For Jenny, the effects of chronic illness have been part of her life since childhood - her grandfather died of complications with his liver and her mother was the first in their family to undergo a liver transplant. But it wasn't until Jenny was 15 that she was officially diagnosed with polycystic kidney and liver disease. The lack of education in the medical community and the lack of knowledge about the effects of invisible illness on families can be heartbreaking. But Jenny found community and support from other people also living with chronic illness and learned to take control of her own health journey. In this article, Jenny will share her story and how she navigated the ups and downs of living with invisible disease.
"I had grown up watching my mom struggle."
When I was 15 and airlifted for a snowboarding accident, I was diagnosed with the same disease. Despite the high risk of disease progression, I lived a normal life and even got married. After having kids, my blood pressure increased and wasn't properly managed for two years due to medical ignorance. I had to fight for what I thought was best for my health and eventually found a community of people who understood and could support me. Despite the struggles, I am grateful for the knowledge and experience I have gained from living with an invisible disease.
In this episode, you will learn the following:
1. What is polycystic kidney disease?
2. What are the risks of polycystic kidney disease?
3. How to manage chronic illness.
Resources:
www.healandnourishwellness.com
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