MPN Voices Out Loud

MPN Voices Out Loud

MPN Voices Out Loud is a podcast series focused on educating and supporting the myeloproliferative neoplasm (MPN) community. Listen for interviews with people living with MPNs, discussions with Healthcare Professionals, and other interesting content for anyone who wants to learn more about MPNs. To learn more, visit MPN Voices Out Loud.

Episodes

May 11, 2020 24 mins

Hear from an MPN expert—plus a group of real MPN patients! Learn about polycythemia vera, myelofibrosis, and essential thrombocythemia—the rare, chronic blood cancers known as myeloproliferative neoplasms, or MPNs. 

Listen to Andrea Larson from Incyte Corporation talk with Incyte oncology clinical nurse educator Paul Larson about important topics for people living with MPNs, like tracking symptoms to watch for signs of disease progr...

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Listen to MPN expert Dr. Krisstina Gowin, Assistant professor of medicine in the division of Hematology/Oncology at the university of Arizona Cancer Center, and renowned comic book artist J.G. Jones discuss important topics for those living with an MPN, like the value of education and ways to work with your Healthcare Professional to be an advocate for your health. Dr. Gowin, J.G. Jones, and host, Gina, will also discuss the value ...

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For people living with a myeloproliferative neoplasm (MPN), such as polycythemia vera (PV), essential thrombocythemia (ET), or myelofibrosis (MF), it is not uncommon to sometimes feel alone on the MPN journey. That’s because MPNs are considered rare diseases. Connecting with an MPN peer to share information, insights, and experiences may help reinforce that you’re part of a greater community—and that you’re not alone on your journe...

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Listen to a Healthcare Professional, Incyte Oncology Clinical Nurse Educators, and patients discuss the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs) and why informed conversations are important for proper patient care. Learn that when patients tell their MPN healthcare team how their condition affects their lives, they help ensure they get the care and support they need. Hear about telehealth and how regul...

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Listen to patients impacted by myeloproliferative neoplasms (MPNs) discuss the importance of speaking up and spelling out how their MPNs affect them. Understand why saying they were “fine” was not enough for their MPN journeys. Tune in to discover patient stories, real life experiences, and useful tips to have informed conversations with your Healthcare Professional.

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Hear how caregivers can help patients affected by myeloproliferative neoplasms (MPNs) get the care they need by communicating the impact of MPN symptoms to Healthcare Professionals. Special guest actor, director, and health advocate LeVar Burton shares insights from Jeff and Summer as they work together to manage Summer’s myelofibrosis (MF). Caregivers Nancy, Tom, and John reveal tips for taking care of their loved ones—and themsel...

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