Episode Transcript
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Speaker 1 (00:00):
Good afternoon
everyone.
So I am going to go aheadbecause you're probably like
Sandra we need to see both ofyou, so I'm going to go ahead
and pull up both of us.
What I am going to do is takethe time today to thank our very
lovely guests, ms PatriciaPearson we all officially call
her Coach Pat, because she hascoached every one of us that
(00:22):
know her in some way in apositive aspect and so, without
further ado because we'veactually already been delayed
I'm going to go ahead and getthe conversation started today.
Once again, thank you so muchfor joining the Patient
Experience Podcast.
Speaking with Sandra L, myfirst question to you and
(00:44):
actually Coach Pat, before I aska question, I'm going to let
you introduce yourself, becauseyou know better than anybody
else what it is that you do.
Speaker 2 (00:55):
Hello everybody,
welcome, welcome family.
I am, as Ms Sandra has stated,Coach Pat Pearson,
affectionately known, and I am abusiness success coach as well
as a publishing coach, and inaddition to that, I am a since
(01:16):
19,.
Since 2020, I am a cancerwarrior For four years and 10
months.
Speaker 1 (01:22):
A cancer warrior for
four years and ten months a
cancer warrior, and I'll tellyou a little bit more about that
later on as we get intoSandra's questions but, go ahead
what I'm going to ask you to dois sit back, because you're
actually facing forward, so theycan't see your beautiful face,
(01:42):
and they don't want everybody tosee your beautiful face you're.
They don't want everybody tosee your beautiful face.
You're good, just like that.
Okay, but you was going tofinish telling us about yourself
, so please continue.
Speaker 2 (01:56):
Oh, as I said, I'm a
business success coach and a
publishing coach.
So, in addition to thoseresponsibilities, I still do
those responsibilities.
Even though I'm going throughthis situation, I've never
stopped my business.
I am also a full-time employeein addition to having my own
(02:17):
business.
Speaker 1 (02:19):
So you know what?
What makes that so awesomeabout it is that and we'll get
into the conversation but whatmakes that so awesome about it
is that many of us that ourpatients, myself included what
we find helps us through ourpatient experience is the fact
that we keep going.
You know, we get a diagnosisand we don't flip that diagnosis
(02:42):
over and say, okay, well,that's it for me, there's
nothing else in life that I haveto do.
And so we don't do thatdiagnosis over and say, okay,
well, that's it for me, there'snothing else in life that I have
to do.
And so we don't do it.
And we sit mindlessly waitingfor things to happen.
And a lot of times those thingsdon't happen.
And they don't happen because,as I say every week, I love my
medical professionals, but Irealized that they're not God
(03:04):
and they can't tell me when myday is coming.
I know it's coming, but theycan't tell me when my day is
coming.
So if you give me a diagnosis,I'm going to do all I can to
fight through that diagnosis andto deal with that diagnosis in
its proper place.
And Coach Pat is one of thosepatients that you know.
She was given a diagnosis andshe said, uh-uh, nope, you
(03:27):
showed up at the wrong body andyou'll hear it in today's
conversation just what type ofperson and just what type of
patient Coach Pat is.
So, if you're in the clinicalfield, if you're, you know, a
trial researcher, if you haveanything to do with clinical
research, this shout and thisdiscussion goes out to you
(03:52):
because we know and Coach Pathas a personal and a lived
experience with it we know that,yes, clinical trials are scary
if the patient doesn't know whatthey should know to avoid them
being scary.
But we also know, at the end ofthe day, a lot of times, being
a clinical patient.
(04:13):
So, coach Pat, I'm going to goahead and ask you my first
question what motivated you toparticipate in a clinical trial
and how did that purpose evolvethroughout your journey?
Speaker 2 (04:26):
in a clinical trial,
and how did that purpose evolve
throughout your journey?
I think the first of all Ididn't know much about clinical
trials when it was presented tome.
I think number one, whatmotivated me was my doctor,
because I have a great medicalteam and throughout my illness
they've always been veryinformative, always kept me
(04:50):
abreast of what's going on.
So when he suggested theclinical trial, I really felt
that I had to look into it.
But not only that.
