Denise's child Rileu is one of few that I have spoken to that was diagnosed through newborn screening. Although Homocystinuria is on the Newborn Screening Nationwide it only catches a case 50% of the time. We are working on enhanced Newborn screening but newborn screening saves lives has not been reauthorized yet.
Follow along as I talk to Denise about Riley's diagnosis, her symptoms, diet, the diet formula, how she works with the schools and more
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