Long COVID Real Talk Podcast
* Discusses how Long COVID affects the daily lives of the millions of people worldwide. * For patients (and their friends/family) with: * Long COVID/Post Acute Sequelae of COVID-19 (PASC) * Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) * Postural Orthostatic Tachycardia Syndrome (POTS) & Dysautonomia * Post-Exertional Malaise (PEM) Listen to episodes here --> www.longcovidrealtalk.com Email: longcovidrealtalk@gmail.com
Episodes
S5E23: KPop, Sinus Rinses & Debt Letters
Keywords: long COVID, health management, sinus rinses, financial challenges, coping strategies, community support, K-pop, mental health
Summary: In this episode, Katherine Marie shares her personal experiences with long COVID, discussing daily struggles, health management techniques like sinus rinses and Flonase, and the stress of dealing with debt letters. She emphasizes the importance o...
BONUS EPISODE #10: My ME/CFS Clinic Appointment
Keywords: Long COVID, ME-CFS, medication, low dose naltrexone, GLP-1 agonist, health management, patient experience, community support
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses her recent appointment at the Stanford ME-CFS clinic, focusing on medication management, personal experiences with long COVID, and the importance of community support. She sh...
Keywords: Long COVID, health challenges, personal reflections, financial struggles, workers' compensation, family focus, mental health, cold water therapy, symptoms, recovery
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey with long COVID, discussing her health challenges, including urinary symptoms and the impact on her daily life. She reflects on her struggles with workers' com...
S5E21 What Stress Does To Your Recovery
Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟
Listen to our podcast here: www.longcovidrealtalk.com
https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS
If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)
Email: longcovidrealtalk@gmail.com
Goo...
S5E20: A Surprise -- And Not The Good Kind
Keywords: Long COVID, workers' compensation, health challenges, disability retirement, mental health, personal stories, resilience, navigating bureaucracy, support systems, coping strategies
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey navigating the complexities of the workers' compensation system while dealing with long COVID. She di...
S5E19 When Getting Better Feels Worse
Keywords: Long COVID, recovery, mental health, family dynamics, acceptance, uncertainty, personal growth, therapy, chronic illness, self-care
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey of navigating the complexities of recovery from long COVID. She discusses the emotional challenges of wanting to return to normal life while managing the realities...
BONUS EPISODE #9: My Urology Appointment
Keywords: hematuria, urinary symptoms, cancer screening, long COVID, urology, health awareness, bladder health, colonoscopy, health journey, patient experience
Summary:In this episode of Long COVID Real Talk, Katherine Marie shares her recent experiences with urinary symptoms, including hematuria and urgency. She discusses her urology appointment, the importance of cancer screenings, and how t...
S5E18: "Hype or Hope: GLP-1 Agonists & Long COVID?"
Keywords: GLP-1, Long Covid, ZepBound, Monjaro, Ozempic, weight loss, brain fog, inflammation, immune regulation, healthcare
Summary: In this episode of Long Covid Real Talk, Katherine Marie discusses her experience with GLP-1 agonists, particularly ZepBound, and their potential benefits for individuals suffering from long COVID. She shares her personal journey, the sc...
S5E17: "Medical Gaslighting & Long COVID"
Keywords: medical gaslighting, gaslighting, Long COVID, chronic illness, BIPOC, LGBTQIA, mental health
Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟
Listen to our podcast here: www.longcovidrealtalk.com
https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS
If you would like to tell your story on the podcast or have...
S5E16: "Lonely, Isolated, Invisible -- Coping with Loneliness in Long COVID & Chronic Illness"
Keywords: loneliness, isolation, invisible, lonely, Long COVID, chronic illness
Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟
Listen to our podcast here: www.longcovidrealtalk.com
https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS
If you would like to tell you...
S5E15: "Which Came First? Depression in Chronic Illness vs. Depression Causing Chronic Illness"
Keywords: long COVID, depression, chronic illness, mental health, medical care, trauma-informed therapy, patient advocacy, integrated care, emotional suffering, physical symptoms
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the intricate relationship between chronic illness and depression. She explo...
S5E14: "Parenting wth Long COVID"
Keywords: Long COVID, parenting, chronic illness, emotional presence, support, guilt, flexible scheduling, mental health, caregiver, family dynamics
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the unique challenges of parenting while living with Long COVID. She shares her personal experiences and insights on navigating the emotional and physical toll of chronic illness...
S5E1: "But You look So Well" (+Weight Mgmt & SGB)
Keywords: Long COVID, health management, weight loss, community support, treatment options, personal experiences, wedding reflections, coping strategies, mental health, wellness
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her experiences attending a wedding while managing long COVID symptoms. She discusses the challenges of social events, the importanc...
S5E13: "Active Rest vs True Rest"
Summary: In this episode of Long Covid Real Talk, Katherine Marie shares the difference between true rest and active rest. True rest can prevent PEM while active rest can cause PEM.
Recommendation from a fellow Long Hauler: USE A WEIGHTED BLANKET to get deeper rest/sleep!
Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟
Listen ...
S5E12: "When Rest is Medicine - Avoiding the Crash Before It Starts"
Keywords: Long COVID, rest, post-exertional malaise, pacing tips, health, healing, energy management, neuroscience, immune system, mental health
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the critical importance of rest for individuals living with long COVID. She explains the difference between active rest and true rest...
S5E11: "Strategies for Managing Social Gatherings "
Keywords: Long COVID, social gatherings, wedding experience, coping strategies, acceptance, hearing difficulties, energy management, social anxiety, personal reflections, health challenges
Summary: In this episode of Long Covid Real Talk, Katherine Marie shares her experiences attending a family wedding while managing the challenges of Long COVID. She discusses the str...
S5E10: Recommendation Fatigue
Keywords: Long COVID, recommendation fatigue, medical advice, personal experiences, hope, health challenges, ME-CFS, lifestyle changes, patient experiences, chronic illness
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the concept of recommendation fatigue, a feeling many long COVID patients experience due to the overwhelming amount of advice and recommendations they receive...
Bonus Episode #8: My Exercise Physiology Appointment
Keywords: Long COVID, exercise physiology, nutrition, Zepbound, recovery, strength training, cardio, health tips, wellness, fatigue
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares insights from her recent exercise physiology appointment, discussing the importance of gradual progression in exercise, nutrition tips for recovery, and her personal experience wi...
S5E9: The Impact of Long COVID on Daily Life (w/ Valarie) -- Part 2
- Keywords: chronic illness, heart health, Ehlers-Danlos syndrome, workplace injury, legal battles, self-advocacy, community support, coping mechanisms, fatigue management, resilience
- Summary: In this conversation, Valarie shares her harrowing journey through a series of health crises, including a heart condition and chronic illnesses like Ehlers-Danlos syndrome. S...
S5E8: The Impact of Long COVID on Daily Life (w/ Valarie) -- Part 1
Keywords: Long COVID, health challenges, personal story, resilience, community support, fatigue, sensory overstimulation, mental health, recovery journey, chronic illness
Summary: In this conversation, Valarie shares her profound journey with long COVID, detailing her life before the illness, the acute infection, and the ongoing challenges she faces. She reflects on ...
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