Before suggesting the clinicaltrial, we had went through a lot
of the standard medicalmedicines that were available
(05:16):
for the type of disease I have.
No, I take that back.
I don't have it.
I was diagnosed with stage fourlung cancer and we had went
through many of the treatments.
So a lot of times, whathappened with the treatments?
The treatments may or may notwork.
Some of the treatments that Iwent through worked.
(05:40):
However, it affected some of myother organs.
So instead of staying on thattreatment, then we switch off to
something different, and that'swhere the clinical trial came
about, and he suggested theclinical trial for me at that
time.
Speaker 1 (05:59):
And so I'm glad he,
he, I'm glad to know that there
was a provider out there andthat there are providers out
there that truly want the bestfor their patients.
So when something comes theirway, they're like a lot of times
bring it up and discuss it.
And I'm certainly glad andthankful to your doctor that he
mentioned clinical trials.
(06:19):
I do remember I want to saymaybe about two years ago, was
it?
I do remember, I want to saymaybe about two years ago, was
it?
We did Chomp's Many HelpsFoundation did a.
We did a discussion, videodiscussion on clinical trials
and you were listening and youknow your doctor had told you
but you were able to get so muchmore information from actually
(06:40):
listening to that clinical trial.
And he was like you know what,sandra, I heard about clinical
trials, but it wasn't until Iactually listened to your
discussion.
And that's what we want you todo Listen to your discussion so
that you know you do haveoptions and you know this is how
(07:03):
this works and the truth waslaid out.
And to me, I want to take thetime to say thank you so much to
Genesis Medical Research foractually taking part in that
video session where you actuallyspoke to.
Not only did you speak to CoachPat, but you actually spoke to
me and you actually spoke to ourpatients who were listening
that day and gave them hope bylaying out exactly what a
clinical trial is, how it works,what the steps are.
(07:27):
Because a lot of times we'retold about clinical trials and
like no, no, no, and especiallyif we are being told this
information from someone that wedon't trust, we just shy away
from it because, yeah, no, y'allfooled us before.
But if you have someone thatactually went through it and
actually is teaching it andshowing it and it's from our
(07:49):
community, a lot of times theylisten.
Our patients listen much moreso.
So a big thank you to Gayna andBarry, who took the time to
actually come on our video andactually explain what a clinical
trial is.
So I thank you so much andbecause of them and because of
(08:09):
their discussion and encouragecoaches, now she's like okay,
and I got two experts and plus Igot my doctor on my side, so
what's in it for me?
Like, why wouldn't I try this?
I love my family and I want tocontinue to be here for them, so
why wouldn't I try this?
So I thank you so much for that.
(08:30):
Now, there were moments duringyour trial that you felt like
turning points.
You were like you know what I'mgoing to ask you were there
moments where you felt liketurning points, where you was
like uh, you know, I think I'mgoing to stop.
No, this is too much.
And how did you get past those?
Speaker 2 (08:47):
points.
Well, actually I'm on my secondclinical trial.
Um, my first clinical trialseemed to be working.
However, it was causing otherissues which at that time, yeah,
I was having second thoughtsbecause it was affecting my eyes
(09:10):
and my vision was going, andthat was very, very scary there
for a moment, in addition tosome other areas.
So I had to stop that clinicaltrial.
And that's one of the things toknow that when you start a
clinical trial, you don't haveto continue it.
I mean, if it affects you inany way negatively, then you can
(09:32):
stop at any time.
Once you start, you don't haveto attend you.
Now my second clinical trialthat I'm on now actually, I
think I've been on it for, likeI would say, maybe four months
and initially, when I startedthat clinical trial, I was a
(09:53):
little discouraged because I wasin and out of the doctor's
office at least twice a week andI had to drive an hour to get
there.
So that was a littlediscouraging.
But as time went on, the amountof time that I had to go into
the doctor's office decreased,so it was better.
(10:14):
Thank God, so far the trial isworking.
So far the trial is working.
It has so far kept me stable sothat the disease is not
spreading and I'm doing well onthe trial.
But, yes, there were times whenthat first trial that I was
like, okay, no, this is not forme not for me.
Speaker 1 (10:45):
And you know what it
is funny.
I know you because you'reactually one of Chum's
MediHelp's board members, so Iknow you.
