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September 12, 2023 23 mins

In this rare and relevant episode Kimberly delves into various awareness days and months in September. We also talk about upcoming webinars and conferences, share industry resources, and highlight the inspiring "Life After Diagnosis Day" follow-up available on The Disorder Channel.

 

Stay tuned for voicemails from our listeners, news about Weill Cornell Medicine and New York-Presbyterian Weill Cornell Medical Center, and San Diego-based Crinetics Pharmaceuticals' promising results in the development of an oral medication for acromegaly. So much to hear in one episode! 

 

Links ⬇️

http://dazzle4rare.net/awareness_days](http://dazzle4rare.net/awareness_days  https://www.hopeforhh.org/get-involved/](https://www.hopeforhh.org/get-involved  https://rarediseases.org/rare-diseases/usher-syndrom](https://rarediseases.org/rare-diseases/usher-syndrome  https://www.childrenshospital.org/conditions/microvillus-inclusion-disease

https://rarediseases.org/event/nfed-advocacy-day/](https://rarediseases.org/event/nfed-advocacy-day  https://globalgenes.org/event/rare-health-equity-forum/](https://globalgenes.org/event/rare-health-equity-forum

https://www.hlth.com/2023event  https://mmpharmasciences.pathfactory.com/l/integrated-perspectives

https://news.weill.cornell.edu/news/2023/09/national-organization-for-rare-disorders-designates-weill-cornell-medicine-and-newyork

 

Reach Daniel De Fabio at daniel@rarediseasefilmfestival.com

 

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Don't miss an episode of Signalise! Be sure to ✔️FOLLOW or ✔️SUBSCRIBE via your podcast app of choice. You can also follow #Signalise news on @Dazzle4Rare on Facebook , Instagram , and Twitter. You can find host us on LinkedIn as well at Dazzle4Rare.

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