Scotti Taylor gives us a glimpse on what Smith-Magenis Syndrome (SMS) is, a rare genetic disorder caused by a mutation or deletion on the 17th chromosome. She discusses the challenges of raising a child with SMS, including sleep issues, behavioral problems, and anxiety. Scotti emphasizes the importance of having a support system and being proactive in managing her daughter's symptoms.
Scotti also highlights the need for more awareness and understanding of SMS in society. Scotti Taylor shares her experience raising a child with Smith-Magenis Syndrome (SMS) and the challenges and joys that come with it. She discusses the impact of SMS on her family dynamics and the need for constant support and understanding. She emphasizes the importance of movement and art as therapeutic outlets for herself and her daughter.
She also talks about the future and the need for a plan to ensure Drew's care and well-being. Scotti's advice to parents navigating SMS is to trust their instincts and never stop advocating for their child. She finds inspiration in a friend who has overcome immense hardship and remains resilient.
FOLLOW SCOTTI TAYLOR
https://www.instagram.com/heyscottitaylor/
www.scottitaylorart.com
scottitaylor@me.com
https://smsresearchfoundation.org/
www.prisms.org
https://www.raregenomics.org/smith-magenis-syndrome?device=c&keyword=smith%20magenis%20syndrome&placement=&adgroup=20019303187&campaign=331598947&gad_source=1&gclid=CjwKCAjwooq3BhB3EiwAYqYoEmhMIpPXZUavk5NvWsVTBcyW3AF4mMPNZKCTRzm7Oa7ox_Ma5AdswBoCJfcQAvD_BwE
ME
www.realmotherfuckerspodcast.com
https://www.instagram.com/realmotherfuckerspodcast/
https://www.youtube.com/@RealMoFosPodcast
https://patreon.com/RealMotherFuckersPodcast
DISCLAIMER
This podcast has mature language and content. ADULT ears only — don’t have this one on with your kids in the room. These are our opinions and experiences as moms, take what you like, or leave it. Don’t be thinking we’re telling you what to do. Seek professionals, do your research, and call the experts for help.
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