16: Living With Porphyria: A Patient And Caretaker Perspective

Living With Porphyria: A Patient And Caretaker Perspective - On this episode of the Rarely Discussed Podcast, Co-host Andrew McManamon had the opportunity to sit down with the DiPerna family to get the perspective of a Porphyria Patient (Daughter) AND the caretaker(s) (Parents) to tell the story of Claire DiPerna's diagnosis, her hardships, and what her parents, Erin and Jim had to face to ensure their daughter was getting answers.This is an episode YOU DO NOT WANT TO MISS!Rarely Discussed Podcast 🎙️→Rarely Discussed: https://beacons.ai/rarelydiscussedFOLLOW Rarely Discussed:→YouTube: https://shorturl.at/mtuwO→Instagram: https://shorturl.at/xGHPT→Tik Tok: https://shorturl.at/qEGQZMEET Nicole Castellano:→Nicole's Story: https://t.ly/IsGK7→Facebook: https://shorturl.at/krQZ8→Instagram: https://www.instagram.com/nicowildkat/?hl=enMEET Andrew McManamon:→Andrew's Story: https://t.ly/01JLz→Facebook: https://t.ly/kHuvX→Instagram: https://t.ly/Htuwg→Tik Tok: https://t.ly/eK1bPAmerican Porphyria Foundation:→Website: https://porphyriafoundation.org/→Instagram: https://rb.gy/osvb08→Facebook Group: https://rb.gy/217o99→YouTube Channel: https://rb.gy/9s0kcm#porphyria #acuteintermittentporphyria #raredisease __________This podcast is supported by Recordati Rare Diseases. Recordati has no control or influence over the content mentioned in this podcast.