13: A Perspective From A Scientist With A Rare Disease

A Perspective From A Scientist With A Rare Disease - During this special in-person conversation at The International Congress of Porphyrins and Porphyrias (ICPP 2024) September 21-25, 2024 held in Pamplona, Spain. Rarely Discussed hosts Nicole Castellano and Andrew McManamon had the extraordinary opportunity to sit down with Francesca Granata , PhD, molecular biologist and Porphyria expert, known for her Ted Talk titled, "How to step out from the shadows” talking about her experiences as a erythropoietic protoporphyria (EPP) patient and a scientist advocating everyday for Porphyria. Francesca talks about her story, her struggles, experience and her efforts toward advocacy. Meet Francesca Granata →IPPN: https://porphyria.network/IPPN/francesca-granata/ →Ted Talk: https://www.ted.com/talks/francesca_granata_come_uscire_dall_ombra Rarely Discussed Podcast 🎙️ →Rarely Discussed: https://beacons.ai/rarelydiscussed FOLLOW Rarely Discussed: →YouTube: https://shorturl.at/mtuwO →Instagram: https://shorturl.at/xGHPT →Tik Tok: https://shorturl.at/qEGQZ MEET Nicole Castellano: →Nicole's Story: https://t.ly/IsGK7 →Facebook: https://shorturl.at/krQZ8 →Instagram: https://www.instagram.com/nicowildkat/?hl=en MEET Andrew McManamon: →Andrew's Story: https://t.ly/01JLz →Facebook: https://t.ly/kHuvX →Instagram: https://t.ly/Htuwg →Tik Tok: https://t.ly/eK1bP American Porphyria Foundation: →Website: https://porphyriafoundation.org/ →Instagram: https://rb.gy/osvb08 →Facebook Group: https://rb.gy/217o99 →YouTube Channel: https://rb.gy/9s0kcm #raredisease #francescagranata #erythropoieticprotoporphyria __________ This podcast is supported by Recordati Rare Diseases. Recordati has no control or influence over the content mentioned in this podcast.