Let's Talk About The POTS life

Welcome to 'Let's Talk About the POTS Life,' your go-to podcast for everything related to Postural Orthostatic Tachycardia Syndrome (POTS). In this episode, Kelsey shares her first-year journey post-diagnosis, discussing the overwhelming feelings, exercising struggles, and the importance of having a supportive community. Along with co-host Brit, they emphasize the need for patience, setting realistic goals, and the invaluable suppo...

Welcome to another episode of 'Let's Talk about the POTS Life.' In this episode, we hear from Christy as she shares the four-year journey of her son, Gannon, who has been dealing with POTS (Postural Orthostatic Tachycardia Syndrome). Christy describes the challenges, misdiagnoses, and the eventual diagnosis that shed light on Gannon's condition. We also learn about the supportive role of key individuals and how Gann...

In this episode of 'Let's Talk About the POTS Life,' we welcome Caitlyn Ursillo, a mother, teacher, and new author living with Postural Orthostatic Tachycardia Syndrome (POTS). Caitlyn shares her journey from her initial symptoms and diagnosis, through the challenges of managing POTS while maintaining her career and family life, to becoming an advocate and author. Her new book, 'Not My Problem: Life with Chronic Ill...

In this episode of 'Let's Talk About the POTS Life' podcast, we welcome Dr. Lindsay Cirincione a health psychologist in Maryland and an assistant professor at Johns Hopkins University School of Medicine. Dr. Cirincione shares her journey into working with Postural Orthostatic Tachycardia Syndrome (POTS) patients through her role at the Kennedy Krieger Institute. They discuss the challenges of managing POTS, including the importance...

In this episode of Let's Talk About the POTS Life, join Brit and Kelsey for an in-depth discussion on frequently asked questions from app users and patients about living with Postural Orthostatic Tachycardia Syndrome (POTS). They cover a range of topics including the impact of hormones, why symptoms fluctuate, and the emotional journey of receiving a POTS diagnosis. Gain insights from real-life experiences and discover how to n...

Welcome to another episode of Let's Talk About the POTS Life! We are thrilled to bring you a unique perspective with our guest, Lauren. As a mom diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) during her pregnancy journey, Lauren shares her compelling story of symptoms, diagnosis, and the transformative impact of joining the POTS Life program. From her pregnancy complications to finding hope and recovery through...

Welcome to another episode of 'Let's Talk About the POTS Life'! Join us as we sit down with Lauren, a long-time friend of hosts Brit and Kelsey, who shares her personal journey living with Postural Orthostatic Tachycardia Syndrome (POTS). Lauren dives into the challenges she faced, from misdiagnoses and symptoms like tachycardia and debilitating migraines to achieving significant wins such as enjoying a trip to Disney W...

In this episode of 'Let's Talk About the POTS Life,' we delve into Mast Cell Activation Syndrome (MCAS) and its connection to Postural Orthostatic Tachycardia Syndrome (POTS). We discuss what MCAS is, how it manifests, and ways to manage it. The conversation covers varying symptoms, common triggers, and treatment approaches, including antihistamines and dietary adjustments. Tune in to learn more about managing MCAS alongside POTS a...

Welcome back to Let's Talk About the POTS Life! This week, we delve into the crucial question, 'I'm diagnosed with POTS. Now what?' We break down what POTS is, explain common symptoms like dizziness, heart palpitations, and fatigue, and discuss why certain treatments are recommended. We aim to provide practical advice and help you navigate through various POTS treatments, lifestyle changes, and symptom management te...

Welcome to another episode of Let's Talk About the POTS Life! This week, we're joined by Meredith, a mom and physician, who shares her journey with POTS. From her initial struggles to her eventual diagnosis at the Cleveland Clinic, Meredith provides a unique perspective on living with this chronic illness. Discover how she navigated her symptoms, found the right treatment plan, and achieved significant milestones in improvi...

In this episode of 'Let's Talk About the POTS Life,' we discuss how to explain Postural Orthostatic Tachycardia Syndrome (POTS) to others. From dealing with the confusion around the term 'POTS' to offering strategies on effectively communicating symptoms, we cover it all. We also touch on the importance of creating awareness and building a supportive community for those with POTS, including personal anecdotes an...

Welcome to another episode of 'Let's Talk About the POTS Life'! In this episode, we delve into the crucial topic of nutrition for POTS patients. Hosts Kelsey and Brit discuss the importance of glucose and blood sugar levels, provide advice on building a balanced diet, and share personal experiences with dietary changes. Learn about the benefits of whole grains, protein, and vegetables, and how these foods can help manag...

In this episode of 'Let's Talk About the POTS Life,' we welcome Stephanie, a working mom of two who shares her inspiring journey with POTS. Diagnosed at 31, Stephanie details the sudden onset of her symptoms, the struggles to find a diagnosis, and how she eventually found solace and improvement through the POTS Life program. Her story highlights the importance of self-advocacy, support systems, and staying hopeful despite the chall...

In our seventh episode, we delve deep into the importance of nutrition, hydration, and electrolytes in managing POTS (Postural Orthostatic Tachycardia Syndrome). Learn about balanced nutrition, hydration strategies, and the role of salt intake. Discover practical tips for staying hydrated and the impact of caffeine and alcohol on POTS symptoms. Join us as we share valuable insights and practical guidance from our experiences and th...

Welcome back! In this episode, we discuss navigating life after the holiday season and setting positive intentions for better health in the new year. Discover the benefits of the POTS life program, a comprehensive 12-month plan designed by a physical therapist with POTS, Kelsey, who runs her own POTS Treatment Clinic in Pittsburgh, PA. Learn how this customized guide delivered straight to your smartphone can provide personalized su...

In this special episode of 'Let's Talk About the POTS Life,' we celebrate Rachel, A POTS life graduate, as she shares her inspiring journey. Diagnosed with POTS in March 2023 following a severe bout of COVID-19, Rachel went from a highly active lifestyle to struggling with basic tasks. With the guidance and support of the POTS Life program, Rachel transformed her life. This episode offers hope and practical advice for anyone naviga...

In this episode of Let's Talk About The POTS life we share five crucial tips to help you navigate Thanksgiving with ease. From planning ahead and staying hydrated to mindful eating, managing temperature, and knowing your limits, these guidelines are designed to ensure you have a safe and enjoyable holiday experience. Join us as we guide you through practical strategies to make your Thanksgiving stress-free and enjoyable. Happy Than...

In Episode 4, we dive into the POTS Life program, an innovative app-based treatment plan designed by a physical therapist who has POTS and owns a POTS Treatment Clinic in Pittsburgh, PA. The episode highlights the goals and features of the app, which includes customizable exercise protocols, hydration tracking, nutrition guidance, and real-time support. Learn how this app bridges the gap in traditional POTS treatment by providing a...