August 22, 2025 • 40 mins
Hello Everyone! Thank you for your patience.
Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a special appearance from his wife Linda as she helped him describe his current symptoms.
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Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 2 (00:11):
Welcome back podcast family.
Speaker 1 (00:13):
Yeah, welcome back y'all.
Speaker 2 (00:15):
And just a quick shout out, as we always like to
do, to everyone for yourcontinued support and patience
with us getting these episodesout.
Speaker 1 (00:27):
You know we've had some time getting this one here
kick-started, but we're goingnow.
Anyway, I want to thank you allfor being so patient and
supportive of us.
Speaker 2 (00:38):
Like Linda said, yeah , and, as always, please feel
free to share the podcast namewith your doctors and family.
I think hearing from those withthe disease and caregivers
really, really helps people.
And ask Curry some questions,curry, so you don't have to
(01:05):
worry about doing too muchreading If you'd like to be a
guest on a show on a show Ithink I'm doing a TV show now.
People would not want to seewhat we look like when we're
recording, right, I'm justsaying but anyway, you can
contact.
Speaker 1 (01:20):
I have to get out of my jammies.
Speaker 2 (01:21):
Yeah, I know Me too.
We go to the jammies in ourZoom meetings and one day I was
like maybe I'll just fix mybangs and just go Right.
Nobody cares.
But anyway, if you areinterested in sharing your story
or helping us help others, youcan send me an email, a
messenger, through Facebook orat louiebodyrollercoaster at
(01:44):
gmailcom.
First and foremost, we're notgiving medical advice.
Rather, we're just sharing ouropen and honest feelings and
thoughts as we live with LouieBody Dementia.
So we're going to do just anoverall shout out to everyone
who has supported us from dayone.
You bet.
Speaker 1 (02:02):
We thank each and every one of y'all.
Speaker 2 (02:04):
Yeah, so we're not going to call out any names, but
you all know who you are and wereally appreciate all the help
you've given us to keep thispodcast going.
Speaker 1 (02:13):
You bet.
Speaker 2 (02:15):
All right.
So, as Carter would say, it'sjust me and him today doing a
fireside chat because it's beena minute since we recorded.
So first I want to just ask youhow you're feeling, share with
people how you're feeling,because I know you've been doing
such a great job of posting onFacebook how you feel, and it's
(02:38):
just I don't feel good yeah.
I'm in awe that you're stilldoing that, so tell us, share
with us what's going on.
Speaker 1 (02:54):
I just had bad brain fog and I can't hardly remember
anything.
Apparently, I'm doing thingsand saying things that didn't
really happen and I'm going tohave Linda she's here with us
today, my Linda, along withLinda and the podcast, but I'm
(03:16):
going to let Linda step in andanswer a little bit about that.
Speaker 2 (03:20):
Yeah, so thank you first of all, linda for jumping
on, but we talked before westarted recording and just the
importance that, because you'rehaving trouble remembering that,
she could share some of thethings that you're doing yeah,
because I can't remember whathappened yesterday, you know,
and some of the things that shetells me goes on.
Speaker 1 (03:44):
I just think, shake my head and think how did that
happen?
You know?
Speaker 2 (03:49):
Yeah, well, you do have hospice coming more now.
Speaker 1 (03:52):
Yeah.
Speaker 2 (03:52):
Three times a week.
Three times a week, that's forthe nurse and the aid.
Speaker 1 (03:58):
The nurse comes three times a week and the aid comes
three times a week, okay.
And then the caseworker she washere the other day.
She comes about every otherweek, and the preacher comes
about every other week.
Speaker 2 (04:16):
So have they said anything to you, or you, linda?
First of all, linda, thank youfor coming and helping Curry
today.
First of all, linda, thank youfor coming and helping Curry
today.
Have they said anything?
I guess?
Speaker 1 (04:32):
they can see a change in your cognition.
Yeah, she said.
She asked if I wanted to comein a third time during the week
and I said, well, yeah, and shesaid yeah, we could decline.
We really need to and I saidwell, yeah.
Speaker 3 (04:50):
And she said yeah, with your decline, we really
need to.
Speaker 2 (04:54):
And I said okay, she said it's obvious the signs of
decline, yeah, yeah, and I hadasked Linda and Kari did it
start two or three weeks ago?
But you think it started slow acouple months ago.
Yeah, yeah, it's just beenslowly a change.
So what symptoms do you havethat are back, that you kind of
(05:17):
thought you had under control?
Speaker 1 (05:18):
the hallucinations the hallucinations for one thing
thing and delusions.
I'm having quite a few periodsof delusion.
I might tell Linda I'm ridingin the car with someone, or I
just got back from town withsomeone, stuff like that, and to
(05:44):
me it just is like it reallydid happen.
And it turns out I may havebeen sitting here at the house
all day and didn't even doanything.
Speaker 3 (05:54):
He thought we made a trip to Texas and back, but he
couldn't remember who we rodewith.
Speaker 2 (06:00):
Yeah, you want to share Linda, with some of the
things that you were sharingbefore we started of.
Like, sometimes he's asking thesame thing over and over and
like.
What kinds of things is hedoing or saying?
Speaker 3 (06:29):
He always thinks that somebody's been here when they
haven't other than, you know,the hospice people coming in.
He thought a man was heremeasuring for something.
One day the hospice nurse washere when he was asking about
that because he thought the manwas going in and out of the
house while they were here.
Right, just, I don't know.
He thought we had another dog.
(06:50):
He thinks people walk up to himwhen he's out on the porch and
visits with him when they're notthere.
Just different things.
He thought we were taking careof our grandson while his mom
was out of town, and we weren't.
Our grandkids are all grown.
Speaker 1 (07:10):
I do remember thinking that Sean, our grandson
, lives in Texas.
I remember thinking he was herethe other day.
Speaker 2 (07:18):
Yeah, well, you did do a lot with him.
You know, you guys built thatchicken coop and all that when
you were in Texas.
Did you hear Roxy bark?
Just as she said you thoughtyou had another.
No, you didn't.
She barked in the background,just as you said that, linda,
and I'm like, oh, although I'vetold Carrie I'm going to ship
her off to you, send her over,she's better behaved in your
(07:43):
house with all your animals andyour cows and your goats than in
my house.
So, curry, are you havingconversations with people when
you think they're in the houseand do you remember it
afterwards, or no?
Speaker 1 (08:00):
Usually not no.
Speaker 3 (08:02):
He won't remember the conversation.
He just thinks that he talkedto someone.
No, he won't remember theconversation, he just thinks
that he talked to someone Right.
Speaker 2 (08:08):
Mm-hmm.
So Linda had mentioned that Ihad asked her if she could come
on and share, because othercaregivers first of all.
They're going to be so excitedto hear your voice, linda.
We've kept you hidden for what?
(08:32):
Three years, five years, almost.
Curry.
Yeah, I know, um, but we knowyou do it all.
You do so much behind thescenes for him and I did ask him
.
You know, has she whacked youacross the head because you keep
asking the same thing with thatfrying pan?
So how are you, how are youdealing with that, linda, when
he continually asked the samething with that frying pan?
So how are you, how are youdealing with that, Linda, when
he continually asked the samething over and over?
Speaker 3 (08:49):
well, for one thing, he takes it good-naturedly.
I mean, it's, it's he still.
He still has held on to that.
But I just I just answer himevery time either with no, I'm
sorry that didn't happen, ormaybe it was a dream and I may
have to tell him that severaltimes a day, but I just answer
(09:14):
him and go on.
It's kind of like a kid that'salways asking you, following you
around and asking why.
Yeah, you know I just answerhim the best I can and hope that
that satisfies him at themoment.
Speaker 2 (09:26):
Yeah, I'm not surprised.
You're keeping your personalityand your sense of humor, which
is great.
Speaker 3 (09:35):
So far that's still intact, yeah.
Speaker 2 (09:39):
What do you want people to know?
Curry about what's going onwith you right now.
Speaker 1 (09:42):
To know, curry, about what's going on with you right
now.
Well, my thing is, I wantpeople to understand on Facebook
.
I used to post quite a bit onFacebook, you know, pretty
regularly.
But now I can sit there in mychair, my recliner, with my
(10:04):
phone in my hand wanting to postsomething, but yet I can't
think of anything to post, youknow, and sometimes the thing
that I want to post little timeat night didn't happen, you know
.
But I just want people tounderstand why I'm not on
(10:30):
facebook as much as I was.
Speaker 3 (10:31):
Yeah, it's just I can't, and he has a harder time
navigating the phone yeah andlike the remote control things
like that.
It's just harder for him towork them.
Speaker 2 (10:44):
So when you do post on the times in the past couple
weeks, when you've posted howyou're feeling, are you talk
texting?
I usually talk text.
Okay, yeah, because it was.
