Stephanie and Sarah share their powerful stories of navigating life as special needs moms. Stephanie’s son, Ben, has autism and a rare genetic disorder called Cohen Syndrome, while Sarah’s son, Liam, has autism and a speech disorder. Together, we explore the challenges, triumphs, and deep love that come with raising special needs children.We’ll also discuss how friends and relatives can provide the most meaningful support to these amazing moms. This conversation is for every mom walking this path, offering connection, community, and a reminder that you’re never alone.
00:00 Introduction
0248 Sarah talks about Liam’s autism and childhood apraxia of speech diagnosis
0415 The fear but reassurance with a diagnosis
0520 Stephanie talks about Ben’s Cohen Syndrome diagnosis and autism
0749 Whole exome sequencing testing for mom dad and baby and having 2nd child
1049 Welcome to Holland analogy
1214 Grieving the loss and the trauma of a different parenting experience
1325 Sarah talking about the diagnosis changing everything and nothing
1435 Stephanie advocating for exome sequencing testing
1739 Challenges and wins in special needs parenting
2126 Advice for other special needs parents and moms
2437 How to be a source of support for special needs parents
2655 What moms need to do for their own self care
3051 Create community with Stephanie and Sarah
Connect with Kristi Hujik:
Instagram - https://instagram.com/wholehealthkristi
Website - https://kristihujik.com Sign up for my free newsletter
Product discounts and links for you - https://linktr.ee/wholehealth
Subscribe to my Youtube Channel - https://www.youtube.com/@wholehealthkristi13
Connect with Stephanie Cahill:
Instagram - https://www.instagram.com/stephaniecahill_/
Welcome to Holland Poem - https://www.emilyperlkingsley.com/welcome-to-holland
Els for Autism School https://www.elsforautism.org/about-us/on-our-campus/
Read about Cohen Syndrome - https://pubmed.ncbi.nlm.nih.gov/11665826/
Connect with Sarah Oberholtzer:
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