So I was actually able to watchyou go through that process and
the day that I called you and Icouldn't hear you cough in, I
was like yes, it's working Right.
I was like, thank you, jesus,it's working Right.
I'm like, because I know whatyou went through.
(11:06):
You know I know what you wentthrough with the first trial.
You was like, okay, I'm goingto try this, but then I actually
have to step back away from itbecause you started feeling
those different side effects.
But knowing that, okay, well,we're not going to kick you out
of the program.
You know, if you want to comeback and we can find something
else and you want to come back,then we're going to ask you to
(11:29):
come back, you know.
So you weren't kicked out.
You weren't put to the side.
Nothing happened.
You were treated the same byyour medical doctors.
They still treated you with thecare and compassion that they
treated you with.
And you knew in the back ofyour mind okay, well, maybe
something else comes on, maybe Iwill try it.
Now.
It's not for everybody, but Itell people all the time when
I'm doing the work that I dothrough the foundation.
(11:51):
You say you love your husband.
You say you love your children.
You say you love your in-law,whoever it is.
You say I love you.
But then, when it comes to itis, you say I love you, but then
, when it comes to your health,you don't want to do these
things that possibly can't helpyou.
Knowing that, okay, well, if Idon't like this, I can step out
(12:12):
of it.
I don't have to do it, I get it.
I do really get it.
Henrietta Lacks we lost her dueto a clinical trial issue, and
there's so many others thatwe've lost because of clinical
trial failures or because weweren't even told that this is
what they was doing.
They just did it.
(12:32):
But on the other side of thatfence, for those that actually
do participate in clinicaltrials or like are interested in
saying you know what, maybe Imight try this right, knowing
and having all the informationthat maybe I might try this, I
thank them.
And I thank you because youknow what, when my grandkids or
my nieces and nephews are bornand they may have the same issue
(12:56):
the drugs that you are trying,the clinical trials that you're
going through it's giving themhope.
Right, we don't have hope inour community because a lot of
times we don't participate inthose things that we have.
You know that we do have accessto for fear or you know what?
Yeah, they did that before.
(13:17):
I'm not going back to thatwithout realizing that you're
helping so many more people whenyou do consider being a
clinical trial person.
You know, patient, you'rehelping so many of us and so
many of our you know our future.
Even that aren't even born yetwill actually benefit because
you took a stand and you waslike I'm going to try this and
(13:38):
see how it works Right.
So I thank you for that, andfor any clinical trial patient
that's listening and watching.
I say thank you so much because, because of you, those who have
not yet reached this side ofearth will have some medication
that they can take.
That's good for them.
It's not good, you know itcould be good for other cultures
(14:00):
, but we'll know it's good forthem because we had people in
our culture taking a part inthese clinical trials.
So thank you for that.
Speaker 2 (14:09):
My next question is
this Before you get to your next
question, one thing youmentioned about gathering
information.
That is so key because a lot oftimes, in fact recently, people
will come to me and I'll tellthem I'm on a clinical trial and
they'll go clinical trial.
What are you on?
A placebo?
How do you know?
(14:29):
And that is a misconception.
With regards to clinical trials,yes, there are trials where
they use a placebo, but they'renot for life-threatening
diseases.
Anytime that you go into aclinical trial, for instance, I
(14:51):
would say maybe something for aheadache, they may use a placebo
plus the actual trial drug forthat.
But for the disease that I have, the clinical trial that I was
on it was either going to be astandard of care that they would
normally give me anyway or theclinical trial, and that's where
(15:12):
I think people need to startresearching.
When a clinical trial isbrought to them, look into the
details, and all of the detailsare available.
When you go online or when youtalk to your doctors, they'll
let you know if it's a placeboor if it's a standard of care
that you're going to be gettingin addition to the clinical
(15:34):
trial, and I just think that'svery important because that's
one reason why a lot of peopledo not participate in clinical
trials because they thinkthey're going to get the placebo
.
Speaker 1 (15:46):
And I thank you so
much for sharing that
information.
And you're right.
I do put this disclaimer outhere I am not a physician.
I'm also not Dr Google or MrFirefox.
I'm also not Dr Google or MrFirefox.
