6: Grieving The Life You Had With A Rare Disease & Asking For Help When You Need It!

Grieving The Life You Had With A Rare Disease & Being Content With The Little Things - It’s time to laugh! Nicole and Andrew had the opportunity to sit down with Debra Knapp. Debra was a successful attorney who began to have terrible acute attacks. Eventually, her disease was so difficult that she could no longer work. Now she is choosing to help patients face their porphyria. Debra has been a wonderful advocate and guide to new members in the foundation. Everyone knows her best as being the most selfless person when it comes to coming to the aid of others, and in this interview Debra breaks down her diagnosis, her hardships, experiences and so much more that makes this episode one that you’ll have to most definitely take the time to listen to. Rarely Discussed Podcast 🎙️ →Rarely Discussed: https://beacons.ai/rarelydiscussed FOLLOW Rarely Discussed: →YouTube: https://shorturl.at/mtuwO →Instagram: https://shorturl.at/xGHPT →Tik Tok: https://shorturl.at/qEGQZ MEET Nicole Castellano: →Nicole's Story: https://t.ly/IsGK7 →Facebook: https://shorturl.at/krQZ8 →Instagram: https://www.instagram.com/nicowildkat... MEET Andrew McManamon: →Andrew's Story: .css-j9qmi7{display:-webkit-box;display:-webkit-flex;display:-ms-flexbox;display:flex;-webkit-flex-direction:row;-ms-flex-direction:row;flex-direction:row;font-weight:700;margin-bottom:1rem;margin-top:2.8rem;width:100%;-webkit-box-pack:start;-ms-flex-pack:start;-webkit-justify-content:start;justify-content:start;padding-left:5rem;}@media only screen and (max-width: 599px){.css-j9qmi7{padding-left:0;-webkit-box-pack:center;-ms-flex-pack:center;-webkit-justify-content:center;justify-content:center;}}.css-j9qmi7 svg{fill:#27292D;}.css-j9qmi7 .eagfbvw0{-webkit-align-items:center;-webkit-box-align:center;-ms-flex-align:center;align-items:center;color:#27292D;}