My Spoonie Sisters
Welcome to My Spoonie Sisters! If you're wondering what a "Spoonie" is, it’s a term lovingly embraced by those living with chronic illnesses, based on the Spoon Theory. It’s all about managing our limited energy (or “spoons”) while navigating life’s challenges. Each week, join us to hear from your "Spoonie Sisters" host, co-hosts, and our inspiring special guests as we share real-life stories, tips, and encouragement. Whether you're here to learn, connect, or feel less alone, you’ll find a supportive space filled with understanding, laughter, and strength. Let’s journey through chronic illness together! Tune in and join the sisterhood! All guests featured or mentioned in this podcast will be listed for your convenience. Don't forget to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for updates on new episodes and more. If you have a story to share or want to be featured on My Spoonie Sisters, please email MySpoonieSisters@gmail.com. We eagerly look forward to speaking and hearing from all our Spoonies! Disclaimer: While we are not doctors or healthcare Practitioners, we want to assure you that this podcast is a credible source of information. It's based on our guests' personal experiences and the strategies we've found effective for ourselves. However, everyone's body is unique, and what works for one person may not work for another. If you have any health-related questions, it's always best to consult your Primary Doctor or Rheumatologist. Remember, our goal at My Spoonie Sisters is to connect people and provide them with the support and tools they need to live better lives.
Episodes
Hi there! I’m Jenni, the proud founder of My Spoonie Sisters and the voice behind @gracefully_jen & https://www.instagram.com/my_spoonie_sisters/.
I’m so excited to bring together our amazing community of all shapes, sizes, and journeys, where we can uplift, educate, and have some fun along the way! Having lived with anxiety for 30 years and navigating my own health challenges like rheumatoid arthritis ...
🎉 This week, we’re beyond excited to celebrate not just an incredible milestone, but also the remarkable journey of our very first guest turned co-host: Linnea! 💗
Linnea is truly a champion. Despite her diagnosis of rheumatoid arthritis and psoriatic arthritis, she continues to tackle challenges with unwavering strength and grace. 🌟
Recently, Linnea took the empowering step of reclaiming control of her health, refusing to le...
Amy, the face behind https://www.instagram.com/alignedamy/
"For the past 30 yrs #anxiety has ran my life. My husband's diagnosis of #ulcerativecolitis, which lead to a #permanentileostomy, and most recently #crohnsdisease sent my anxiety into overdrive. My passion in life is helping other women know that they are never alone and they are enough, right now, exactly as they are."
"My toolbox is filled to the brim with t...
Dear Spoonie Sisters,
Someone is always out there, but you must talk openly about what’s happening. I didn’t. That is where my story begins.
Anxiety attacks, depression, endometriosis, RA, and Pustular psoriasis. Who did I turn to? No one, or the wrong one. I didn’t feel safe. I felt like no one had my back, no one was my ‘rock’; that’s my WHY. WHY I a...
Antoinette Chrisana is a 26-year-old RA warrior, advocate, and Host of https://www.instagram.com/illest.chronicals/
Throughout her RA journey thus far, she has become very passionate about the hashtag she coined, #ralookslikemetoo, which enlightens, educates, uplifts, empowers, and encourages fellow warriors, advocates, and allies! This big-hearted warrior reminds us all that “Rheumatoid Arthritis is not pretty, ...
WarriorConnect is a nonprofit organization inspired by Ameshah and joined by Diana and several other volunteers. They support those overcoming health obstacles and send care packages worldwide.
Below is a link to sponsor a package, check out the Warrior Connect website, and shop their Etsy shop. All Etsy profits help to fund packages.
https://linktr.ee/warriorconnect
Delivering Happy Mail around the w...
Meet Another fellow Spoonie Sister, Nicole, as she, and sit down and talk about Life With Ra, otherwise known as Rheumatoid Arthritis. Nicole is such an amazing light, an amazing wife & mom, and a fierce warrior. She was diagnosed with RA in 2010 and has had both of her hips replaced since. Nicole shares her story on her YouTube channel LifeWithRa. Be sure to go check it out!
IG: https://www.instagram.com/lifewithra__/<...
I would love you all to meet Alison; she is a fellow warrior friend with Rheumatoid Arthritis! Alison is a Dukes fan, a travel fanatic that loves coffee, is a dog mom, and she sure knows how to enjoy life!! Stay tuned to learn more about this phenomenal friend, supporter, and fighter!
IG: https://www.instagram.com/alisons1616/
To support this podcast, please leave a review, share it with your fellow Spoonie Sisters, o...
