Long COVID Real Talk Podcast
* Discusses how Long COVID affects the daily lives of the millions of people worldwide. * For patients (and their friends/family) with: * Long COVID/Post Acute Sequelae of COVID-19 (PASC) * Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) * Postural Orthostatic Tachycardia Syndrome (POTS) & Dysautonomia * Post-Exertional Malaise (PEM) Listen to episodes here --> www.longcovidrealtalk.com Email: longcovidrealtalk@gmail.com
Episodes
S5E14: "Parenting wth Long COVID"
Keywords: Long COVID, parenting, chronic illness, emotional presence, support, guilt, flexible scheduling, mental health, caregiver, family dynamics
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the unique challenges of parenting while living with Long COVID. She shares her personal experiences and insights on navigating the emotional and physical toll of chronic illness...
S5E1: "But You look So Well" (+Weight Mgmt & SGB)
Keywords: Long COVID, health management, weight loss, community support, treatment options, personal experiences, wedding reflections, coping strategies, mental health, wellness
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her experiences attending a wedding while managing long COVID symptoms. She discusses the challenges of social events, the importanc...
S5E13: "Active Rest vs True Rest"
Summary: In this episode of Long Covid Real Talk, Katherine Marie shares the difference between true rest and active rest. True rest can prevent PEM while active rest can cause PEM.
Recommendation from a fellow Long Hauler: USE A WEIGHTED BLANKET to get deeper rest/sleep!
Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟
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S5E12: "When Rest is Medicine - Avoiding the Crash Before It Starts"
Keywords: Long COVID, rest, post-exertional malaise, pacing tips, health, healing, energy management, neuroscience, immune system, mental health
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the critical importance of rest for individuals living with long COVID. She explains the difference between active rest and true rest...
S5E11: "Strategies for Managing Social Gatherings "
Keywords: Long COVID, social gatherings, wedding experience, coping strategies, acceptance, hearing difficulties, energy management, social anxiety, personal reflections, health challenges
Summary: In this episode of Long Covid Real Talk, Katherine Marie shares her experiences attending a family wedding while managing the challenges of Long COVID. She discusses the str...
S5E10: Recommendation Fatigue
Keywords: Long COVID, recommendation fatigue, medical advice, personal experiences, hope, health challenges, ME-CFS, lifestyle changes, patient experiences, chronic illness
Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the concept of recommendation fatigue, a feeling many long COVID patients experience due to the overwhelming amount of advice and recommendations they receive...
Bonus Episode #8: My Exercise Physiology Appointment
Keywords: Long COVID, exercise physiology, nutrition, Zepbound, recovery, strength training, cardio, health tips, wellness, fatigue
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares insights from her recent exercise physiology appointment, discussing the importance of gradual progression in exercise, nutrition tips for recovery, and her personal experience wi...
S5E9: The Impact of Long COVID on Daily Life (w/ Valarie) -- Part 2
- Keywords: chronic illness, heart health, Ehlers-Danlos syndrome, workplace injury, legal battles, self-advocacy, community support, coping mechanisms, fatigue management, resilience
- Summary: In this conversation, Valarie shares her harrowing journey through a series of health crises, including a heart condition and chronic illnesses like Ehlers-Danlos syndrome. S...
S5E8: The Impact of Long COVID on Daily Life (w/ Valarie) -- Part 1
Keywords: Long COVID, health challenges, personal story, resilience, community support, fatigue, sensory overstimulation, mental health, recovery journey, chronic illness
Summary: In this conversation, Valarie shares her profound journey with long COVID, detailing her life before the illness, the acute infection, and the ongoing challenges she faces. She reflects on ...
S5E7: "Do You Have Urinary Symptoms Related To Long COVID?"
Keywords: Long COVID, urinary symptoms, kidney stones, health updates, chronic fatigue, bladder issues, patient experience, healthcare, symptom management, urology
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal experiences with new urinary symptoms related to long COVID, including peeing blood and urinary urgency. She discusse...