So when we talk about let'slook this up, and she said we
can find this information outonline, and where can we look
(16:14):
this up or how can we look thisup?
The information is there.
It's readily available.
It's just that you need to knowwhat you consider, what is
considered a reliable source andwhat is considered somebody
just putting a blog out thereand saying I don't like that
because of this, that and thisturns into a complaint.
Right, because complaints hurtour community, because we a lot
(16:34):
of times don't know thedifference between well, is this
factual or is this a complaint?
And so a lot of times we go tothe internet.
We have to make sure that we'relooking at reliable sources and
gathering that information froma reliable source.
One of the best reliablesources there is is your
(16:56):
physician.
Start having thosecommunication talks with your
physician.
Ask your physician.
If the physician says, well, I'mbusy and I don't have time,
then go to a reliable sourcesuch as Genesis Medical Research
Group.
Go to them.
(17:17):
Yes, I'm throwing them outthere.
Go to them, and there areplenty of others that they will
be more than happy to tell youyeah, this is this and this is
that, but stop listening tofoolishness when you don't
understand.
What's really at stake isbasically what Coach Pat is
saying.
It's like don't turn your noseup and don't ask if you don't
(17:42):
know.
If you don't know, just don'tsay anything.
Speaker 2 (17:45):
Right.
Speaker 1 (17:45):
Right, but if you're
interested, ask and see how it
all works so that you can findout, and there are reliable
sources that you can find out.
The other way for you to findout well, sandra, who is a
reliable source?
In 2026, tom Smetty HealthFoundation will be releasing aid
on a digital healthcareplatform.
(18:08):
There will be 14 courses withinthis digital healthcare
platform that you will be ableto take by either you
subscribing on your own orseeing if maybe your doctor,
your hospital, whoever you'reseeking for medical treatment,
will take out subscription sothat patients can become more
(18:29):
aware of what's going on.
So, enough of toot my own horn,enough of that, and let's get
back to you.
Who is the subject?
Is the guest, our lovely guestfor the day Now.
When you started looking intoclinical trials, was there any
(18:50):
perspective on healthcare thatyou had that changed Like, okay,
they really don't care andthere's no medicine out here for
me to.
Okay, well, maybe there is somehope for me.
Did any of that change how youlooked at healthcare?
Speaker 2 (19:05):
I can't say it really
changed, because I didn't
really have.
I didn't really have a visionwith health care because I've
been healthy all my life, so Ididn't really have any
experiences to guide me eitherway.
(19:27):
I had never really beenhospitalized, or the most I've
had is a cough or bronchitis, soI didn't really have any gauge
to go by.
As I started going through itand as I'm going through it
today you mentioned it and Ialso mentioned it your medical
(19:49):
team is definitely veryimportant.
That you trust and you havefaith in your medical team, and
not only that to have someonelike yourself as a health
advocate that I can go to andask questions, that makes a big
difference.
Because I mean, even though youhave like you may have a doctor
(20:14):
, like I have, I actually havetwo doctors.
I have one doctor that I knowis going to give me detail for
detail, every T crossed, every Idotted.
Then I have another doctor.
I'm lucky if I have a good10-minute conversation with them
.
Speaker 1 (20:40):
So having someone
like yourself and a good medical
team makes a big difference inyour care.
Thank you for what you justsaid.
I want to bring up a point topeople With Coach Pat.
The patient experience is goodfor her because she has two
doctors.
She has one that she can go toand she could talk to and have a
(21:00):
conversation with and he'llexplain everything to her.
Then she has another doctor.
Well, if I spend 10 minuteswith him, I'm doing good.
Well, to have a patientexperience that you want to have
and that we want you to have.
When you have those doctorsthat are only around for 10
minutes, you need to startlooking for another doctor.
(21:23):
Now, if you have another doctoralready and they're good, then
that's somebody that you canturn to.
Because I was like that goingthrough COVID, my primary doctor
.
I could never reach her.
She wasn't around.
She called the medications in,didn't tell me she was calling
them in.
I would get a call.
You need to come pick thismedication up.
What's the medication for?
(21:43):
I was never told.
