All Episodes

March 16, 2025 63 mins

Send us a text

Rare disease patients often face long diagnostic delays, limited access to clinical trials, and challenges in finding treatments. Traditional medical records don’t always capture the full picture, making it harder to identify and support these patients. But what if advanced data and AI could change that?

In this episode of Rare Connection, I’m joined by Jeff McDonald, CEO of Kythera Labs, to discuss how AI and data analytics are revolutionizing rare disease care. We explore how these technologies are helping to:
✅ Identify rare disease patients faster
✅ Improve clinical trial matching and recruitment
✅ Speed up drug discovery and access to treatments
✅ Empower patient advocacy with real-world data

If you or a loved one has struggled to navigate the rare disease space, this conversation is packed with insights that could make a difference.

Connect with Rare Connection:
🎙 Subscribe to the Podcast: [Insert podcast link]
📺 Subscribe on YouTube: [YouTube channel link]
📱 Send Me a Text: [Link in show notes]
💙 Follow Rare Connection: [Facebook] | [X] | [LinkedIn]
Support the Show: [Support link]

🔔 Don’t forget to subscribe and share this episode to help spread awareness!

Support the show

Mark as Played

Advertise With Us

Popular Podcasts

Stuff You Should Know
Dateline NBC

Dateline NBC

Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations. Follow now to get the latest episodes of Dateline NBC completely free, or subscribe to Dateline Premium for ad-free listening and exclusive bonus content: DatelinePremium.com

24/7 News: The Latest

24/7 News: The Latest

The latest news in 4 minutes updated every hour, every day.

Music, radio and podcasts, all free. Listen online or download the iHeart App.

Connect

© 2025 iHeartMedia, Inc.