11: How Journaling Has Led To His Breakthrough With Porphyria

How Journaling Has Led To Breakthroughs For Porphyria - During this special in-person conversation at The International Congress of Porphyrins and Porphyrias (ICPP 2024) September 21-25, 2024 held in Pamplona, Spain. Rarely Discussed hosts Nicole Castellano and Andrew McManamon had the wonderful opportunity to sit down with Derry Wilcox who is not only the Treasurer for the Global Porphyria Advocacy Coalition (GPAC) as well as the Treasurer for the Canadian Association For Porphyria. Derry talks to us about his personal Porphyria story, and how he handles living with this rare disease. →Canadian Association For Porphyria: https://www.porphyriacanada.ca/team-2 →Global Porphyria Advocacy Coalition: https://www.gpac-porphyria.org/about Rarely Discussed Podcast 🎙️ →Rarely Discussed: https://beacons.ai/rarelydiscussed FOLLOW Rarely Discussed: →YouTube: https://shorturl.at/mtuwO →Instagram: https://shorturl.at/xGHPT →Tik Tok: https://shorturl.at/qEGQZ MEET Nicole Castellano: →Nicole's Story: https://t.ly/IsGK7 →Facebook: https://shorturl.at/krQZ8 →Instagram: https://www.instagram.com/nicowildkat/?hl=en MEET Andrew McManamon: →Andrew's Story: https://t.ly/01JLz →Facebook: https://t.ly/kHuvX →Instagram: https://t.ly/Htuwg →Tik Tok: https://t.ly/eK1bP American Porphyria Foundation: →Website: https://porphyriafoundation.org/ →Instagram: https://rb.gy/osvb08 →Facebook Group: https://rb.gy/217o99 →YouTube Channel: https://rb.gy/9s0kcm __________ This podcast is supported by Recordati Rare Diseases. Recordati has no control or influence over the content mentioned in this podcast.