But I had a second doctor whichis my endocrinologist, who's my
diabetes educator and mydiabetes doctor who stepped in
and said okay, well, this iswhat's going on and explained
stuff to me at during a timeperiod just like what coach Pat
is saying where we're alreadystressed, we're already going
(22:04):
through things, we're alreadyconcerned, worried, we don't
know what's going to happen fromday one to day two.
So if you have two doctors andyou can count on one, then
you're okay.
You're okay.
You're not great.
You're okay Because if thatother doctor becomes way too
busy, you might feel likethey're pushing you off or
they're gaslighting you, butit's just that they're like okay
(22:25):
, well, that's, the other doctorshould be doing it Right.
And so a lot of times, and nowthat they're tied to contracts,
they don't have that voice wherethey can say okay, well, I
could spend 40 extra 45 minuteswith you because they're tied to
a contract, so they can nolonger do it.
But if you so, if you have thatone, look for some.
(22:46):
Please go somewhere else whereyou feel like you're going to be
trusted and heard and, inaddition, make sure that the two
of them doctors actually workwell together.
So it's not okay.
Well, I'm going to listen toanything they said.
I don't know why they told youthat you don't need any of that.
You're the patient.
You're supposed to be gettingbetter.
So have a doctor, at least onethat understands and listens to
(23:11):
your concerns.
So thank you so much forbringing that up, coach Pat.
My next question is this whatsupport systems like, what
people were in your life thathelped you through this process?
Speaker 2 (23:27):
Not that I'm trying
to get paid or anything, but I
have a healthcare advocate.
Her name is Sandra Washingtonand he helps.
Llc is one of my, one of myteam members.
(23:48):
I also have my church family,who is very supportive, as well
as my husband, my husband he'sjust been, you know, I have no
words.
He's been there from beginningto end and he supports me in
everything, whether it's good,bad or indifferent.
(24:09):
He's there and he's verysupportive.
But, as we've also said, mymedical staff, my medical team I
have a very good medical teamand with those, you know, with
many helps my church family, myhusband and my medical staff I'm
I'm I'm feeling very loved andvery cared for.
Speaker 1 (24:33):
And do you think
that's a reason why you continue
to like I'm going to fightthrough this?
Like, did they help you todetermine I'm definitely going
to fight through this.
I have something to fight for.
Speaker 2 (24:45):
Absolutely,
absolutely.
Because, first of all, I knowGod has me here for a reason.
I have not went through stagefour lung cancer Four years and
10 months for no reason.
He has a mission for me.
That mission may be having thisconversation with you so that
(25:09):
one person hears thisconversation and moves forward
in what's a clinical trial, ormove forward in getting the
right healthcare advocate.
If that's my mission, that'swhat I'm here for.
God has not kept me here forfour years plus.
I'm expecting to be four yearsplus more for no reason.
(25:32):
So I'm here to do his will.
Whatever he has for me to do, Iintend to make sure that I do
the best that I can.
Speaker 1 (25:41):
Well, I thank you for
that.
Once again, I thank you forcontinuing to do what you need
to do to make sure that when yousay love is not words, other
words that you're just throwingout there, it's actually words
that you live by and you show anaction that you live on by
continuing to take care of yourhealth.
I do want to ask you if you canplease put out the name of your
(26:04):
church so that if someone islistening to this and they're
like, okay, well, that churchfamily was strong and this isn't
to bring in religion, but thereare patients out here who need
help, who need to go to a churchthat cares and that it's
already been shown that they canstand there with the patient
(26:26):
and help that patient through.
So if you can please tell methe name of your church, as well
as your church pastor and firstlady, that would be awesome.
Speaker 2 (26:35):
My church is Abundant
Life Family Worship Church in
New Brunswick, new Jersey.
Bishop George Seawright andPastor Mary Seawright.
We're at 259 George Street.
If you decide to just stop by,ask for Pat Pearson, and someone
(26:58):
there will probably know who Iam and I will greet you as well
as introduce you to the pastors.
They're there.
We're a family of love and welove sharing love.
Speaker 1 (27:11):
So I thank you so
much for that because, once
again, I do know, and we bothknow, that there are patients
that right now are lonely anddon't have anyone to talk to.
I'm going through difficulthealth care challenges and, no
matter where you go and nomatter what religion you are,
it's a spiritual thing.
