On this episode, we sit down with Dan Rubin, who was diagnosed with Ewings sarcoma in 2017 and has since navigated many, many different types of therapies to manage his diagnosis.
Dan’s unique record keeping system, which we dive into throughout the episode, along with the incredible support of his wife Katharine, has allowed Dan to navigate his care and advocate for himself throughout the years.
Dan has had to make numerous informed decisions about the best courses of action for his treatments - and from clinical trials to taking a more palliative approach - Dan has so much experience to share with the sarcoma community.
As a 7 time marathoner, we talk about how exercise has continued to support Dan through his diagnosis and how he’s maintained his positive mindset 95-98% of the time.
Links:
Ewing Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/
Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/
RTCS Marine Corps Marathon team: https://fundraisers.hakuapp.com/teams/sarcoma-foundation-of-america-2?partner=ce52206b901f55550cf5
Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/
Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/
Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/
Caregiver Connect FB Group: https://www.facebook.com/groups/1342913339758774
Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704
Dan's Blog: https://rwoac24.substack.com/
Dan's LinkedIn: https://www.linkedin.com/in/dan-rubin-48318a17/
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