10: Why Finding Community Is Important When Dealing With A Rare Disease

Why Finding Community Is Important When Dealing With A Rare Disease - During this special in-person conversation at The International Congress of Porphyrins and Porphyrias (ICPP 2024) September 21-25, 2024 held in Pamplona, Spain. Rarely Discussed hosts Nicole Castellano and Andrew McManamon had the wonderful opportunity to sit down with Nadezda Pejovic, the founder of the National Associations of Porphyria's Serbia, where she speaks about her experience as a pharmacist and how it's helped with her Acute Intermittent Porphyria diagnosis and how important it has been to have a community. Rarely Discussed Podcast 🎙️ →Rarely Discussed: https://beacons.ai/rarelydiscussed FOLLOW Rarely Discussed: →YouTube: https://shorturl.at/mtuwO →Instagram: https://shorturl.at/xGHPT →Tik Tok: https://shorturl.at/qEGQZ MEET Nicole Castellano: →Nicole's Story: https://t.ly/IsGK7 →Facebook: https://shorturl.at/krQZ8 →Instagram: https://www.instagram.com/nicowildkat/?hl=en MEET Andrew McManamon: →Andrew's Story: https://t.ly/01JLz →Facebook: https://t.ly/kHuvX →Instagram: https://t.ly/Htuwg →Tik Tok: https://t.ly/eK1bP American Porphyria Foundation: →Website: https://porphyriafoundation.org/ →Instagram: https://rb.gy/osvb08 →Facebook Group: https://rb.gy/217o99 →YouTube Channel: https://rb.gy/9s0kcm __________ This podcast is supported by Recordati Rare Diseases. Recordati has no control or influence over the content mentioned in this podcast.