Cerebral Cavernous Malformation With Elizabeth From Oregon and Allison from DC

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Guest(s): Allison & Elizabeth

Episode Summary

In this episode of Rare Connection, I’m joined by twin sisters Allison and Elizabeth, who both have familial Cerebral Cavernous Malformation (CCM)—a rare genetic condition that causes clusters of abnormal blood vessels in the brain and spinal cord. They share their personal diagnosis journeys, how CCM has impacted their lives, and the ways they manage symptoms and advocate for awareness.

Topics Covered:

✅ How Allison & Elizabeth were diagnosed with CCM
 ✅ Symptoms, treatments, and lifestyle adjustments
 ✅ The genetic and family impact of CCM
 ✅ Nutrition and diet considerations for managing symptoms
 ✅ Advocacy, research, and the future of CCM treatment

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