It's a Lung Story: Aging and Cystic Fibrosis

You asked for an episode on lung transplants—so we made two. (And there will be more).

In the first half of CF transplant stories: 3 women’s voices, we talk with 3 women from the cystic fibrosis (CF) community—Tara, Beth and Caleigh—about what it means to make the choice to pursue a lung transplant—sometimes more than once. They share what it’s like to be denied, to learn that a first set of lungs might not be t...

This month, we discuss something often overlooked in cystic fibrosis (CF) care: hearing loss.

If you catch a faint, high-pitched beeping during the episode, don’t adjust your headphones—it’s Andrea’s diabetes pump. Ironically, she couldn’t hear it, because of her high-frequency hearing loss. Consider it a real-world remix of chronic illness, notification fatigue, and assistive tech that sometimes...isn’t.

And...

In Part 2 of Salty and Sexy, we go further into what it means to age with cystic fibrosis—and how that intersects with reproductive and sexual health. Dr. Raksha Jain and Dr. Traci Kazmerski are back to talk about the realities of perimenopause and menopause in CF—including hormone therapy, bone density, and the growing need for cancer screenings. They also discuss recent research initiatives—including the PROTECT ...

Sexual and reproductive health isn’t always talked about in CF clinic—but we think it should be part of normal clinic discourse. In episode 3 of It’s a Lung Story, Ahmet, Lauren, and Andrea are joined by two incredible guests; pulmonologists Dr. Raksha Jain and Dr. Traci Kazmerski, national leaders in CF sexual health research and absolute pros at keeping it real. Together, we talk about how modulators are shifting...

In this episode of It’s a Lung Story, we dive into the complex relationship between mental health and cystic fibrosis. Joined by Dr. Anna Georgiopoulos, a psychiatrist at Mass General Brigham and an expert in CF mental health, we explore how medical advancements have transformed physical health without always improving mental well-being, the emotional challenges of aging with CF, and the evolving dynamics of caregi...

Managing cystic fibrosis is tough—but adding cystic fibrosis-related diabetes (CFRD) to the mix? That’s next level. Not everyone with CF develops CFRD, so why does it happen? And what are the emotional and mental tolls of a second diagnosis?

These are just a few of the questions we’ll tackle on the inaugural episode of It's a Lung Story.

Ahmet, Lauren, and Andrea explore all things CFRD with Dr. Melissa Putman, an...

Welcome to the launch trailer for It's a Lung Story! In this podcast, we explore the realities of aging with cystic fibrosis (CF) in the era of modulators and medical advancements. Through expert interviews, personal narratives, and compelling storytelling, we get into real conversations about both the challenges and the resilience of the CF community. Whether you have CF, know someone who does, are a caregiver,...