Fibromuscular Dysplasia (FMD) Registry: Transforming Rare Disease Research with Data

On this episode of Inside the Texas Heart Studio, Dr. Stephanie Coulter sits down with Dr. Daniella Kadian-Dodov, a vascular medicine specialist at Mount Sinai, to discuss Fibromuscular Dysplasia (FMD).

The conversation dives deeper than the typical presentation of FMD, which is often characterized by the "string-of-beads" appearance on angiography. Dr. Kadian-Dodov sheds light on the evolving understanding of this condition, including:

• How the phenotype of FMD has broadened to encompass a wider range of presentations beyond young women with hypertension.
• The association of FMD with other vascular diseases like SCAD (spontaneous coronary artery dissection) and aneurysms.
• The importance of registries like the IRAD Registry and the FMD Registry at Mount Sinai in improving our understanding and treatment of FMD.
• The challenges of obtaining long-term prognostic data due to the relatively young age of most FMD patients.

For more information on the FMD Registry visit texasheart.org/fmd

🔗Watch the Studio Interview on Texas Heart TV

🔗 Watch Dr. Kadian-Dodov’s Grand Rounds 

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