You know I'm like, oh my gosh,you know I'm amazed and then I
said maybe he's well, we didhave this conversation because
(11:05):
it's learned your southern drawland everything, yeah my phone,
especially this new phone, itcan put words up.
Speaker 1 (11:15):
before I say it.
It seems to know what the nextword is going to be yeah, scary,
right.
Speaker 2 (11:22):
Yeah, it's pretty neat to be, yeah, scary right?
Yeah, it's pretty neat.
It's, yeah, it's a good time tobe alive as far as technology
is concerned and all the helpthat it can give people,
especially people with dementia.
Speaker 1 (11:33):
Um so, yes, and that's another thing I I used to
try to answer when I readFacebook and people, when I
would read people's posts,usually I would try to answer
them or give them my point ofview on it, for what that's
worth.
You know, and a lot of timesnow I can't even do that yeah.
Speaker 2 (11:57):
Well, don't be upset about that Cause you know you've
there's.
You've been in the Louis Lowe'sbefore, maybe not not as bad as
this one, but people understandbecause you did post how you're
feeling.
So people know you're Louiswinning right now.
You know having a rough timebatting him down, so are your
(12:20):
essential tremors back.
No, just my internal tremors Istill have those I don't know
why I said essential, yeah, onlywhere they came from internal.
Speaker 1 (12:33):
Yeah and they, they.
They normally last about threeor four days, and then they'll
be gone for for a while and thenthey come back and you haven't
changed any medicines oranything.
Speaker 2 (12:45):
They just.
Speaker 1 (12:46):
That's one of the craziness yeah, crazy someone
else was talking on facebookyesterday and answering to one
of my posts and they said theirinterior trimmers have gotten
really bad.
Yeah, no, and they were at one.
I know if I knew anything toget rid of them.
(13:06):
And I said I don't have anyidea what to do, or else I would
.
Speaker 2 (13:10):
Yeah, because you don't even know what's making
them start and what's makingthem stop.
Right, how about your anxietylevel?
Speaker 1 (13:18):
Oh, I take anxiety meds now.
It keeps it down pretty low.
Speaker 2 (13:24):
Yeah, so that hasn't changed.
No, no.
How about sleep?
How's your sleep been?
Speaker 1 (13:31):
What sleep?
Yeah, I sleep.
We're in bed by about 11.30.
Usually sleep by about 12.30.
Then I'm usually awake around2.30 or 3.
And sometimes I stay up andsometimes I just go outside and
smoke cigarettes with sparky andthen come back in and lay back
(13:56):
down and we'll go back to sleep.
But I just don't get much sleepat all.
Speaker 2 (14:02):
So how are you doing getting up and going out for
that smoke?
Speaker 1 (14:08):
Well, I think I do pretty good.
Speaker 3 (14:09):
It's pretty good.
It gets harder now, but stillable to.
Yeah, thank goodness for themobility chair.
Yeah, jazzy.
Speaker 2 (14:21):
Yes, yeah, that jazzy .
Speaker 1 (14:25):
I'd be lost.
Without it, I wouldn't be nearmobile.
Speaker 2 (14:30):
Yeah, it's amazing how that has really helped you
and you just got your recentlygot your golf cart fixed right.
Speaker 1 (14:38):
Yes, ma'am.
Speaker 2 (14:39):
Yeah, but you're not taking any rides alone on that
right now, right I'm only takingit around the block twice okay,
you went over and picked up theother day I did.
Speaker 1 (14:49):
I went over and picked up a grandson and got him
back over there the other daywhich is only about four blocks
away yeah, right, right, andthen where they live there's not
a lot of traffic.
Speaker 2 (15:01):
You haven't taken to get donuts yet, oh yeah.
Speaker 1 (15:05):
Is that your bacon?
Speaker 2 (15:05):
donut or something.
Speaker 1 (15:07):
That's the first thing I did the day after we got
home.
I went and got donuts the nextmorning, yeah.
Speaker 2 (15:14):
Now, does he do that by himself, Linda, or do you go
with him?
Speaker 3 (15:17):
I let him go by himself.
I track him.
Yeah, I let him go by himself.
I track him, yeah, and kind oftime him on how long he's gone.
Right right, so I know whetherto go looking for him or not.
Speaker 2 (15:30):
Yeah.
Speaker 3 (15:31):
We use that.
Speaker 1 (15:32):
Life360, and it works pretty good for tracking.
Speaker 2 (15:37):
I know we talked about that before.
Do you have to pay for that, oris that free?
Speaker 1 (15:41):
No, it's free.
Speaker 2 (15:42):
Okay, Well, people should look into that like 360.
And it's just on your phone.
Speaker 1 (15:47):
Yeah, it's just an app on the phone.
Speaker 2 (15:50):
Yeah, now, where do you keep your phone when you're
riding?
Speaker 1 (15:55):
In the pouch on Jazzy .
Speaker 2 (15:56):
Okay, so you won't lose it.
Speaker 1 (15:58):
I keep my gloves and everything.
Speaker 2 (16:00):
Mm-hmm, yeah, I'm thinking I would put one of
those.
I forget the tags or somethingthat you put in luggage.
Yeah, I forget what they'recalled.
We're considering those yeahbecause I don't know if they
cost money.
They cost money to buy, but Idon't think they're too
expensive.
Yeah, I'd look it up, but Idon't want to touch any money.
(16:21):
I don't they cost money to buy,but I don't think they're too
expensive yeah.
I'd look it up, but I don't wantto touch any of the buttons,
since I hit all the right onesfor this time they got me a bed
alarm.
Speaker 1 (16:33):
We just haven't got it going yet.
Speaker 2 (16:35):
Okay, so Linda knows you're getting up at night, yeah
, yeah, because you've fallen acouple times since we last
recorded what, yeah, what, youknow what happened then, like
where was it?
Speaker 1 (16:47):
well, one time, uh, I don't know whether the dogs
tripped me going out the backdoor or if my feet just got
tangled up going out the backdoor and then the other time and
and I fell outside, fell upagainst the chairs.
That's the only thing that hitme from going all the way down
was I grabbed hold of a chair onmy way down and then the other
(17:11):
time I think I fell here in theliving room.
I'm not sure.
Speaker 3 (17:17):
Yeah, you fell in the living room and fell into the
couch.
Speaker 1 (17:21):
Fell into the couch.
Speaker 3 (17:22):
Luckily, instead of falling away from it.
Speaker 2 (17:25):
Yeah, and then you had a jazzy incident once, right
Like it got stuck or somethingand slammed you into the oh yeah
, yeah, it sure did.
Speaker 3 (17:36):
He rearranged the furniture, yeah.
Speaker 1 (17:39):
I can just imagine my jazzy's got this little thing
here.
Extension for the throttle.
Speaker 2 (17:46):
Yeah, like yep.
Speaker 1 (17:47):
And I pulled up there to the pitching table and I was
rolling my cigarettes while Iwas doing.
And when I got through I gotready to back out and I turned
the Jazazzy on and it wentstraight forward.
I mean, it was in fast mode tooand what had happened is, when
(18:11):
I got, when I got under thetable and I turned the thing off
, the throttle stick was stuckin four.
Oh no.
So when I turned it on it wasin high speed and I mean it
scooted the table four to five,four or five foot so you were
blowing a china shop oh yeah, Ihad a big cut on my hand.
Speaker 2 (18:32):
Oh lord is that healed now?
Yeah, it's healed yeah, yeah,because I remember you showing
us you took a pretty big gougeout of that.
Speaker 1 (18:40):
Yeah, sure did yeah.
Speaker 2 (18:43):
Just keeping your wife on her toes?
Uh-huh, you know.
So let me ask you this you know, five years ago, which you know
, you admitted that you thoughtI was crazy.
I'm over it, I'm not upsetabout that.
I was over it.
I'm not upset about thatanymore.
I was never upset.
But so five years ago, when Isent you that message and then
(19:06):
you know, we started doing thesepodcasts, and then we started
doing once a week, then twice aweek, and I think we have like
six a week now.
Uh, zoom, support meetings,yeah, what, what has that all
meant to you?
Like, what do you want peopleto know about what that meant to
you?
Speaker 1 (19:26):
well again.
I used to talk quite a bitduring them and now I don't.
I basically sit and listen toeveryone else a lot now I I
don't, I don't, I don't reallychime in much, I just don't but
they, but they keep him going.
Speaker 3 (19:41):
Yeah, they keep him going.
Speaker 1 (19:42):
They keep me going.
It's a good thing that we stillgot him, because they do give
me something to do and I dostill learn something from every
Zoom Mm-hmm.
Speaker 2 (19:53):
So yeah, because it's like we said not, you know, we
don't you and I and Megan andSam like just pushed a button to
open the meeting.
So it's not you know, it's notlike we have an agenda, it's
just people sharing theirproblems and other people
sharing how they handle thoseproblems.
