MyMacDLife - Macular Degeneration Podcast

In this thought-provoking episode of My MACD Life, Sam Seavey shares a glimpse into the future of assistive technology for the visually impaired. From advancements in battery technology and wearable devices to groundbreaking innovations like contact lenses with video magnification and robotic guide dogs, Sam discusses the transformative potential of these developments. He also provides heartfelt advice for those newly experiencing ...

In this episode of My MACD Life, we dive into the critical issue of affordability for assistive technology devices with guest Sam Seavey. With an unemployment rate of 80% among the visually impaired community, Sam addresses the burning question: why are these devices so expensive? He shares valuable insights into the economics of assistive technology and practical solutions to make these essential tools accessible. From personal gr...

Sam Seavey explores the economics behind assistive technology and the challenges posed by the so-called "blind tax." He highlights the transformative impact of devices like wearable magnifiers and text-to-speech tools while discussing the significant financial barriers many face. This episode dives deep into how these essential tools are priced and what can be done to make them more accessible​

In this episode, Sam Seavey walks us through his process of evaluating assistive devices for the visually impaired. From white canes to talking watches, he tests products in real-life scenarios and gathers insights from experts to provide honest reviews. Learn about the latest innovations in assistive technology and how they’re making a difference for the visually impaired community​

Discover how Sam Seavey built The Blind Life, a YouTube channel dedicated to reviewing assistive technology and sharing tips for living with low vision. With over 50,000 subscribers and 700 videos, Sam shares how he produces content, advocates for the blind community, and helps others navigate their journeys. Get inspired by his determination to make information accessible and empowering​

Sam Seavey shares his personal experience with Stargardt's disease, a rare inherited form of macular degeneration. From genetic inheritance to the challenges of growing up with a sibling who shares the condition, Sam provides a heartfelt and informative look at life with Stargardt's. This episode is a must-listen for anyone wanting to understand this unique condition​

In this inspiring episode of My MACD Life, Sam Seavey, founder of The Blind Life YouTube channel, shares his journey with Stargardt's disease and his mission to empower others with visual impairments. Sam discusses the evolution of assistive technology, tips for overcoming daily challenges, and the importance of determination in adapting to vision loss. From innovative devices to personal strategies, Sam’s story and insights re...

Dr. Daniel Jones shares his personal journey into neuroscience, inspired by growing up in a bilingual household with a deaf parent. This episode dives into how adaptability in the brain connects to his work in macular degeneration research, showcasing the power of determination and the courage to face scientific and personal challenges​

This episode explores the findings of the Mosaic study, which examined the impact of Geographic Atrophy (GA) on patients and caregivers. Dr. Daniel Jones discusses the emotional and functional burdens of GA, highlighting how caregiving relationships often deepen through love and support despite the challenges. Gain insights into how this research shapes better care for those living with GA​

Dr. Daniel Jones discusses the Mosaic study, a global effort to understand the burden of Geographic Atrophy (GA) on patients and their caregivers. By combining interviews and surveys, this study reveals the multifaceted ways GA affects lives and provides a roadmap for designing research and treatments that truly address patient and caregiver needs​

In this episode, Dr. Daniel Jones explains Geographic Atrophy (GA), an advanced form of dry macular degeneration. Learn about how GA develops, its unique features, and its impact on vision, including the formation of retinal lesions and blind spots. Dr. Jones also clarifies the relationship between GA and other types of AMD, emphasizing the importance of discussing this condition with a retina specialist​.

In this episode of My MACD Life, Dr. Daniel Jones dives into the intricacies of Geographic Atrophy (GA), its progression, and the role of the complement system in macular degeneration. He shares groundbreaking insights from the Mosaic study, which highlights the burdens faced by patients and caregivers, and explores cutting-edge research into treatments aimed at slowing GA's progression. Dr. Jones also reflects on his personal ...

In the season 2 finale of MyMacDLife, David Wolf joins as a guest host. David Wolf is the CEO and founder of Audivita Studios, the producers of this podcast series. David is joined by Matt Prigge, lead casting director at Audivita Studios, and Meghan Elizabeth Tauck, co-author with William Douglas Horton of Living in a Time of Dying: Cries of Grief, Rage, Love, and Hope.

In this segment, you’ll get an inside look into the world of a...

Kira Baldonado is back! In this part 2 episode, Jeff Ostroff and Kira pick up where they left off. 

Kira's discussion of federal legislation in part 1 leads to a conversation about what states do to address the concerns of those with low vision and their families and caregivers. Kira shares research on the impact of COVID-19 on vision health, the future of new treatments, and how your story can make an impact on others. 

Kira exp...

Jeff Ostroff speaks with Kira Baldonado, Vice President of Public Policy and Health at Prevent Blindness. Kira brings two decades of public health advocacy and leadership experience to the conversation. In this episode, Kira shares her current public policy and advocacy efforts and how it affects people with MacD, your families, and other caregivers. She explores how you can use your voice and your vote to support changes in health...

Host: Hilary Stunda

In this episode, Hilary Stunda speaks with Dawn Prall, the creator of MyMacDLife Podcast and the founder of The SupportSight Foundation. The majority of Dawn’s work has been in the health care and social services industries. In the last decade, she has become a champion of low vision patient education, raising awareness to fund MacD research. In this episode, she shares her story.

Dawn Prall began working in the f...