When Claire was pregnant with her second child, antenatal scans revealed that he had a congenital heart disease and a high chance of a Trisomy 21. Whilst she and her family were coming to terms with this information she went into labour at 37 weeks and little Max was rushed across to PICU for his first open heart surgery.
We spoke with Claire about the whirlwind and rollercoaster that having a child in the PICU from birth for heart surgery can entail and also the added challenge of doing this in the peak of COVID restrictions and lockdowns in 2020.
Claire shares such an amazing insight on not only her experience as a mother, but that of Max and the whole family during this unpredictable time in their lives. We are even blessed with a guest appearance from Max part way through the poddy.
One of Claires big take homes is how we all work together as a team when a child is sick in hospital to work towards that shared goal of the child's best interests.
We give a shout out and donation from this episode to the marvellous twenty one gifts twentyonegifts.com and the Abbey Solo Foundation www.abbeysolofoundation.org head over to check out these amazing NFP and throw your support behind their amazing visions.
If you would like to learn more about T21 you can head to downsyndrome.org.au and lots of details about congenital heart disease at heart kids.org.au
visit our website at www.paedseducation.com.au
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