Meet Solmayra or Sol for short. Sol is 28 years old. She is a two-year-old girl's mom, which keeps her very busy. She was recently diagnosed in September 2021 with RA and with Psoriasis in February 2022. She appreciates this community of spoonie sisters and the support we give one another. Solmayra looks forward to many more great conversations and connections with fellow Spoonie Sisters.
"RA is just part of my l...
Meet Jamie, a local photographer to Tri-Cities Washington, and face behind Empower You Women. Jamie has dealt with years of depression and anxiety but does not let that stop her from fiercely showing up in the community and for others.
Socials:
IG: https://www.instagram.com/jkphotoswa/ www.jkphotoswa.com
IG: https://www.instagram.com/empoweryouwomen/
https://portal.dubsado.com/public/form/view/63d96562442f5428f9b01...
Since being diagnosed with Rheumatoid Arthritis in 2020, Chelsey has become a chronic illness advocate and podcaster. Her podcast, My Immune System Hates Me!, features chronic illness sufferers who break down their illness, diagnostic process, treatment, and wellness journey.
She is passionate about supporting her community and started the Rheumatoid Arthritis Warrior Group, a weekly peer-led support group for RA warriors. ...
Andi a 42-year-old Holistic Wellness Practitioner. She is passionate about helping women find their happiness!
Let's start here: between the ages of 14 and now, she was diagnosed with what she refers to as autoimmune mayhem (MS, SLE, RA, POTS, Fibro ). "Every day, there is something going haywire in my body & it's always an adventure to figure out which system is causing it."
"My life changed on March 10, 2020, w...
Natasha Trehan is a university student studying Biomedical Science at the University of Ottawa. She was diagnosed with Juvenile Idiopathic Arthritis at the age of 13. As a teenager, she felt alone and could not find instant resources to connect with people with similar experiences.
Natasha founded the Take a Pain Check Podcast in March 2021 to ensure that young patients feel supported every step of the way. In October 2021,...
Ray is 41 and a father of 2 crazy kids, ages 4 & 8 years old. When not working, he spends his days drinking coffee, hanging out with his wife & kids, and trying to stay active.
Enjoy the special episode as Ray takes us through his Spoonie story, and follow him on Instagram.
IG: https://www.instagram.com/switchdad/
To support this podcast, please leave a review, share it with your fellow Spoonie Sisters...
Megan was diagnosed at 18 yrs old with RA. Her story starts with an injury and pain that never went away. Looking back, she realizes she may have ignored other symptoms because age was laser focused that she had an injury. She has used all she has been through to help teach and encourage others! Megan describes fitness as a means to cope with & manage her RA in a big way.
IG:https://www.instagram.com/itsmegzz_fitn...
Lj Johnson PsyD. IHP. FP, IIN, is a women’s hormone coach specializing in endometriosis, PCOS, and fibroids. Lj has worked in the women's health and fitness industry for over 20 years while overcoming her own diagnosis of endometriosis. Lj’s passion is to empower, motivate and educate all women so that they, too, can have a quality of life despite their symptoms or diagnosis.
Lj Shopify …..https://lj...
Welcome to Pulmonary Fibrosis awareness month.
Taleena, a strong powerhouse in the PF community with vast knowledge, joins us. Listen as we dive in and talk about lung disease and what you need to know for your health and those close to you!
Website: https://breathesupport.org/
Link to PF Fact Sheet – https://breathesupport.org/wp-content/uploads/2021/03/PF-Facts_Single-Page.pdf
Join Ashley, a warrior empowering women with RA and autoimmune conditions to reduce joint discomfort and increase energy through faith, food, and fitness. With 20 years of experience as an RA Warrior, Ashley loves guiding women in transforming mind, body, and spirit. Follow her for daily inspiration and to hear more about her journey. RA Warrior Fitness is here to empower women with RA and other autoimmune conditions to enhance...
Erika is a chronic pain author and advocate in Spokane, Washington. Sit down and listen as we discuss what, how, and why she is so passionate about sharing her story and her book, "Adalene Plays Many Ways."
"I experience chronic pain and have a non-apparent disability. I am an author & advocate innovator & educator. Working alongside others, I aim to raise awareness to increase representation and promote inclusion."...
Meet Bridget, an autoimmune health and spirituality coach and fellow spoonie sister.
Bridget’s Instagram:
https://www.instagram.com/immune.intuition/?hl=en
Links to Bridget’s 1:1
https://www.immuneintuition.com/tht
Links mentioned in conversation: Becky Rashidifard - Expert on celiac and IBS:
https://www.beckyrashidifard.com/
Nicole, Heal Me Delicious - Delicious and AIP-friendly recipes:...
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