Living With Pilonidal Cyst Disease

In this episode, I walk through my entire surgery day from start to finish — the day I had my cleft lift procedure after years of dealing with pilonidal disease.

From waking up in a hotel in a city I had never been to, to meeting my surgeon for the first time, to being wheeled into the operating room… this episode covers every detail. I talk about the fear leading up to surgery, the vulnerable moments you don’t always hear about, wh...

In this episode, I talk about the moment everything shifted — when managing it wasn’t enough anymore and I had to decide whether I was willing to change my body to get my life back.

From booking the surgery to counting down the days, this was the season of dread. The fear of the unknown. The panic of Googling images I couldn’t unsee. The internal battle of “What if this works?” and “What if it doesn’t?”

I share what it felt like to c...

In this episode, I’m talking about “the in-between” — the space where there’s no active cyst, no visible infection, and no reason for anyone to worry… but you’re still not okay.

Physically, everything looks normal again. You’re back at school. Back at work. Back to your social life. You can sit, stand, walk, and exercise. On the outside, it seems like you’ve moved on.

But mentally? You’re living on edge.

This episode dives into the co...

In this episode, I talk about flare-ups — what they actually feel like, how they start, and why they’re so much more than “just pain.” I share my personal experiences with flare-ups, from the physical symptoms to the mental spiral that comes with waiting, uncertainty, and fear. This episode dives into the reality of living through repeated flare-ups, emergency room visits, lancing and drainage, and the emotional toll of never knowi...

Welcome back to Living With Pilonidal Cyst Disease! In this episode, I dive deeper into understanding pilonidal cysts — from my own perspective, not as a medical professional, but as someone who’s lived through it.

I share what it felt like to experience symptoms, how I first noticed something was wrong, and the impact it had on my daily life — physically, mentally, and emotionally. I also talk about the journey from the very first ...

As someone who lived/lives with pilonidal cyst disease and how lonely I felt through my journey, I felt the need to share my story. I always longed for that success story especially as a teenager going through this horrible disease. I finally decided it was time to share my own story, my feelings and my success.

Making this was not easy as this brings up some terrible trauma and it makes me very vulnerable sharing my story but I kn...