You need to actually make surethat you're tied to some type of
(27:34):
spiritual, you know spiritualreligion.
To actually make sure thatyou're tied to some type of
spiritual, you know spiritualreligion.
Number of spiritual being iswhat you need to be making sure,
because that does, in fact,help when you're going through
trial periods.
My next question to you is ifyou could share one message with
others regarding clinicaltrials, regarding the you know
(27:55):
them, keeping the faith and themcontinuing to move forward.
What would that advice be?
Speaker 2 (28:03):
I would say a lot of
it, I've said already is hold on
to your faith.
You really need faith.
Hold on to your faith and trustGod that he has a plan for you.
Surround yourself withpositivity, with positive people
(28:28):
.
There is a lot of voices outthere, a lot of voices, and you
cannot listen to all of thosevoices.
It's very important that yousurround yourself with the right
people and faith and continueto stay positive.
You know there's always a lotof negative out there, but
(28:49):
continue to stay positive as youtake this journey.
There are some bumps in theroad, you know.
Resilience, I say, is like youhave to have resilience to get
through certain, any situation.
And to me, resilience is like atree in a winter storm.
(29:09):
When the wind is blowing, thattree sways back and forth.
It sways back and forth andthen when the sun comes up and
you look out the window and youlook at that same tree, it's
standing tall and it's standingstraight up.
Now it may have lost a fewleaves throughout the storm, but
(29:30):
its roots went deeper into theground and it became sturdier.
So stay resilient and keep thefaith.
Speaker 1 (29:42):
I thank you so much
for that.
And what I do want to say as weclose out, as I do every week
be kind always.
You never know when someone isgoing through something that's
challenging to them.
You never know what hashappened.
But be kind always, especiallyif it's someone that you know is
generally nice and forthcomingand warm and everything is
(30:07):
positive about them.
We all have bad days, we won'tknow about it, but if we're
being kind always, they'llactually feel it and even if
they might not say it, they'llactually feel it and even if
they might not say it, they'lltake it with them throughout the
course of that day, that week,that month, that year.
So be kind always.
It's free, there's no charge tobeing kind.
(30:29):
It costs not a cent to be kind.
And if you do not know what tosay, when you're faced with
someone or you're faced with asituation that you're not
understanding, please don't sayanything.
I mean, I'm hearing week afterweek after week where people are
saying you know what, but theyhave their noses turned up or
(30:50):
they're saying something thatthey really shouldn't be saying.
Please notice, it's better notto say anything at all.
Keep your comments to yourself,because when we're hurting.
We're hurting when we're goingthrough.
We're going through and yousaying something or rolling up
your eyes or turning up yournose or any of that.
That doesn't help us.
(31:11):
And so I'm here to say that allpatient experiences should be
ones that we have to be in it,but we need to make sure that
we're good at being in it andit's a positive experience.
Coach Pat, I thank you so muchfor taking the time today to
actually speak with us and sharethat information for the world
(31:33):
to hear.
You said it a few minutes agoand I say it all the time when
people ask me well, sandra, whydo you continue to do what
you're doing?
And I say this I'm not tryingto reach everybody.
I would love to reach everybody, I would love to.
It doesn't make sense for menot to, but I do understand that
(31:57):
what my message is and what I'mtrying to share with you is not
going to be accepted byeverybody, or, unfortunately,
it's not going to be accepteduntil it's too late.
So they're waiting.
They're waiting, they're notproactive.
And then, the minute somethinghappens, they're on my phone or
(32:19):
they send me a message sayingSandra, could you please help?
I don't mind helping, butplease try to be proactive.
And that's what I tell them.
And I ask everyone well, whycome you wasn't proactive about
this?
Why are you now waiting?
Because now it's in a rush toget you the help that you need?
No, let's be proactive aboutour health.
We said we love our family, welove our friends, we love
(32:39):
ourselves.
Let's be proactive by takingcare of ourselves.
With that being said, I amgoing to wish everyone a great
day, a great evening, whereveryou are.
Thank you so much once againfor tuning in to the Patient
Experience Podcast.
Speaking with Sandra L.
Everyone have the rest of abeautiful, beautiful day.
Speaker 2 (33:02):
Bye-bye.