Lewy Body Roller Coaster

Welcome back Podcast Family! This week we share some helpful tips others have shared on things around LBD such as how to remove the adhesive for the  patches, tooth brushes, nose sprays to be aware of and medicines no one with LBD should use. Curry shares a little on how he is feeling and once again...we laugh as we try to get through an episode as we are clearly not tech savvy individuals but we love that you all are so patie...

Welcome Megan Ferguson-Koci  as she  shares her struggle getting diagnosed as a women in her 40’s and being told it’s just woman problems….sadly we have heard this from so many other women.
She shares her journey and how she is staying positive. We are so very thankful she has become an integral part of our Lewy family as she helps us with the zoom meetings while Podcast Linda needs time grieving&nbs...

This week, welcome Dr. Jason Cohen.
Dr. Cohen is a dementia specialist who answered many of our burning questions about LBD. We are sure some of our questions to him are some each of you would have asked. He said he would come on again, so if anyone has other questions to ask, please email them to us at lewybodyrollercoaster@gmail.com

Hearing his responses made us feel hope and he said everyone needs to share about their...

This week we welcome six individuals who attend at least one of our support group zoom meetings.  We wanted them to share with you all the power of attending a support group. Our hope is you hear from these amazing people and feel more comfortable joining in one of the meetings we hold each wee
Naomi from Ireland mentions Lewy Love. That's what you will get when you attend one of our support meetings- people who get what yo...

We are back after a much needed break to handle many personal issues. Thank you all for your continued patience. Just as LBD is a roller coaster ride, so has been our lives been the last few months.

A big shout out to all of our supporters. We couldn't do all this without your help and support. xo

This episode, we do a quick recap of how this all got started..the podcast, our 5 support groups, 2 Facebook support pages...

Podcast Linda is taking 2 weeks off for her birthday…so enjoy the replay of Lewy Terms Defined part 2 with  Dr. Sara .
Just a reminder- we are not giving medical advice, merely sharing our experiences.

This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear exam...

Just a reminder- we are not giving medical advice, merely sharing our experiences.

This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of y...

Welcome Back Podcaast Family!
This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like for Podcast Linda with the Brain Foundation and Lewy research.

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your su...

This week we continue part 2 as Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon...

This week Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoa...

Hello Everyone! Thank you for your patience. 

Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a  special appearance from his wife Linda as she helped him describe his current symptoms.

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybod...

This week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages.

"I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with L...

This week is part three of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey bu...

This week is part two of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but ...

This week is part one of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but ...

The conversation takes a surprising turn as they detail a series of household disasters that would test anyone's resilience. A massive 90-foot tree fell onto their house during the night, damaging their electrical system during one of the coldest nights of the season. Combined with plumbing failures affecting both their kitchen and laundry facilities, they find themselves navigating a perfect storm of home maintenance crises while ...

Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to know

A shout out to all our supporters including Tom Lawson, Dee C,  Sue, Jane Wakeman,Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska,...

A tough topic but one we all need to know about sooner than later. 
Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to know

This episode provides valuable insights into hospice and palliative care for f...

A tough topic but one we all need to know about sooner than later. 
Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to know

A shout out to all our supporters including Tom Lawson, Dee C,  Sue, Jane...