Emily Cram | Living with a Rare Disease ERBIN | InVisible InCourage SHOW | Invisible Disabilities Association

In this InVisible InCourage SHOW episode, Emily Cram shares her journey as the only woman in the United States diagnosed with ERBIN, a rare connective tissue disorder that causes daily joint dislocations, pain and a compromised immune system.  She discusses the challenges of living with an invisible disability, including disbelief from others and medical professionals, and how she found running and yoga to help manage her condition.  As an ambassador for the Invisible Disabilities Association and a Ohio Miss America pageant participant, Emily aims to raise awareness, advocate for trauma-informed care, and connect with others by sharing her story.

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The ⁠Invisible Disabilities® Association⁠ (IDA) is a 501(c)3 nonprofit. IDA is changing the way the world sees disabilities. IDA is about believing. We believe you! The frequently invisible nature of illness and pain may lead to disbelief about that illness or pain by those surrounding the person who lives daily with invisible disabilities. This disbelief can lead to misunderstandings, rejection by friends, family and health care providers. It may also lead to accusations of laziness or faking an illness. We are passionate about providing awareness that invisible illness, pain and disabilities are very real! Our mission is to encourage, educate and connect people and organizations touched by illness, pain and disability around the globe. Envision with us, a world where people living with illness, pain and disability will be Invisible No More®. 

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