Parenting disabled children is an experience I wasn’t fully prepared for. There are so many joys, but also a lot of unexpected challenges that can sometimes leave you feeling overwhelmed, inadequate, bewildered, and even isolated. One of the most helpful things I've found is connecting with other parents who’ve been through similar experiences.
My guest today, Kelley Coleman, is fun, smart and gets it. She's a mom of a disabled child and the author of the essential guidebook, 'Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports.' In this episode, Kelley shares her story, practical tips for navigating complex systems, and talks about the importance of community and self-advocacy.
In this episode, we discuss:
- [00:00] - Introduction and Welcome
- [02:25] - Kelley's Story + Her Family’s Experience with Disability
- [07:20] - Inspiration Behind the Book: A Practical and Relatable Guide
- [15:16] - Learning from Disabled Advocates + Parents
- [17:45] - Getting Comfortable with Disabilities
- [23:43] - Building a Community: Voices from Experts, Parents, and Advocates
- [26:39] - Preparing Parents
- [31:54] - A Message for Families with New Diagnoses
- [41:06] - Redefining Normal: Celebrating Our Disabled Kids
- [47:55] - Self-Care for Caregivers: Finding Balance
- [56:45] - Teaching Self-Advocacy: Empowering Your Children
- [01:06:15] - Check out the Book “Everything No One Tells You About Parenting a Disabled Child”
Whether your child has just been diagnosed or you're looking to connect with others who can understand, this conversation is full of insights and encouragement you don't want to miss.
Links:
- Full show notes and resources: maybethiswillbethecure.com/blog/kelley-coleman
- Kelley's Book: Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports
- Kelley’s Website: www.kelleycoleman.com
- FREE "New Years" Planning Workbook: megangodardcardon.myflodesk.com/newyearsplanning
- Connect on Instagram: @maybethiswillbethecure
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Disclaimer: The information shared in this podcast is for informational purposes only and is not a substitute for professional medical advice. Consult your physician before making any changes to your health plan. The host, Megan, is not a healthcare provider. Always seek guidance from a qualified health professional for your individual needs.
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