Rare Enough
The Rare Enough Podcast, hosted by DJ Stewart, a GBM survivor, dives deep into the world of brain cancer awareness, support, and research, inspired by the mission of the Head for the Cure Foundation. Each episode features compelling conversations with patients, caregivers, researchers, and advocates, sharing their unique experiences and insights. We explore a variety of topics, from the latest advancements in brain cancer treatment to personal stories of resilience and hope!
Episodes
In this episode we sit down with firefighter Zach Toole, who shares his heartfelt journey as a caregiver to his mother during her battle with glioblastoma. Though she has since passed, Zach continues to honor her legacy by fiercely advocating for brain cancer awareness. Tune in as he reflects on the challenges of caregiving, the strength he found in his role, and how he now carries her torch in everything he does.
As we recognize April as Occupational Therapy month, we welcome Ally Ponticello, a licensed Occupational Therapist and caregiver to her mom, who is battling glioblastoma. Ally shares invaluable insights into the world of occupational therapy, offering practical tips and simple strategies to make daily life easier—whether you're a patient, caregiver, or just looking to improve your routine. Tune in to learn how sm...
This mini episode features Ray and Melissa Lambert—a couple with an extraordinary story. Both diagnosed with brain tumors, they’ve each taken on the dual role of patient and caregiver, supporting one another through surgeries, treatment, and recovery.
This month, we sit down with Aaron Closson, whose battle with brain cancer led him on an unexpected and meaningful path. After facing his own diagnosis, Aaron found a calling in helping others navigate the emotional and spiritual challenges that come with a life-changing illness. Now serving as a chaplain, he offers comfort, guidance, and hope to those on similar journeys.
In this mini episode, we’re joined by Jo Singleton, Team Captain for the Charleston community, as she shares the story behind Team Kyla and her dedication to raising brain cancer awareness. Jo opens up about what fuels her passion for advocacy, the impact of community-driven efforts, and how Team Kyla continues to honor a legacy while inspiring others.
In this episode we welcome Dr. Na Tosha Gatson, Director of Neuro-Oncology & Professor of Neurology and Medicine at IU Health. A leader in the field, Dr. Gatson shares insights on advancements in neuro-oncology, the impact of brain tumors on women’s health, addressing health disparities, and the importance of quality-of-life care.
In this mini episode of Rare Enough, Maggie Haynes, Director of Events at Head for the Cure, shares the secrets behind the "playbook" of organizing meaningful events that fuel hope, inspire action, and raise critical funds for brain cancer research. From 5Ks to special initiatives, Maggie discusses the passion, creativity, and strategy that turn each event into a powerful experience for the brain cancer comm...
In this episode we interview Dr. Doug Burton, a renowned spine surgeon and Professor at the University of Kansas, who shares his transformative journey from physician to patient after his own brain cancer diagnosis. Dr. Burton reflects on how this experience reshaped his perspective on care and the patient-provider relationship.
In the final Rare Enough Podcast episode of the year, we sit down with Matt Anthony, founder of Head for the Cure, to reflect on the journey from the foundation's early days to where it stands today. Join us as we celebrate the incredible successes of the 2024 event season, discuss the milestones achieved, and look ahead to the future of the organization. This heartfelt conversation captures the essence of hope, ...
In this episode, we have a heartfelt conversation with Luke Anderson, the son of Lori Stevens, who bravely fought but ultimately lost her battle with brain cancer. Luke shares his personal journey and the creation of the Lori Project, an initiative dedicated to bringing awareness and support for navigating end-of-life care. Join us as we learn how Luke's mission is making a difference for families facing simila...
In this episode we introduce Brian and Emily Godawski- an inspiring duo who faced brain cancer with unwavering resilience. Brian, a brain cancer survivor, and Emily, his devoted caregiver, overcame immense challenges by embracing "faith over fear." Their shared story offers hope and inspiration, showcasing the power of love, strength, and unwavering belief in each other.
In honor of Childhood Brain Cancer Awareness Month, we introduce Kelly and Evie Fisher. Kelly and Evie share the poignant and inspiring story of Allie, Kelly's daughter and Evie's little sister, who bravely battled brain cancer. Through their journey, Kelly and Evie have shown remarkable strength and resilience, navigating their profound loss with courage. They continue to honor Allie's legacy by adv...
Meet Simon Khagi, MD, Medical Director of Neuro-Oncology at Hoag Family Cancer Institute and a triple-board-certified oncologist. He specializes in primary brain, spine, lung, and advanced skin cancers and has extensive experience with glioblastoma, astrocytoma, oligodendroglioma, meningioma, ependymoma, medulloblastoma, brain metastases, and rare brain tumors.
This is a special anniversary episode celebrating the first year of the Rare Enough Podcast! For our fourteenth episode, we introduce Michael and Vanessa Hugo! The Hugo's are a patient and caregiver dynamic duo that work day in and day out on advocating for others in the brain cancer community. Learn all about their journey with glioblastoma and how they have never given up.
For this episode, we introduce Colin Gerner, the CEO and co-founder of StacheStrong, who is leading a dedicated fight against brain cancer. Under his leadership, StacheStrong has become a prominent force in raising awareness and funding for critical research, driven by a personal mission to transform lives and find a cure.
For Brain Tumor Awareness Month, we are highlighting not just one but three incredible brain cancer survivors! Our latest survivor episode features three extraordinary individuals: Blake Burke (Oligodendroglioma), Molly Marco (Astrocytoma), and Josiah Mihok (Glioblastoma), each with different tumors and different treatments. Listen along as they share their journey with brain cancer.
Meet Frank Leonard, the President for Novocure Oncology. Frank leads the global business operations for a medical device company pioneering innovative treatment modalities for solid tumor cancers, including glioblastoma. Learn about Tumor Treating Fields and much more!
In our tenth episode, we introduce Laura Dill, full time caregiver to both of her parents who were diagnosed with the same incurable brain cancer only 14 days apart. Listen along to see how she triumphantly turned her tragedy around to not only help herself, but to also help others facing a similar experience.
Meet Zach Round, a survivor and thriver who triumphed over brain cancer. In recounting his story, Zach reveals how he faced adversity head-on, while never allowing obstacles to stop him from living his best life.
“I have had to dig deep every day to keep moving forward and sharing my journey helps to let everyone know that you are not alone and that you have a purpose – show up for it.”
-Zach
This episode, we introduce Shane Brown, President at GT Med Tech, who has devoted his career to combating brain cancer. Shane is driven by his profound commitment to the company's mission of enhancing the lives of individuals with brain tumors through the innovative solutions offered by GT Medical Technologies. Listen along to learn all about the impact and intricacies of the Gamma Tile.
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