Rare disease patients often face long diagnostic delays, limited access to clinical trials, and challenges in finding treatments. Traditional medical records don’t always capture the full picture, making it harder to identify and support these patients. But what if advanced data and AI could change that?
In this episode of Rare Connection, I’m joined by Jeff McDonald, CEO of Kythera Labs, to discuss how AI and data analytics are revolutionizing rare disease care. We explore how these technologies are helping to:
✅ Identify rare disease patients faster
✅ Improve clinical trial matching and recruitment
✅ Speed up drug discovery and access to treatments
✅ Empower patient advocacy with real-world data
If you or a loved one has struggled to navigate the rare disease space, this conversation is packed with insights that could make a difference.
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