Speaker 1 (20:14):
Well, just like we had another new couple join us
about two weeks ago and then inthe Louie Budd louis buddies
group on thursday afternoons wehad a lady, a new lady, start
there, you know.
So people are still stillcoming to us and finding us.
(20:36):
And still the louis body, uh,rollerer Coaster Facebook group,
it still has six to nine peopleevery day joining.
The Our Journey group still hasa couple each day, sometimes
(20:57):
more, but the Roller Coastergroup it's just going like
gangbusters.
Speaker 2 (21:03):
Yeah, I think when you, because if you type in
Louie Body instead of ourjourney, like Louie Body comes
up first.
And we've said this many times,like we know people are, you
can be well camera shy ormicrophone shy, like to join a
Zoom, and you can just come onand we'll be like you don't even
have to turn on your mic oryour camera, we'll just welcome
(21:25):
you and you can listen in andsee how it is.
And I'm pretty sure we have apretty 100% track record of
people come back.
We don't scare them off,because we do.
We come in laughing, we talkabout serious things.
Sometimes we're just catchingup in each other's lives, which
is amazing, because you, what isthe, what is your Zoom family
(21:49):
meant to you, the people you'vemet?
Speaker 1 (21:53):
Instant friends, instant friends and instant
family members.
I feel like everyone in theZoom meetings are my family, and
I think of each one of themthat way too.
Speaker 2 (22:08):
Yeah, family, you want to be around.
Speaker 1 (22:09):
Family.
I want to be around, yeah, yeah.
Speaker 2 (22:11):
Yeah, and how about?
What are your thoughts on thiscrazy podcast that we're still
getting 250 or more listeners aweek even though we've, you know
, kind of had the summer down,which?
I know, I know you, I know weboth are stressed out that we
don't do one every week now, butpeople understand and we've
(22:35):
been pretty good with theholidays having a downtime
during holidays in the summer.
Speaker 1 (22:40):
And I hope this one, they'll understand why we've
been so sliding on them.
Yeah, it's been rough.
Speaker 2 (22:49):
Yeah, that's you know , and true confession that you
know I've been texting his wife,linda, and you know Curry will
send me.
We've got to get to recording.
We've got to get to recordingand, like I know, when you're
having a bad day by what youpost or the fact that you don't
(23:10):
post, um, because you know I'myour little sister now, so I'm
pretty much got your number,buddy, but, um, I felt like I've
been walking this fine linewhere I want to protect you.
Speaker 1 (23:20):
Yeah.
Speaker 2 (23:20):
Because that one episode we recorded where you,
you listened and then you werereally upset and you wanted to
apologize because you soundedlike you were drunk.
Speaker 1 (23:28):
Yeah.
Speaker 2 (23:29):
So that's you know.
I've been walking, you know, doit?
Should we?
Should we not?
Should we?
You know, just because I knowhow you upset you are the last
time that you sounded drunk, butyou sounded.
Speaker 1 (23:40):
I think I did too.
Speaker 2 (23:43):
Oh were the last time that you sounded drunk, but you
sounded.
I think I did too well, you,you sounded tired to me, yeah,
yeah.
But then we said, maybe that'sif you were like that when you
went to the er for the firsttime and they thought you were
drinking, you know, you can see,because, um, that's what louis
louis does to you yeah um and Itell you the, the hospice gals
have really they've just beenterrific for me and for Linda.
Speaker 1 (24:07):
they really have been Shoot.
I don't know where I was goingwith that.
Speaker 2 (24:12):
Yeah, but don't you wish you would have called them
sooner?
Speaker 1 (24:15):
I do, I really do.
Speaker 2 (24:17):
I know it's the practice what you preach, kind
of thing, you know, we keptsaying you know, and even
palliative care.
Speaker 1 (24:24):
Yeah.
Speaker 2 (24:25):
You know, just to get help with that, yeah, but it's
good that they're there andthey're seeing everything.
Now, the way you feel now, doyou feel like you've been this
low before with Louie?
Speaker 1 (24:40):
No, I don't.
No.
What's the big difference?
Uh, I think I.
I think I'm lower this timebecause of my memory issues and
in my hallucinations and youhaven't changed medicines or
anything.
Speaker 2 (24:59):
No, yeah, because you pretty much had those under
control for a long time.
Yeah, yeah, but you're likeright now you sound really good.
I mean, you sound tired, butand I'll text you later and see
if you remember doing doing thistoday you know, right, but and
(25:24):
I'm only going to do that justto let you know, it's okay if
you don't remember, you know.
I mean, yeah, if the big schemeof life is not, you know, as
long as you're still happy andyour wife's not smacking you too
much with that frying pan andyou know, that just enjoy time
with your kids and yourgrandkids although you have one
(25:46):
that's going to Austria.
Speaker 1 (25:49):
Australia.
He left yesterday.
He got left here and went toHouston, left Houston and went
to LA and he missed hisconnecting flight in LA.
So the airlines put him up in ahotel room and he leaves LA
(26:13):
like at 11.45 tonight.
Speaker 2 (26:15):
Their time, and he's never traveled like this before.
Speaker 1 (26:18):
No, he hasn't.
Speaker 2 (26:19):
Dang to be young and carefree right.
Speaker 1 (26:25):
Yeah, never traveled like this before, dang, to be
young and carefree, right?
Yeah, but he was.
He was calling, wanting to knowwhat, what, what to do and how
to do it good, that kind ofthing.
Speaker 2 (26:33):
Yeah, and he is.
He is if does he have a friendthere?
Speaker 1 (26:35):
you got one friend there.
Speaker 2 (26:36):
Okay, is it?
I think I asked you hisgirlfriend is.
I was gonna say is it a girl?
Yeah, because guys will do thatfor girls.
Yeah, yeah, yeah.
So I agreed, I said, let's,let's get them on, let's let
let's record, cause then youknow it's going to help you
sleep afterwards.
It always, it always does.
But I feel like you want to.
(26:56):
I could feel like through yourmessages, you just wanted to get
on there and share with ourlisteners and our Facebook.
I did.
Speaker 1 (27:04):
I just I wanted them to know why we hadn't been
recording.
You know, it's always been onething or another happening yeah.
Speaker 2 (27:15):
And me being over over protective of you.
Speaker 1 (27:18):
Yeah, I just wanted to let them know why you know
protective of you.
Yeah, I just want to let themknow why you know I said I'm my
memory is, you know.
I can remember saying well, myshort-term memory's bad, I can't
, I can't.
I don't remember a lot, but nowI can, I can say it and I mean
(27:39):
it deeper it it's gone a lotdeeper than what it was.
Speaker 2 (27:45):
So your short-term memory has gotten worse.
Speaker 1 (27:47):
Yeah.
Speaker 2 (27:48):
What about your long-term memory?
Speaker 1 (27:50):
It's still pretty good.
Speaker 2 (27:51):
Yeah, that's crazy right.
Speaker 1 (27:54):
Yeah.
Speaker 2 (27:55):
But you know, for five years you told me you know
I've been down like this.
I'm just going to ride it outto you.
Yeah, years, you told me youknow I've been.
You know I'm down like this.
I'm just gonna ride it out toyou yeah till you come back up.
What's the longest you had toride it out?
Because if you've been fightingthis for the last two months or
several months, yeah so you'restill on the ride yeah yeah, I
(28:17):
have no doubt you're gonna pop,pop back up well.
Speaker 1 (28:21):
I do you do.
I don't think I will yeah whydo you say that?
Just the way I feel with thesymptoms.
I just don't think I'll bounceback from this one well, I'm
rooting for you.
Speaker 2 (28:37):
I mean, we all know that you don't bounce back to
where you were.
Right, you know, but you dobounce.
You're doing a podcast rightnow.
Speaker 1 (28:44):
Yeah.
Speaker 2 (28:45):
Which is amazing, right yeah.
Speaker 1 (28:48):
Yeah, but my wife had to come in here and tell you
what the things I've been doing,because I can't remember them
all.
Yeah, you know.
I can only remember one or twothings.
Speaker 2 (28:58):
Yeah, and, like I said, try not to let it upset
you.
And I didn't.
Yeah, and that's what's amazingabout you.
You have always kept yourhumble personality, you know,
and that's, and for people thatlast year at Keeney that got to
(29:18):
meet you you in person, I hopeyou know what that meant to
everybody and what you mean toeverybody.
With you sharing like you do,because you know, I wouldn't
have known basically most of thethings jim was going through
because he just didn't sharewith me, because he was trying
to protect me and because of youbeing so open and honest about
(29:40):
it all.
You've helped so many people oncaregivers caregivers
understand what their spousemight be going through.
And then other people withlouis, like you're, you're, you
know, you're catch.
Your famous saying is you know?
Yes, you have this, you justhave to learn to live it and
learn to live well with it right, so that's so.
That's what you have to do now.
