Ep. 21: The Cut Footage from the TV Interview: Spotlight on EDS & POTS

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In this deeply personal and vital episode, Nichi shares the behind-the-scenes truth that didn’t make it into the national TV segment which aired on A Current Affair recently about her daughter’s shocking heart attack from Spontaneous Coronary Artery Dissection (SCAD) just before her 18th birthday. While the TV piece highlighted SCAD beautifully, it omitted the invisible battles her daughter was already facing — Hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS).

Nichi walks us through what hEDS and POTS really are, how they can silently impact nearly every body system, and why it’s so important we shine a spotlight on these conditions. She shares emerging research, heartbreaking statistics from a 2025 global survey, and reflects on the toll of misdiagnosis, medical gaslighting, and the hidden pain millions face.

This episode is for the medically dismissed, the misunderstood, and those trying to find answers in a system that often overlooks them.

🎧 Listen to hear:

• The full story behind the ACA interview — and what was left out
• What hEDS and POTS really are, how they show up, and who they affect
• How these conditions may relate to SCAD
• Brand-new research findings from a 2025 global survey of over 9,000 people
• How the medical system continues to overlook these conditions — and what needs to change
• Tips for patients, parents, clinicians, and advocates
• Why raising awareness is more than a campaign — it’s a necessity for survival

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Intro and Outro music: Inspirational Acoustic - Organic Harmony by Sonican; and Andrii Poradovskyi from Pixabay.

Disclaimer: This content is general in nature and intended for educational purposes only. It is not deemed as psychological treatment and does not replace the advice from your health professional or need for psychological treatment.