecht, highlighting the unique support system that allows him to live independently in fully accessible housing.
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For more than 50 years, the National Spinal Cord Injury Model Systems Database has been the cornerstone of spinal cord injury (SCI) research in the United States. Since 1973, it has captured detailed information from thousands of people with traumatic SCI, helping researchers track long-term outcomes, improve rehabilitation care and guide new discoveries. In this episode, we explore how the database works, what makes it unique and ...
On this episode of INside the OUTcomes, we’re discussing the Model Systems Knowledge Translation Center (MSKTC) and its role in translating complex health information into accessible and useful resources for people living with spinal cord injury (SCI), traumatic brain injury (TBI) and burn injury.
Our guest is Cindy Cai, PhD, a researcher at the American Institutes for Research and the principal investigator and project direct...
On this episode of INside the OUTcomes, we're exploring the challenges people with disabilities face when it comes to air travel, and opportunities to enhance accessibility.
Mike Whelan, one of our guests, is a member of several Shirley Ryan AbilityLab spinal cord injury research advisory councils and counts himself as a "million miler" -- logging more than a million miles in the air as he travels the world with his manual wheelcha...
When Thea Flaum suddenly found herself caring for a family member with a spinal cord injury (SCI), she quickly discovered a lack of resources and support for the loved ones faced by this unexpected challenge. To address this gap, she created FacingDisability.com, a comprehensive platform offering valuable information on everything from medical care to a video series featuring the firsthand experiences and insights from people livin...
On this episode of INside the OUTcomes, we're discussing the value of rebalancing long-term services and supports (LTSS) — away from institutional care and toward community-based services.
We are joined by Courtney Priebe, MPH, a policy associate at ADvancing States, an organization that works to design, improve and support state systems that provide LTSS for older adults, people with disabilities and their caregivers. Courtne...
On this episode of INside the OUTcomes, we’re diving into the powerful role of peer mentoring in supporting employment for people with disabilities.
In rehabilitation, peer mentors are individuals who provide guidance and perspective to others who may be recovering from an illness or injury or living with a chronic condition or disability. The critical, ongoing support of a peer mentor helps others navigate life after injury,...
On this episode of INside the OUTcomes, we discuss the Occupational Therapy & Disability Studies Network, an academic and professional community created to integrate contributions from disability studies into occupational therapy education.
Our guests are two of the founding members of the network. Danbi Lee, PhD, OTD, OTR/L, is an associate professor of occupational therapy in the University of Washington department of rehabil...
At some point in life, nearly everyone will become a caregiver, need one, or rely on a family member for care. Supporting this critically important population is essential to maintaining the health, stability and well-being of our communities.
Our guest is Conor Callahan, MSW. Conor is the author of a new policy brief, "Supporting America's 53 Million Family Caregivers," funded by a grant to the Center for Rehabilitation Outcomes Re...
On this episode of INside the OUTcomes, we explore how occupational therapy graduate students at the University of Illinois Chicago contribute to the Shirley Ryan AbilityLab Rehabilitation Measures Database. The database is the go-to resource of more than 580 rehabilitation measures, reviewed and summarized by educators and allied health students.
Our guests are Sabrin Rizk, PhD, OTR/L, assistant professor of occupational therapy in...
On this episode we talk about a free, online "microlesson-based" training program for direct service professionals (DSPs) on how to use a communication skill known as motivational interviewing to enhance person-centered delivery of home and community-based services (HCBS).
Our guests are Linda Ehrlich Jones, PhD, RN, associate director of the Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab, and Bob Sattl...
On this episode of INside the OUTcomes, we’ll be talking about loneliness and spinal cord injury.
My guests are Sherri LaVela, PhD, MPH, a research health scientist, and Marissa Wirth, lead social science program coordinator, both in the Center of Innovation for Complex Chronic Healthcare in the Department of Veterans Affairs. Dr. LaVela is also a research professor of physical medicine and rehabilitation at Northwestern Uni...
On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, Elissa Larkin, CCC-SLP, HEC-C, a research speech-language pathologist at Shirley Ryan AbilityLab's Center for Aphasia Research and Treatment, shares insight into an online training course aimed at helping service industry employees improve communication with customers who have communication disabilities. Learn more about the course and find out how you can p...
On this episode, we will hear about the results of a national survey of people with disabilities about the facilitators and barriers they face in getting a job and staying employed. Our guests are Emily Dinelli, L/CPO, a research assistant and Angelika Kudla, LCMHCA, a senior project manager both in the Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab. Emily and Angelika are lead authors on a pair of recentpap...
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