It's yeah, learn to live it,learn to live well with it,
(30:01):
right?
So that's what you have to donow is learn to live the best
you can with.
Speaker 1 (30:06):
I think I am doing the best that I can right now.
That's why I don't think I'llbounce back.
Speaker 2 (30:12):
Well, sorry, that's okay.
I thought she left the room toget the frying pan.
Speaker 1 (30:21):
No, she had a phone call.
Speaker 2 (30:23):
No, that's all right.
That's all right.
So, linda, we were just sharing, I was having him share what
it's meant to him, like meetingthe people and the Zoom meetings
.
You want to chime in on that,like how you think it has made
him feel it's been five years,kari.
Speaker 3 (30:40):
Yeah Well, I don't think I'd still have him today
if he didn't have that to relyon.
Speaker 2 (30:50):
Yeah.
Speaker 3 (30:51):
I agree yeah.
Speaker 2 (30:54):
It's just seeing those people.
Speaker 3 (30:57):
Family means a lot to him, but this just a another
purpose to to keep him goingyeah, that's perfectly said.
Speaker 2 (31:09):
Um, and it really is like if somebody doesn't come to
the meeting they miss too, likesomebody's contacting them
because it really is family.
You want to family, you want tobe around.
Speaker 1 (31:22):
Um, so I'm hoping people you know consider jumping
in on the zooms, just even thelisten well, just like we, we've
had uh, this happened a fewtimes, but I can right off the
bat, I can think of one lady.
Uh, right off the bat, I canthink of one lady.
(31:43):
We all loved her in Zoom.
And then, all of a sudden, shedisappeared and she wasn't
answering any of our textmessages or anything like that.
And then about a year shestayed out, gone for about a
year, and it's Elaine and herenow Elaine's back.
She's just back, just like shewas before she left.
(32:06):
Yeah, she had to leave and gothrough some things herself.
She said.
Speaker 2 (32:12):
Yeah, and you know that happens with Louie.
You know you've gone thatdownward and you've got to.
Just you just can't handleeverything.
Basically, yeah.
Speaker 1 (32:26):
Yeah, I've seen that she's been posting a lot more,
which is which is great I hopeshe comes back to the meetings
because curry doesn't understandher she speaks boston she
speaks boston.
Speaker 2 (32:37):
So whenever she talks I I always say curry, did you
get that?
She parked her car?
She speaks Boston.
Speaker 1 (32:41):
So whenever she talks , I always say Curry, did you
get?
Speaker 2 (32:42):
that she parked her car, so I hope she comes back.
But that's the thing too is weall know.
You know sometimes we havesomebody who helps us with the
meetings.
Now that needs to step back fora bit and as long as we know
you're okay, nobody's you know,we're just checking, make sure
(33:02):
you're okay, nobody's going tohound you and you know to to, uh
, come back, you come back.
You know when, when you'reready and come back.
So all right, my friend, anyother final words you want to
share?
Speaker 1 (33:16):
not that I can think of.
I just I just appreciateeveryone, uh, who listens to us,
and I hope you all understandwhy we've been gone so long.
It's just been one thing afteranother and it's I can.
Speaker 2 (33:34):
I will confess that and your wife will tell you that
.
Just like I said, I'm veryprotective of you and I wanted
to wait till you were sure, sure, sure you wanted to record,
especially when I knew you werestruggling with some things and
your hallucinations.
And are any of yourhallucinations scary or are they
(33:56):
just objects?
Speaker 1 (33:58):
just objects?
People talking to people whoreally ain't there scary, or are
they just objects, just objects, that's good.
People talking to people whoreally ain't there, that kind of
stuff.
Speaker 2 (34:07):
Is it?
Is it normally people that arestill alive, or not, or both?
Speaker 1 (34:12):
Both.
Speaker 2 (34:14):
I don't know why that , I just was curious about that.
Speaker 3 (34:16):
Yeah, sometimes it's not anybody he thinks he knows
it's just a stranger, walks upand talks to him he thinks yeah
and then you just hold a full-onconversation with them yeah
okay, and linda, you just sit,you just.
Speaker 2 (34:35):
You know me, I I like to talk, so I I know I always
in tried to finish jim'ssentences and I was always in
awe, linda, how you were sopatient with Curry, like when he
was trying to find words.
So how long does he have theseconversations, is it only?
Speaker 3 (34:50):
a few.
Speaker 2 (34:50):
Oh, it's short, they're short, yeah, and you
just listen.
Speaker 3 (34:57):
and then he as long as nothing is harming him, you
know, or or as long as he's notgoing to tear something up, I
just back off and and let him dowhatever you know.
Yeah, she's good about thatyeah, she you are.
Speaker 2 (35:15):
You have the patience of a saint.
Well, really well, you're morepatient than me.
Put it that way because youknow it's it's a heart it's.
It's nothing like those withlouis body, but you know, care
caregiving is, for this diseaseis not not the easiest.
(35:37):
Um, even watch your loved onego through what you're going
through, so I don't want anyanymore.
You don't think you're comingout of it.
Just keep just buying your time.
It's going to pass.
It's going to pass.
That's what we have to think.
Yeah, you know the old sayingone day at a time yeah, yeah,
(35:59):
yeah, and we've heard that somany times on the facebook pages
you know, when people are goingthrough things, just take it
one day at a time because,especially with this disease,
tomorrow could be the day thatyou're starting to pull out of
it sure could you know.
So, all right, my friends andlisteners, and Linda, thank you
(36:20):
for jumping in today.
Speaker 3 (36:24):
Thank you.
Speaker 2 (36:25):
Thank you.
Speaker 3 (36:25):
Linda, you're welcome , thank you.
Speaker 1 (36:29):
I'm glad you jumped on here.
Speaker 2 (36:31):
Yeah, yeah, I know that meant a lot to him, Linda,
that you did that.
Speaker 1 (36:36):
It does did that.
Speaker 2 (36:43):
It does.
But you know I totally get you.
You you're fine with being inthe background because you're
just you're.
You need to know that you arean amazing caregiver.
Speaker 3 (36:48):
Well thank you, she is just do what looks like needs
to be done at the time that'slove, my friend, I think you
should.
Speaker 2 (36:58):
You should buy her a diamond or an aluminum pot or
aluminum pan, it doesn't hurt.
Aluminum pan it doesn't hurt.
Well, thin aluminum pans, itdoesn't hurt so much.
Change over to silicone.
Yeah, oh my God, there arethose like baking stuff.
Speaker 3 (37:16):
Yeah you can get all the baking and silicone now
Carrie text me.
Speaker 2 (37:20):
I'll hook you up, I'll send her one from.
Amazon, but I want to see apicture of you whacking her
upside the head.
Whacking her upside the head.
Oh Lord, I love you guys.
I really do.
I don't know if I would havegotten through with Jim and even
now afterwards, without the twoof you in my life and the
people on our zoom meetings andnot going to cry.
Speaker 1 (37:44):
We appreciate that.
Speaker 2 (37:45):
No, it's, you know it's, it's love, you know it
really.
That that's what you feel whenyou jump on one of those zooms,
whether you're new or you'vebeen there for the last five
years.
Speaker 1 (37:57):
That's right.
Well, we appreciate all you do,yeah well everyone everybody
that you do a lot I, I don't, Ilisten.
Speaker 2 (38:10):
This is the first time in years, carrie, that I
opened up to record and I hitall the right buttons the first
time.
I don't think I ever took it offof the recording mood but, but
anyway, everyone, we just wantedto check back in um and share
with you what's going on withcurry, and I'm so happy you got
(38:32):
to hear linda because she is,yes, one of the sweetest.
She is sweet lady.
She may be four foot, I don'tknow how tall.
Four foot, how tall are you?
She's five two.
You're five two.
She may be five two, but she'llput you right in your place,
young man.
Yes, she does, she does.
(38:52):
All right.
Well, that's all we have timefor this week.
Any last words?
Curry?
Speaker 1 (38:57):
just thanks, thanks to my wife and thanks everyone
for listening and coming to thezooms and just you bet being.
Speaker 2 (39:05):
I feel like I need to play that.
Thank you for being my friendright like that tv show.
Yes, I don't know if I legallywe could do that, but if I'll
ask andrew to see if he can takethe end of the that.
Anyway, if you have any topicsor you want to come on the
podcast, email us atlouiebodyrolocosa at gmailcom.
(39:29):
Yeah, so if you'd like to helpus help other people, that would
be great too.
And if you want to learn how tobe a supporter of the podcast,
you can see the episode notesand it's on the top of the
feature section on the twoFacebook pages.
They always change things, Idon't know why, but anyway, do
(39:50):
you remember your last line?
Speaker 1 (39:53):
This is Corey and Linda.
Yeah, signing off.
Speaker 2 (39:56):
Yeah, Until next week .
This is Linda.
