Sickle Talk

Sickle Talk

The American Sickle Cell Anemia Association connects with families and works to enhance their quality of life. ASCAA is using technology like podcasting and videos to educate and raise awareness about Sickle Cell Anemia. We are working to create a world without sickle cell disease. You can send your Sickle Cell Story or art to sickletalk@ascaa.org for ASCAA's Sickle Talk Art Corner. Let's erase the stigma and misinformation surrounding this illness. Let's talk about sickle cell.

Episodes

August 29, 2024 20 mins

September is National Sickle Cell Awareness Month.


Welcome back to another episode, where we speak with our first guest, Bianca Griffin, President and Spokeswoman of the Jack and Jill Erie Shores Chapter. On September 8th, the Erie Shores Chapter and the American Sickle Cell Anemia Association will be holding a 5K Run/Walk, Running the Shores, where we honor the memory of the late founder of the ASCAA, Dr. Edgar B. Jackson, Jr...

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After some brainstorming, we've decided to break down what Sickle Cell Disease is, including components of the blood, hemoglobin, immunocompromise, population-at-risk, a bit more about genetics, and a few other tidbits of information surrounding what makes sickle cell, sickle cell.


Need captions? Episodes are later uploaded to YouTube with captions.


If you want your questions answered or wish to share your story or ar...

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Welcome back to another episode! Join Lucy as we discuss myths and misconceptions surrounding Sickle Cell Anemia, Rare Disease Day, and how you can support Sickle Cell Programs within your region, or even the American Sickle Cell Anemia Association. Creative and have sickle cell anemia? Send in your artwork, photographs, stories, and more to sickletalk@ascaa.org. Your art could be featured in an episode! Sickle Talk is owned and ...

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Sickle Talk is back! After a hiatus, Sickle Talk is making its return as a podcast. After three long years since our last episode, we return to talk about the American Sickle Cell Anemia Association, and how this organization got its start over 50 years ago, and the Newborn Screening Program. This federal and state program tests newborn babies for dozens of debilitating disorders, including sickle cell anemia. Creative and have si...

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