On this episode we speak with Jenny Sage, a parent of a pediatric sarcoma survivor, Gracie. Jenny shares her perspective on advocating for children with sarcoma and others in the sarcoma and pediatric cancer communities. We discuss supporting children and families through a sarcoma diagnosis, the importance of emotional processing, and ways to help others.
Jenny’s Instagram: @jgoodmansagehttps://www.instagram.com/jgoodmansage/
Jenny’s LinkedIn: https://www.linkedin.com/in/jenny-goodman-sage-333200a4/
CIC-DUX4 Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/
Sarcoma Patient Experience Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/?fbclid=PAZXh0bgNhZW0CMTEAAaYWR9Zq2nOoOAxRVn6dJ78MeJ2nAVrq29fKMIGAcuToCKD2JxCQTLEbP4A_aem_5lsjjYo6Ug28apsTbN-mjw
Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704
Caregiver Sarcoma Connect Facebook Group: https://www.facebook.com/groups/1342913339758774
Advocacy Weekend: https://curesarcoma.org/get-involved/sarcoma-advocacy/sarcoma-advocacy-weekend/
Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/
SFA Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/
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