Speaker 1 (40:01):
And Corey signing off .
Yeah, until next week.
This is linda and curry signingoff.
Welcome back podcast family.
Speaker 1 (00:13):
Yeah, welcome back y'all.
Speaker 2 (00:15):
And just a quick shout out, as we always like to
do, to everyone for yourcontinued support and patience
with us getting these episodesout.
Speaker 1 (00:27):
You know we've had some time getting this one here
kick-started, but we're goingnow.
Anyway, I want to thank you allfor being so patient and
supportive of us.
Speaker 2 (00:38):
Like Linda said, yeah , and, as always, please feel
free to share the podcast namewith your doctors and family.
I think hearing from those withthe disease and caregivers
really, really helps people.
And ask Curry some questions,curry, so you don't have to
(01:05):
worry about doing too muchreading If you'd like to be a
guest on a show on a show Ithink I'm doing a TV show now.
People would not want to seewhat we look like when we're
recording, right, I'm justsaying but anyway, you can
contact.
Speaker 1 (01:20):
I have to get out of my jammies.
Speaker 2 (01:21):
Yeah, I know Me too.
We go to the jammies in ourZoom meetings and one day I was
like maybe I'll just fix mybangs and just go Right.
Nobody cares.
But anyway, if you areinterested in sharing your story
or helping us help others, youcan send me an email, a
messenger, through Facebook orat louiebodyrollercoaster at
(01:44):
gmailcom.
First and foremost, we're notgiving medical advice.
Rather, we're just sharing ouropen and honest feelings and
thoughts as we live with LouieBody Dementia.
So we're going to do just anoverall shout out to everyone
who has supported us from dayone.
You bet.
Speaker 1 (02:02):
We thank each and every one of y'all.
Speaker 2 (02:04):
Yeah, so we're not going to call out any names, but
you all know who you are and wereally appreciate all the help
you've given us to keep thispodcast going.
Speaker 1 (02:13):
You bet.
Speaker 2 (02:15):
All right.
So, as Carter would say, it'sjust me and him today doing a
fireside chat because it's beena minute since we recorded.
So first I want to just ask youhow you're feeling, share with
people how you're feeling,because I know you've been doing
such a great job of posting onFacebook how you feel, and it's
(02:38):
just I don't feel good yeah.
I'm in awe that you're stilldoing that, so tell us, share
with us what's going on.
Speaker 1 (02:54):
I just had bad brain fog and I can't hardly remember
anything.
Apparently, I'm doing thingsand saying things that didn't
really happen and I'm going tohave Linda she's here with us
today, my Linda, along withLinda and the podcast, but I'm
(03:16):
going to let Linda step in andanswer a little bit about that.
Speaker 2 (03:20):
Yeah, so thank you first of all, linda for jumping
on, but we talked before westarted recording and just the
importance that, because you'rehaving trouble remembering that,
she could share some of thethings that you're doing yeah,
because I can't remember whathappened yesterday, you know,
and some of the things that shetells me goes on.
Speaker 1 (03:44):
I just think, shake my head and think how did that
happen?
You know?
Speaker 2 (03:49):
Yeah, well, you do have hospice coming more now.
Speaker 1 (03:52):
Yeah.
Speaker 2 (03:52):
Three times a week.
Three times a week, that's forthe nurse and the aid.
Speaker 1 (03:58):
The nurse comes three times a week and the aid comes
three times a week, okay.
And then the caseworker she washere the other day.
She comes about every otherweek, and the preacher comes
about every other week.
Speaker 2 (04:16):
So have they said anything to you, or you, linda?
First of all, linda, thank youfor coming and helping Curry
today.
First of all, linda, thank youfor coming and helping Curry
today.
Have they said anything?
I guess?
Speaker 1 (04:32):
they can see a change in your cognition.
Yeah, she said.
She asked if I wanted to comein a third time during the week
and I said, well, yeah, and shesaid yeah, we could decline.
We really need to and I saidwell, yeah.
Speaker 3 (04:50):
And she said yeah, with your decline, we really
need to.
Speaker 2 (04:54):
And I said okay, she said it's obvious the signs of
decline, yeah, yeah, and I hadasked Linda and Kari did it
start two or three weeks ago?
But you think it started slow acouple months ago.
Yeah, yeah, it's just beenslowly a change.
So what symptoms do you havethat are back, that you kind of
(05:17):
thought you had under control?
Speaker 1 (05:18):
the hallucinations the hallucinations for one thing
thing and delusions.
I'm having quite a few periodsof delusion.
I might tell Linda I'm ridingin the car with someone, or I
just got back from town withsomeone, stuff like that, and to
(05:44):
me it just is like it reallydid happen.
And it turns out I may havebeen sitting here at the house
all day and didn't even doanything.
Speaker 3 (05:54):
He thought we made a trip to Texas and back, but he
couldn't remember who we rodewith.
Speaker 2 (06:00):
Yeah, you want to share Linda, with some of the
things that you were sharingbefore we started of.
Like, sometimes he's asking thesame thing over and over and
like.
What kinds of things is hedoing or saying?
Speaker 3 (06:29):
He always thinks that somebody's been here when they
haven't other than, you know,the hospice people coming in.
He thought a man was heremeasuring for something.
One day the hospice nurse washere when he was asking about
that because he thought the manwas going in and out of the
house while they were here.
Right, just, I don't know.
He thought we had another dog.
(06:50):
He thinks people walk up to himwhen he's out on the porch and
visits with him when they're notthere.
Just different things.
He thought we were taking careof our grandson while his mom
was out of town, and we weren't.
Our grandkids are all grown.
Speaker 1 (07:10):
I do remember thinking that Sean, our grandson
, lives in Texas.
I remember thinking he was herethe other day.
Speaker 2 (07:18):
Yeah, well, you did do a lot with him.
You know, you guys built thatchicken coop and all that when
you were in Texas.
Did you hear Roxy bark?
Just as she said you thoughtyou had another.
No, you didn't.
She barked in the background,just as you said that, linda,
and I'm like, oh, although I'vetold Carrie I'm going to ship
her off to you, send her over,she's better behaved in your
(07:43):
house with all your animals andyour cows and your goats than in
my house.
So, curry, are you havingconversations with people when
you think they're in the houseand do you remember it
afterwards, or no?
Speaker 1 (08:00):
Usually not no.
Speaker 3 (08:02):
He won't remember the conversation.
He just thinks that he talkedto someone.
No, he won't remember theconversation, he just thinks
that he talked to someone Right.
Speaker 2 (08:08):
Mm-hmm.
So Linda had mentioned that Ihad asked her if she could come
on and share, because othercaregivers first of all.
They're going to be so excitedto hear your voice, linda.
We've kept you hidden for what?
(08:32):
Three years, five years, almost.
Curry.
Yeah, I know, um, but we knowyou do it all.
You do so much behind thescenes for him and I did ask him
.
You know, has she whacked youacross the head because you keep
asking the same thing with thatfrying pan?
So how are you, how are youdealing with that, linda, when
he continually asked the samething with that frying pan?
So how are you, how are youdealing with that, Linda, when
he continually asked the samething over and over?
Speaker 3 (08:49):
well, for one thing, he takes it good-naturedly.
I mean, it's, it's he still.
He still has held on to that.
But I just I just answer himevery time either with no, I'm
sorry that didn't happen, ormaybe it was a dream and I may
have to tell him that severaltimes a day, but I just answer
(09:14):
him and go on.
It's kind of like a kid that'salways asking you, following you
around and asking why.
Yeah, you know I just answerhim the best I can and hope that
that satisfies him at themoment.
Speaker 2 (09:26):
Yeah, I'm not surprised.
You're keeping your personalityand your sense of humor, which
is great.
Speaker 3 (09:35):
So far that's still intact, yeah.
Speaker 2 (09:39):
What do you want people to know?
Curry about what's going onwith you right now.
Speaker 1 (09:42):
To know, curry, about what's going on with you right
now.
Well, my thing is, I wantpeople to understand on Facebook
.
I used to post quite a bit onFacebook, you know, pretty
regularly.
But now I can sit there in mychair, my recliner, with my
(10:04):
phone in my hand wanting to postsomething, but yet I can't
think of anything to post, youknow, and sometimes the thing
that I want to post little timeat night didn't happen, you know
.
But I just want people tounderstand why I'm not on
(10:30):
facebook as much as I was.
Speaker 3 (10:31):
Yeah, it's just I can't, and he has a harder time
navigating the phone yeah andlike the remote control things
like that.
It's just harder for him towork them.
Speaker 2 (10:44):
So when you do post on the times in the past couple
weeks, when you've posted howyou're feeling, are you talk
texting?
I usually talk text.
Okay, yeah, because it was.
You know I'm like, oh my gosh,you know I'm amazed and then I
said maybe he's well, we didhave this conversation because
(11:05):
it's learned your southern drawland everything, yeah my phone,
especially this new phone, itcan put words up.
