Living With Lewy
My name is Larry and I live with Lewy Body Dementia. Myself and my daughter Abbie wanted a place for people living with Lewy Body, their caregivers, therapists and other medical and support professionals can share their experiences.
Episodes
October is Lewy Body Awareness Month share this podcast to help raise awareness!!!!
I am returning after a short absence with what it is like living inside the bubble of Lewy Body.
In this episode I talk about getting up not giving up. And the power of trying to keep a positive outlook.
In this episode I discuss a hidden enemy! Emotional fatigue and increased mental fog that happens when we need to rest and reset.
The title says it all, this is not a path we would choose but together we venture down this path!
In this episode I continue to discuss my journey to accepting my diagnosis!
After several requests to share how I arrived at acceptance I am covering the stages of the grieving process, This is how I have been able to navigate to accepting my diagnosis and move to fight this disease. In this episode I start with denial and will continue next week with anger, bargaining, depression and acceptance.
In this episode I discuss where my journey Living with Lewy has taken me. I talk about realizing and accepting the changes that are happening!
In this episode I talk to Debra Kostiw about communication and how it affects behavior. This is interesting as you hear both sides the caregivers and the person Living with Lewy.
In this episode Debra and I offer some helpful tips on how to help a loved one with dementia to navigate the holidays. This advice applies to any large gathering of family and friends.
In this episode we have as our guest the author of a number 1 best seller "Forget Me Not" Debra Kostiw. Debra also runs the a you tube channel see link below! www.youtube.com/@answersaboutalzheimers
Debra's experience covers all types of dementia and we will collaborate on a number of topics. STAY TUNED!!!
In this episode I am having to come to grips with another swing at my independence! Examining giving up driving for the safety of others and myself.
I look at social media groups and some of the advice given can be supportive and other advice can be downright dangerous!
In this episode I share some of the coping strategies that make my living with lewy a little easier.
In this episode I share with you what showtime means to me and the stress of overstimulation. The holidays are upon us and large gatherings of friends and family can cause overstimulation. How I plan to cope!!!
In this episode Jacquelyn goes into how important it is to be your own advocate, rely on your own research. Life after her diagnosis, the importance of a positive attitude, and why sharing her story was a powerful experience.
In this episode Jacquelyn continues her story which started on the October 3rd episode. Jacquelin tells of her experience with Posterior Cortical Atrophy combined with Lewy Body.
In this episode I talk about how it feels looking at the way the world looks at us and others with disabilities!
In this episode I discuss why its important to do your own research. There is plenty of misinformation on the web and social media protect yourself. Be a part of your own self help health care!
In this episode Jacquelyn shares what Posterior Cortical Atrophy is and how it affects her Lewy Body.
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