Lipedema Mamas Podcast

Shawn and Ashley talk candidly about what it’s really like to run social media platforms in the lipedema space—the good, the hard, and everything in between. From dealing with misinformation to handling the inevitable drama, they share their honest approach to building a safe and supportive community.

💛 Special thanks to our sponsors: We’re so grateful to Marena Compression and AIROS Medical for supporting this community and m...

This week we’re catching up with our friend Kasi Grosvenor, project manager for the Lipedema Foundation. We are chatting about what it's like parenting two teenage daughters who have lipedema and the work Kasi does for the Lipedema Foundation- an incredible resource to our community! Big thanks to our amazing sponsors—Lipoelastic, Marena Compression, and AIROS Medical—for always standing beside women with lipedema.

✨ Lipoelasti...

This week we’re catching up with our friend Kasi Grosvenor, project manager for the Lipedema Foundation. It’s been a year since we last talked, and wow… so much has happened! Kasi shares more on her lipedema removal surgeries, living with mast cell disease, and talks about her journey with GLP-1. It’s real, it’s encouraging, and it’s only part 1! Next week we talk about what it's like parenting teenage daughters with lipedema.

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In this episode, we’re taking a deep breath and catching up. It's just the two of us—Shawn and Ashley—talking about life lately, including Shawn’s most recent lipedema removal surgery. We get into the tough stuff, the hopeful stuff, and everything in between.

Whether you're recovering from surgery, considering it, or just navigating the daily ups and downs of lipedema—you’re not alone. Come sit with us for a bit.

💛 S...

Crystal Billings gets real about her journey with lipedema and obesity, and how she’s rewriting the narrative—one marathon at a time. Tune in to hear how intermittent fasting and mindset shifts have helped her reclaim her health and confidence.

📲 Follow Crystal on Instagram: @cmoflows or email her at crystal@crystallizedconsulting.com

🩺 Special Thanks to Our Sponsors: We are proud to be supported by brands who care deeply abo...

🎙️ Episode Title: Talking Fascia w/ Leah Levitan + Q&A

Description:

We’re getting into the tissues—literally! In this episode of the Lipedema Mamas Podcast, we’re joined by the incredible Leah Levitan, founder of Lymph Love Club, for a deep and empowering conversation all about fascia—what it is, how it affects the lymphatic system, and why it matters for women living with lipedema.

Leah is a Licensed Massage Therapist, Manua...

🎙️ Episode Title: Shawn & Ashley Catch Up on Shawn's Upcoming Surgery & What They Learned From Their Appointment w/ Dr. Herbst

This week on The Lipedema Mamas Podcast, Ashley and Shawn sit down to catch up. They are chatting about Shawn's upcoming lipedema removal surgery on her upper legs, what she's packing, etc. They also recap takeaways from their appointment with Dr. Karen Herbst

🩺 Special Thanks t...

🎙️ Episode Title: Revolutionary Mindset on Eating
Guest: Stefanie Michele | Binge Recovery & Body Image Coach

This week on The Lipedema Mamas Podcast, we're honored to sit down with the insightful and inspiring Stefanie Michele, a binge recovery and body image coach who brings both personal experience and professional expertise to the table.

In this empowering conversation, Stefanie opens up about her own journey toward h...

On this week's episode of the Lipedema Mamas Podcast, take a listen as Ashley and Shawn chat with internationally recognized lipedema expert Dr. Karen Herbst about the Diagnostic and Preventative center she is heading up in Tucson, AZ with the Roxbury Institute.

The conversation was so full of great information, that we split it into two parts. Enjoy part 2!

Thank you, as always, to our sponsors: Lipoelastic, AIROS Medi...

On this week's episode of the Lipedema Mamas Podcast, take a listen as Ashley and Shawn chat with internationally recognized lipedema expert Dr. Karen Herbst about the Diagnostic and Preventative center she is heading up in Tucson, AZ with the Roxbury Institute. The conversation was so full of great information, that we split it into two parts. Enjoy part 1!

Thank you, as always, to our sponsors: Lipoelastic, AIROS Medical, ...

On this week's episode we sat down with the board president of Lipedema Canada Angel Anderson to talk about her journey through multiple lipedema removal surgeries with Dr. Ghods in Germany. She tells us how she was able to do this without taking anyone with her as well as what Lipedema Canada has been up to.

You can find more with Angel on her Instagram page @msangelanderson

To get plugged into the goings-on with Lipedem...

This week we are chatting with Mrs. Florida United States and lipedema patient Tanya Holloway. Tanya is a growing advocate for women with lipedema and shares how it has been navigating the pageant world with this disease. While she does not have her official diagnosis yet, she has had surgery on her arms with Dr. Su in Tampa FL and shares about that experience as well.

To find more with Tanya, go to her Instagram page @mrstanyah...

Lea Fowler has been an advocate for patients and providers alike for the last 17 years taking on insurance companies. After helping a friend seek coverage for their lipedema removal surgeries, she saw the huge need in this community with women struggling to find coverage for their surgeries. She started a Facebook group called ERISA Facts not Fallacies where she helps educated women and their families on their rights based on the s...

How can breathing have anything to do with your journey with lipedema? Are there maladaptive ways you might be breathing that are creating other problems with your health and psyche? We ask all of these questions and more and got amazing insight from speech and myofunctional therapist Perrin White on this week's episode of the Lipedema Mamas Podcast.

To learn more, check out her Instagram @breathewellbewell

Thank you,...

This week we are talking with Lisa, a stage 1 patient who has had several lipedema removal surgeries over the years. She talks about her journey with lipedema, surgery, feeling at times invalidated because she is stage 1, and how GLP-1s have been a game changer.

You can find more with Lisa at her Instagram @lipedema_liaison

Thank you, as always, to our sponsors: Lipoelastic, AIROS Medical, and Marena.

For more informatio...

This week we are highlighting the last batch of interviews we recorded LIVE at the 2025 FDRS conference in Atlanta, GA.

In this episode, you will hear from the CEO of the Lipedema Foundation Jonathan Kartt. You'll get to hear right from him the latest goings-on in the foundation and what they are doing to continue research in the community. To learn more about the foundation and how you can be part of moving things forward,...

This week we are highlight the next batch of interviews we recorded LIVE at the 2025 FDRS conference in Atlanta, GA.

In this episode, you will hear from Dr. David Amron and Dr. Karen Herbst- the dynamic duo bringing surgery, research, and prevention methods to the lipedema community from their offices in Beverly Hills, CA; Tuscon, AZ; and Salt Lake City, UT. To learn more, visit advancedlipedematreatment.com. Be sure to follow ...

This last weekend was the annual Fat Disorders Resource Society conference in Atlanta, GA, and we got the hot takes right off the press (and some fresh off the presentation stage) coming for you! This week is part 1 of 3.

On this week's episode you will hear from Cheyenne Brinson, the president of FDRS; Dr. Thomas Wright, lipedema surgeon and medical director for Lipedema Surgical Solutions; Dr. Ana Carolina, plastic surgeon...

As many of you know, our community suffered a tremendous loss this week at the passing of Pattie Cornute. To honor her memory, we are reposting the episode she recorded with us earlier this summer. We hope that you will be comforted by her voice, encouraged by her strength, and determined now more than ever before to continue her legacy of loving kindness to this amazing community and to the world. Our thoughts and prayers go out t...