S5E6: "The Battle Of The Bulge: Weight Management with Long COVID"
Keywords: Long Covid, weight management, obesity, health, medication, lifestyle changes, weight loss, personal experience, health challenges, mental health
Summary: In this episode of the Long Covid Real Talk podcast, Katherine Marie discusses her personal journey with weight management amidst the challenges of Long Covid. She shares her struggles with weight gain, th...
S5E5: "Getting The 'Proper Diagnosis'" (w/ Lesley)
Keywords: Long COVID, health struggles, personal story, disability, mental health, coping strategies, diagnosis, support, advocacy, chronic illness
Summary: In this episode of Long Covid Real Talk, Katherine Marie speaks with Lesley, who shares her personal journey with Long COVID. Lesley discusses her active life before the illness, the onset of COVID-19, and the c...
S5E4: "Cinderella Moments -- The Illusion of Wellness"
Keywords: Long Covid, post-exertional malaise (PEM), social engagement, mental health, chronic illness, relationships, support, recovery, Cinderella moments, health challenges
Summary: In this episode of Long Covid Real Talk, Katherine Marie discusses the challenges faced by individuals with long Covid, particularly after social engagements. She uses the metaphor of Cin...
S5E3: "When It's A Struggle Just To Exist"
Keywords: Long COVID, fatigue, emotional health, mental health, hope, resilience, chronic illness, motherhood, coping strategies, personal experiences
Summary: In this episode, Katherine Marie shares her personal struggles with long COVID, focusing on the emotional and cognitive challenges she faces daily. She discusses feelings of hopelessness, fatigue, and the burden of i...
S5E2: **BIPOC Series** "Don't Lose Hope, People!" (w Kiki)
How you can reach Kiki:
Threads: @alchemythroughsisterhood
YouTube: https://youtu.be/KMtTrnC5m90
Keywords: Long COVID, personal story, health journey, coping strategies, mental health, recovery, lifestyle changes, healthcare, symptoms, advocacy
Summary: In this episode of the Long COVID Real Talk podcast, Kiki shares her personal journey with long COVID, de...
S4E25: **BIPOC Series** "Unprecedented Doesn't Mean Impossible" (w/ Cynthia Adinig)
How you can reach Cynthia:
Email: cynthiaadinig@gmail.com
IG: @cynthiaadinig
Website: https://www.bipocequityagency.com/
Book: DEI Delusion: https://a.co/d/97VULjY
Keywords: Long COVID, advocacy, healthcare, legislation, domestic violence, patient engagement, AI in healthcare, community support, systemic barriers, research innovations, patient-ce...
S4E24: "Chillin' Like A Villain"
Keywords: cold showers, long Covid, mental clarity, health updates, therapy, medication, wellness, personal experiences, brain fog, neurotransmitters
Summary: In this episode of Long Covid Real Talk, Katherine Marie shares her journey with cold showers as a therapeutic practice for managing long Covid symptoms. She discusses her experiences, the importance of consulting with a doctor, and the potentia...
S4E23: "Cold Water Therapy: A Path to Recovery from Long COVID" (w/ Nigel)
How you can reach Nigel: nigel@couchtorecovery.com
Recommended Books:
1) Chill: The Cold Water Swim Cure - by Dr. Mark Harper
2) Winter Swimming: The Nordic Way Towards a Healthier and Happier Life - by Dr. Susanna Soberg
Keywords: Long COVID, cold water therapy, mitochondrial function, recovery, health, wellness, Nigel's journey, chronic fatigue, m...
Keywords: Long COVID, mental health, disability claims, workers' compensation, emotional struggles, personal experiences, coping strategies, healthcare challenges, support systems, recovery journey
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey with long COVID, detailing the emotional and physical challenges she faces, particularly regarding her recent flare-up and the difficulties ...
Keywords: Long COVID, hiking, health, wellness, POTS, dysautonomia, nature therapy, mental health, recovery, personal experience
Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey of adapting to hiking with Long COVID. She discusses the emotional and physical challenges of returning to nature, the joy of experiencing the outdoors again, and the importance of finding ways to engage in activi...
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