Speaker 1 (11:15):
before I say it.
It seems to know what the nextword is going to be yeah, scary,
right.
Speaker 2 (11:22):
Yeah, it's pretty neat to be, yeah, scary right?
Yeah, it's pretty neat.
It's, yeah, it's a good time tobe alive as far as technology
is concerned and all the helpthat it can give people,
especially people with dementia.
Speaker 1 (11:33):
Um so, yes, and that's another thing I I used to
try to answer when I readFacebook and people, when I
would read people's posts,usually I would try to answer
them or give them my point ofview on it, for what that's
worth.
You know, and a lot of timesnow I can't even do that yeah.
Speaker 2 (11:57):
Well, don't be upset about that Cause you know you've
there's.
You've been in the Louis Lowe'sbefore, maybe not not as bad as
this one, but people understandbecause you did post how you're
feeling.
So people know you're Louiswinning right now.
You know having a rough timebatting him down, so are your
(12:20):
essential tremors back.
No, just my internal tremors Istill have those I don't know
why I said essential, yeah, onlywhere they came from internal.
Speaker 1 (12:33):
Yeah and they, they.
They normally last about threeor four days, and then they'll
be gone for for a while and thenthey come back and you haven't
changed any medicines oranything.
Speaker 2 (12:45):
They just.
Speaker 1 (12:46):
That's one of the craziness yeah, crazy someone
else was talking on facebookyesterday and answering to one
of my posts and they said theirinterior trimmers have gotten
really bad.
Yeah, no, and they were at one.
I know if I knew anything toget rid of them.
(13:06):
And I said I don't have anyidea what to do, or else I would
.
Speaker 2 (13:10):
Yeah, because you don't even know what's making
them start and what's makingthem stop.
Right, how about your anxietylevel?
Speaker 1 (13:18):
Oh, I take anxiety meds now.
It keeps it down pretty low.
Speaker 2 (13:24):
Yeah, so that hasn't changed.
No, no.
How about sleep?
How's your sleep been?
Speaker 1 (13:31):
What sleep?
Yeah, I sleep.
We're in bed by about 11.30.
Usually sleep by about 12.30.
Then I'm usually awake around2.30 or 3.
And sometimes I stay up andsometimes I just go outside and
smoke cigarettes with sparky andthen come back in and lay back
(13:56):
down and we'll go back to sleep.
But I just don't get much sleepat all.
Speaker 2 (14:02):
So how are you doing getting up and going out for
that smoke?
Speaker 1 (14:08):
Well, I think I do pretty good.
Speaker 3 (14:09):
It's pretty good.
It gets harder now, but stillable to.
Yeah, thank goodness for themobility chair.
Yeah, jazzy.
Speaker 2 (14:21):
Yes, yeah, that jazzy .
Speaker 1 (14:25):
I'd be lost.
Without it, I wouldn't be nearmobile.
Speaker 2 (14:30):
Yeah, it's amazing how that has really helped you
and you just got your recentlygot your golf cart fixed right.
Speaker 1 (14:38):
Yes, ma'am.
Speaker 2 (14:39):
Yeah, but you're not taking any rides alone on that
right now, right I'm only takingit around the block twice okay,
you went over and picked up theother day I did.
Speaker 1 (14:49):
I went over and picked up a grandson and got him
back over there the other daywhich is only about four blocks
away yeah, right, right, andthen where they live there's not
a lot of traffic.
Speaker 2 (15:01):
You haven't taken to get donuts yet, oh yeah.
Speaker 1 (15:05):
Is that your bacon?
Speaker 2 (15:05):
donut or something.
Speaker 1 (15:07):
That's the first thing I did the day after we got
home.
I went and got donuts the nextmorning, yeah.
Speaker 2 (15:14):
Now, does he do that by himself, Linda, or do you go
with him?
Speaker 3 (15:17):
I let him go by himself.
I track him.
Yeah, I let him go by himself.
I track him, yeah, and kind oftime him on how long he's gone.
Right right, so I know whetherto go looking for him or not.
Speaker 2 (15:30):
Yeah.
Speaker 3 (15:31):
We use that.
Speaker 1 (15:32):
Life360, and it works pretty good for tracking.
Speaker 2 (15:37):
I know we talked about that before.
Do you have to pay for that, oris that free?
Speaker 1 (15:41):
No, it's free.
Speaker 2 (15:42):
Okay, Well, people should look into that like 360.
And it's just on your phone.
Speaker 1 (15:47):
Yeah, it's just an app on the phone.
Speaker 2 (15:50):
Yeah, now, where do you keep your phone when you're
riding?
Speaker 1 (15:55):
In the pouch on Jazzy .
Speaker 2 (15:56):
Okay, so you won't lose it.
Speaker 1 (15:58):
I keep my gloves and everything.
Speaker 2 (16:00):
Mm-hmm, yeah, I'm thinking I would put one of
those.
I forget the tags or somethingthat you put in luggage.
Yeah, I forget what they'recalled.
We're considering those yeahbecause I don't know if they
cost money.
They cost money to buy, but Idon't think they're too
expensive.
Yeah, I'd look it up, but Idon't want to touch any money.
(16:21):
I don't they cost money to buy,but I don't think they're too
expensive yeah.
I'd look it up, but I don't wantto touch any of the buttons,
since I hit all the right onesfor this time they got me a bed
alarm.
Speaker 1 (16:33):
We just haven't got it going yet.
Speaker 2 (16:35):
Okay, so Linda knows you're getting up at night, yeah
, yeah, because you've fallen acouple times since we last
recorded what, yeah, what, youknow what happened then, like
where was it?
Speaker 1 (16:47):
well, one time, uh, I don't know whether the dogs
tripped me going out the backdoor or if my feet just got
tangled up going out the backdoor and then the other time and
and I fell outside, fell upagainst the chairs.
That's the only thing that hitme from going all the way down
was I grabbed hold of a chair onmy way down and then the other
(17:11):
time I think I fell here in theliving room.
I'm not sure.
Speaker 3 (17:17):
Yeah, you fell in the living room and fell into the
couch.
Speaker 1 (17:21):
Fell into the couch.
Speaker 3 (17:22):
Luckily, instead of falling away from it.
Speaker 2 (17:25):
Yeah, and then you had a jazzy incident once, right
Like it got stuck or somethingand slammed you into the oh yeah
, yeah, it sure did.
Speaker 3 (17:36):
He rearranged the furniture, yeah.
Speaker 1 (17:39):
I can just imagine my jazzy's got this little thing
here.
Extension for the throttle.
Speaker 2 (17:46):
Yeah, like yep.
Speaker 1 (17:47):
And I pulled up there to the pitching table and I was
rolling my cigarettes while Iwas doing.
And when I got through I gotready to back out and I turned
the Jazazzy on and it wentstraight forward.
I mean, it was in fast mode tooand what had happened is, when
(18:11):
I got, when I got under thetable and I turned the thing off
, the throttle stick was stuckin four.
Oh no.
So when I turned it on it wasin high speed and I mean it
scooted the table four to five,four or five foot so you were
blowing a china shop oh yeah, Ihad a big cut on my hand.
Speaker 2 (18:32):
Oh lord is that healed now?
Yeah, it's healed yeah, yeah,because I remember you showing
us you took a pretty big gougeout of that.
Speaker 1 (18:40):
Yeah, sure did yeah.
Speaker 2 (18:43):
Just keeping your wife on her toes?
Uh-huh, you know.
So let me ask you this you know, five years ago, which you know
, you admitted that you thoughtI was crazy.
I'm over it, I'm not upsetabout that.
I was over it.
I'm not upset about thatanymore.
I was never upset.
But so five years ago, when Isent you that message and then
(19:06):
you know, we started doing thesepodcasts, and then we started
doing once a week, then twice aweek, and I think we have like
six a week now.
Uh, zoom, support meetings,yeah, what, what has that all
meant to you?
Like, what do you want peopleto know about what that meant to
you?
Speaker 1 (19:26):
well again.
I used to talk quite a bitduring them and now I don't.
I basically sit and listen toeveryone else a lot now I I
don't, I don't, I don't reallychime in much, I just don't but
they, but they keep him going.
Speaker 3 (19:41):
Yeah, they keep him going.
Speaker 1 (19:42):
They keep me going.
It's a good thing that we stillgot him, because they do give
me something to do and I dostill learn something from every
Zoom Mm-hmm.
Speaker 2 (19:53):
So yeah, because it's like we said not, you know, we
don't you and I and Megan andSam like just pushed a button to
open the meeting.
So it's not you know, it's notlike we have an agenda, it's
just people sharing theirproblems and other people
sharing how they handle thoseproblems.
Speaker 1 (20:14):
Well, just like we had another new couple join us
about two weeks ago and then inthe Louie Budd louis buddies
group on thursday afternoons wehad a lady, a new lady, start
there, you know.
