12: How Asking For Help And Spreading Awareness Paved The Way To Success

Spreading Awareness For Porphyria & Creating An Association. During this special in-person conversation at The International Congress of Porphyrins and Porphyrias (ICPP 2024) September 21-25, 2024 held in Pamplona, Spain. Rarely Discussed hosts Nicole Castellano and Andrew McManamon had the wonderful opportunity to sit down with Kika Shabot who is not only the acting vice president for the Global Porphyria Advocacy Coalition (GPAC), but the President of the Mexican Porphyria Society as well. Kika talks about the hardships of creating a Porphyria association in Mexico and how asking for help has paved the way for their success. SHOW LINKS ⬇️ →Mexican Porphyria Society: http://smporfiria.org.mx/ →GPAC: https://www.gpac-porphyria.org/about Rarely Discussed Podcast 🎙️ →Rarely Discussed: https://beacons.ai/rarelydiscussed FOLLOW Rarely Discussed: →YouTube: https://shorturl.at/mtuwO →Instagram: https://shorturl.at/xGHPT →Tik Tok: https://shorturl.at/qEGQZ MEET Nicole Castellano: →Nicole's Story: https://t.ly/IsGK7 →Facebook: https://shorturl.at/krQZ8 →Instagram: https://www.instagram.com/nicowildkat/?hl=en MEET Andrew McManamon: →Andrew's Story: https://t.ly/01JLz →Facebook: https://t.ly/kHuvX →Instagram: https://t.ly/Htuwg →Tik Tok: https://t.ly/eK1bP American Porphyria Foundation: →Website: https://porphyriafoundation.org/ →Instagram: https://rb.gy/osvb08 →Facebook Group: https://rb.gy/217o99 →YouTube Channel: https://rb.gy/9s0kcm #mexicanporphyria #porphyriainmexico #kikashabot __________ This podcast is supported by Recordati Rare Diseases. Recordati has no control or influence over the content mentioned in this podcast.