So people are still stillcoming to us and finding us.
(20:36):
And still the louis body, uh,rollerer Coaster Facebook group,
it still has six to nine peopleevery day joining.
The Our Journey group still hasa couple each day, sometimes
(20:57):
more, but the Roller Coastergroup it's just going like
gangbusters.
Speaker 2 (21:03):
Yeah, I think when you, because if you type in
Louie Body instead of ourjourney, like Louie Body comes
up first.
And we've said this many times,like we know people are, you
can be well camera shy ormicrophone shy, like to join a
Zoom, and you can just come onand we'll be like you don't even
have to turn on your mic oryour camera, we'll just welcome
(21:25):
you and you can listen in andsee how it is.
And I'm pretty sure we have apretty 100% track record of
people come back.
We don't scare them off,because we do.
We come in laughing, we talkabout serious things.
Sometimes we're just catchingup in each other's lives, which
is amazing, because you, what isthe, what is your Zoom family
(21:49):
meant to you, the people you'vemet?
Speaker 1 (21:53):
Instant friends, instant friends and instant
family members.
I feel like everyone in theZoom meetings are my family, and
I think of each one of themthat way too.
Speaker 2 (22:08):
Yeah, family, you want to be around.
Speaker 1 (22:09):
Family.
I want to be around, yeah, yeah.
Speaker 2 (22:11):
Yeah, and how about?
What are your thoughts on thiscrazy podcast that we're still
getting 250 or more listeners aweek even though we've, you know
, kind of had the summer down,which?
I know, I know you, I know weboth are stressed out that we
don't do one every week now, butpeople understand and we've
(22:35):
been pretty good with theholidays having a downtime
during holidays in the summer.
Speaker 1 (22:40):
And I hope this one, they'll understand why we've
been so sliding on them.
Yeah, it's been rough.
Speaker 2 (22:49):
Yeah, that's you know , and true confession that you
know I've been texting his wife,linda, and you know Curry will
send me.
We've got to get to recording.
We've got to get to recordingand, like I know, when you're
having a bad day by what youpost or the fact that you don't
(23:10):
post, um, because you know I'myour little sister now, so I'm
pretty much got your number,buddy, but, um, I felt like I've
been walking this fine linewhere I want to protect you.
Speaker 1 (23:20):
Yeah.
Speaker 2 (23:20):
Because that one episode we recorded where you,
you listened and then you werereally upset and you wanted to
apologize because you soundedlike you were drunk.
Speaker 1 (23:28):
Yeah.
Speaker 2 (23:29):
So that's you know.
I've been walking, you know, doit?
Should we?
Should we not?
Should we?
You know, just because I knowhow you upset you are the last
time that you sounded drunk, butyou sounded.
Speaker 1 (23:40):
I think I did too.
Speaker 2 (23:43):
Oh were the last time that you sounded drunk, but you
sounded.
I think I did too well, you,you sounded tired to me, yeah,
yeah.
But then we said, maybe that'sif you were like that when you
went to the er for the firsttime and they thought you were
drinking, you know, you can see,because, um, that's what louis
louis does to you yeah um and Itell you the, the hospice gals
have really they've just beenterrific for me and for Linda.
Speaker 1 (24:07):
they really have been Shoot.
I don't know where I was goingwith that.
Speaker 2 (24:12):
Yeah, but don't you wish you would have called them
sooner?
Speaker 1 (24:15):
I do, I really do.
Speaker 2 (24:17):
I know it's the practice what you preach, kind
of thing, you know, we keptsaying you know, and even
palliative care.
Speaker 1 (24:24):
Yeah.
Speaker 2 (24:25):
You know, just to get help with that, yeah, but it's
good that they're there andthey're seeing everything.
Now, the way you feel now, doyou feel like you've been this
low before with Louie?
Speaker 1 (24:40):
No, I don't.
No.
What's the big difference?
Uh, I think I.
I think I'm lower this timebecause of my memory issues and
in my hallucinations and youhaven't changed medicines or
anything.
Speaker 2 (24:59):
No, yeah, because you pretty much had those under
control for a long time.
Yeah, yeah, but you're likeright now you sound really good.
I mean, you sound tired, butand I'll text you later and see
if you remember doing doing thistoday you know, right, but and
(25:24):
I'm only going to do that justto let you know, it's okay if
you don't remember, you know.
I mean, yeah, if the big schemeof life is not, you know, as
long as you're still happy andyour wife's not smacking you too
much with that frying pan andyou know, that just enjoy time
with your kids and yourgrandkids although you have one
(25:46):
that's going to Austria.
Speaker 1 (25:49):
Australia.
He left yesterday.
He got left here and went toHouston, left Houston and went
to LA and he missed hisconnecting flight in LA.
So the airlines put him up in ahotel room and he leaves LA
(26:13):
like at 11.45 tonight.
Speaker 2 (26:15):
Their time, and he's never traveled like this before.
Speaker 1 (26:18):
No, he hasn't.
Speaker 2 (26:19):
Dang to be young and carefree right.
Speaker 1 (26:25):
Yeah, never traveled like this before, dang, to be
young and carefree, right?
Yeah, but he was.
He was calling, wanting to knowwhat, what, what to do and how
to do it good, that kind ofthing.
Speaker 2 (26:33):
Yeah, and he is.
He is if does he have a friendthere?
Speaker 1 (26:35):
you got one friend there.
Speaker 2 (26:36):
Okay, is it?
I think I asked you hisgirlfriend is.
I was gonna say is it a girl?
Yeah, because guys will do thatfor girls.
Yeah, yeah, yeah.
So I agreed, I said, let's,let's get them on, let's let
let's record, cause then youknow it's going to help you
sleep afterwards.
It always, it always does.
But I feel like you want to.
(26:56):
I could feel like through yourmessages, you just wanted to get
on there and share with ourlisteners and our Facebook.
I did.
Speaker 1 (27:04):
I just I wanted them to know why we hadn't been
recording.
You know, it's always been onething or another happening yeah.
Speaker 2 (27:15):
And me being over over protective of you.
Speaker 1 (27:18):
Yeah, I just wanted to let them know why you know
protective of you.
Yeah, I just want to let themknow why you know I said I'm my
memory is, you know.
I can remember saying well, myshort-term memory's bad, I can't
, I can't.
I don't remember a lot, but nowI can, I can say it and I mean
(27:39):
it deeper it it's gone a lotdeeper than what it was.
Speaker 2 (27:45):
So your short-term memory has gotten worse.
Speaker 1 (27:47):
Yeah.
Speaker 2 (27:48):
What about your long-term memory?
Speaker 1 (27:50):
It's still pretty good.
Speaker 2 (27:51):
Yeah, that's crazy right.
Speaker 1 (27:54):
Yeah.
Speaker 2 (27:55):
But you know, for five years you told me you know
I've been down like this.
I'm just going to ride it outto you.
Yeah, years, you told me youknow I've been.
You know I'm down like this.
I'm just gonna ride it out toyou yeah till you come back up.
What's the longest you had toride it out?
Because if you've been fightingthis for the last two months or
several months, yeah so you'restill on the ride yeah yeah, I
(28:17):
have no doubt you're gonna pop,pop back up well.
Speaker 1 (28:21):
I do you do.
I don't think I will yeah whydo you say that?
Just the way I feel with thesymptoms.
I just don't think I'll bounceback from this one well, I'm
rooting for you.
Speaker 2 (28:37):
I mean, we all know that you don't bounce back to
where you were.
Right, you know, but you dobounce.
You're doing a podcast rightnow.
Speaker 1 (28:44):
Yeah.
Speaker 2 (28:45):
Which is amazing, right yeah.
Speaker 1 (28:48):
Yeah, but my wife had to come in here and tell you
what the things I've been doing,because I can't remember them
all.
Yeah, you know.
I can only remember one or twothings.
Speaker 2 (28:58):
Yeah, and, like I said, try not to let it upset
you.
And I didn't.
Yeah, and that's what's amazingabout you.
You have always kept yourhumble personality, you know,
and that's, and for people thatlast year at Keeney that got to
(29:18):
meet you you in person, I hopeyou know what that meant to
everybody and what you mean toeverybody.
With you sharing like you do,because you know, I wouldn't
have known basically most of thethings jim was going through
because he just didn't sharewith me, because he was trying
to protect me and because of youbeing so open and honest about
(29:40):
it all.
You've helped so many people oncaregivers caregivers
understand what their spousemight be going through.
And then other people withlouis, like you're, you're, you
know, you're catch.
Your famous saying is you know?
Yes, you have this, you justhave to learn to live it and
learn to live well with it right, so that's so.
That's what you have to do now.
It's yeah, learn to live it,learn to live well with it,
(30:01):
right?
So that's what you have to donow is learn to live the best
you can with.
Speaker 1 (30:06):
I think I am doing the best that I can right now.
That's why I don't think I'llbounce back.
Speaker 2 (30:12):
Well, sorry, that's okay.
I thought she left the room toget the frying pan.
Speaker 1 (30:21):
No, she had a phone call.
Speaker 2 (30:23):
No, that's all right.
That's all right.
So, linda, we were just sharing, I was having him share what
it's meant to him, like meetingthe people and the Zoom meetings
.
You want to chime in on that,like how you think it has made
him feel it's been five years,kari.
Speaker 3 (30:40):
Yeah Well, I don't think I'd still have him today
if he didn't have that to relyon.
Speaker 2 (30:50):
Yeah.
Speaker 3 (30:51):
I agree yeah.
Speaker 2 (30:54):
It's just seeing those people.
Speaker 3 (30:57):
Family means a lot to him, but this just a another
purpose to to keep him goingyeah, that's perfectly said.
Speaker 2 (31:09):
Um, and it really is like if somebody doesn't come to
the meeting they miss too, likesomebody's contacting them
because it really is family.
You want to family, you want tobe around.
Speaker 1 (31:22):
Um, so I'm hoping people you know consider jumping
in on the zooms, just even thelisten well, just like we, we've
had uh, this happened a fewtimes, but I can right off the
bat, I can think of one lady.
Uh, right off the bat, I canthink of one lady.
(31:43):
We all loved her in Zoom.
And then, all of a sudden, shedisappeared and she wasn't
answering any of our textmessages or anything like that.
And then about a year shestayed out, gone for about a
year, and it's Elaine and herenow Elaine's back.
She's just back, just like shewas before she left.
(32:06):
Yeah, she had to leave and gothrough some things herself.
She said.
Speaker 2 (32:12):
Yeah, and you know that happens with Louie.
You know you've gone thatdownward and you've got to.
Just you just can't handleeverything.
Basically, yeah.
Speaker 1 (32:26):
Yeah, I've seen that she's been posting a lot more,
which is which is great I hopeshe comes back to the meetings
because curry doesn't understandher she speaks boston she
speaks boston.
Speaker 2 (32:37):
So whenever she talks I I always say curry, did you
get that?
She parked her car?
She speaks Boston.
Speaker 1 (32:41):
So whenever she talks , I always say Curry, did you
get?
Speaker 2 (32:42):
that she parked her car, so I hope she comes back.
But that's the thing too is weall know.
You know sometimes we havesomebody who helps us with the
meetings.
Now that needs to step back fora bit and as long as we know
you're okay, nobody's you know,we're just checking, make sure
(33:02):
you're okay, nobody's going tohound you and you know to to, uh
, come back, you come back.
You know when, when you'reready and come back.
So all right, my friend, anyother final words you want to
share?
Speaker 1 (33:16):
not that I can think of.
I just I just appreciateeveryone, uh, who listens to us,
and I hope you all understandwhy we've been gone so long.
It's just been one thing afteranother and it's I can.
Speaker 2 (33:34):
I will confess that and your wife will tell you that
.
Just like I said, I'm veryprotective of you and I wanted
to wait till you were sure, sure, sure you wanted to record,
especially when I knew you werestruggling with some things and
your hallucinations.
And are any of yourhallucinations scary or are they
(33:56):
just objects?
Speaker 1 (33:58):
just objects?
People talking to people whoreally ain't there scary, or are
they just objects, just objects, that's good.
People talking to people whoreally ain't there, that kind of
stuff.
Speaker 2 (34:07):
Is it?
Is it normally people that arestill alive, or not, or both?
Speaker 1 (34:12):
Both.
Speaker 2 (34:14):
I don't know why that , I just was curious about that.
Speaker 3 (34:16):
Yeah, sometimes it's not anybody he thinks he knows
it's just a stranger, walks upand talks to him he thinks yeah
and then you just hold a full-onconversation with them yeah
okay, and linda, you just sit,you just.
Speaker 2 (34:35):
You know me, I I like to talk, so I I know I always
in tried to finish jim'ssentences and I was always in
awe, linda, how you were sopatient with Curry, like when he
was trying to find words.
So how long does he have theseconversations, is it only?
Speaker 3 (34:50):
a few.
Speaker 2 (34:50):
Oh, it's short, they're short, yeah, and you
just listen.
Speaker 3 (34:57):
and then he as long as nothing is harming him, you
know, or or as long as he's notgoing to tear something up, I
just back off and and let him dowhatever you know.
Yeah, she's good about thatyeah, she you are.
Speaker 2 (35:15):
You have the patience of a saint.
Well, really well, you're morepatient than me.
Put it that way because youknow it's it's a heart it's.
It's nothing like those withlouis body, but you know, care
caregiving is, for this diseaseis not not the easiest.
(35:37):
Um, even watch your loved onego through what you're going
through, so I don't want anyanymore.
You don't think you're comingout of it.
Just keep just buying your time.
It's going to pass.
It's going to pass.
That's what we have to think.
Yeah, you know the old sayingone day at a time yeah, yeah,
(35:59):
yeah, and we've heard that somany times on the facebook pages
you know, when people are goingthrough things, just take it
one day at a time because,especially with this disease,
tomorrow could be the day thatyou're starting to pull out of
it sure could you know.
So, all right, my friends andlisteners, and Linda, thank you
(36:20):
for jumping in today.
Speaker 3 (36:24):
Thank you.
Speaker 2 (36:25):
Thank you.
Speaker 3 (36:25):
Linda, you're welcome , thank you.
Speaker 1 (36:29):
I'm glad you jumped on here.
Speaker 2 (36:31):
Yeah, yeah, I know that meant a lot to him, Linda,
that you did that.
Speaker 1 (36:36):
It does did that.
Speaker 2 (36:43):
It does.
But you know I totally get you.
You you're fine with being inthe background because you're
just you're.
You need to know that you arean amazing caregiver.
Speaker 3 (36:48):
Well thank you, she is just do what looks like needs
to be done at the time that'slove, my friend, I think you
should.
Speaker 2 (36:58):
You should buy her a diamond or an aluminum pot or
aluminum pan, it doesn't hurt.
Aluminum pan it doesn't hurt.
Well, thin aluminum pans, itdoesn't hurt so much.
Change over to silicone.
Yeah, oh my God, there arethose like baking stuff.
Speaker 3 (37:16):
Yeah you can get all the baking and silicone now
Carrie text me.
Speaker 2 (37:20):
I'll hook you up, I'll send her one from.
Amazon, but I want to see apicture of you whacking her
upside the head.
Whacking her upside the head.
Oh Lord, I love you guys.
I really do.
I don't know if I would havegotten through with Jim and even
now afterwards, without the twoof you in my life and the
people on our zoom meetings andnot going to cry.
Speaker 1 (37:44):
We appreciate that.
Speaker 2 (37:45):
No, it's, you know it's, it's love, you know it
really.
That that's what you feel whenyou jump on one of those zooms,
whether you're new or you'vebeen there for the last five
years.
Speaker 1 (37:57):
That's right.
Well, we appreciate all you do,yeah well everyone everybody
that you do a lot I, I don't, Ilisten.
Speaker 2 (38:10):
This is the first time in years, carrie, that I
opened up to record and I hitall the right buttons the first
time.
I don't think I ever took it offof the recording mood but, but
anyway, everyone, we just wantedto check back in um and share
with you what's going on withcurry, and I'm so happy you got
(38:32):
to hear linda because she is,yes, one of the sweetest.
She is sweet lady.
She may be four foot, I don'tknow how tall.
Four foot, how tall are you?
She's five two.
You're five two.
She may be five two, but she'llput you right in your place,
young man.
Yes, she does, she does.
(38:52):
All right.
Well, that's all we have timefor this week.
Any last words?
Curry?
Speaker 1 (38:57):
just thanks, thanks to my wife and thanks everyone
for listening and coming to thezooms and just you bet being.
Speaker 2 (39:05):
I feel like I need to play that.
Thank you for being my friendright like that tv show.
Yes, I don't know if I legallywe could do that, but if I'll
ask andrew to see if he can takethe end of the that.
Anyway, if you have any topicsor you want to come on the
podcast, email us atlouiebodyrolocosa at gmailcom.
(39:29):
Yeah, so if you'd like to helpus help other people, that would
be great too.
And if you want to learn how tobe a supporter of the podcast,
you can see the episode notesand it's on the top of the
feature section on the twoFacebook pages.
They always change things, Idon't know why, but anyway, do
(39:50):
you remember your last line?
Speaker 1 (39:53):
This is Corey and Linda.
Yeah, signing off.
Speaker 2 (39:56):
Yeah, Until next week .
This is Linda.
Speaker 1 (40:01):
And Corey signing off .
Yeah, until next week.
This is linda and curry signingoff.
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