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May 31, 2025 43 mins

In this powerful episode of Take Care of Your Body by Ry, Ry sits down with Joey, a passionate HS advocate and dedicated member of the HS Connect team, for a raw, real, and deeply educational conversation about Hidradenitis Suppurativa — the chronic condition most people have never even heard of, but that affects every part of life.


If you’ve ever been misdiagnosed, dismissed, or made to feel ashamed of your body — this episode is for you.


Joey shares his personal journey with HS, what it’s like navigating this disease as a man, and why advocacy isn’t just his passion — it’s his purpose. Together, Ry and Joey break down the science behind HS, how it forms, and why it’s so often misunderstood by both patients and healthcare providers. But they also go beyond the clinical: they talk about the mental health toll, the trauma of living with visible wounds, the shame, the silence, and the power of reclaiming your body anyway.


💥 Topics we cover include:


  • What Hidradenitis Suppurativa actually is (and what it isn’t)

  • Why diagnosis takes years — and how misdiagnosis leads to trauma

  • HS in men and the stigma around vulnerability

  • The impact of chronic pain and isolation on mental health

  • How Joey found his voice and uses it to empower others

  • What healing looks like when you’re still bleeding — emotionally and physically



This is more than skin deep. This is about survival, community, and rewriting the narrative of what it means to live with a chronic illness.


You are not dirty. You are not broken. You are not alone. 💌


Listen now wherever you get your podcasts — and share this with someone who needs to feel seen.


https://www.instagram.com/joeytorre718?igsh=emduMXNnNnBsMXZ2

Want more healing, honesty, and heart? Let’s stay in touch.

→ Follow me on Instagram: @rylinrosee

→ Recipes, wellness & lifestyle: @recipesbyry

→ Listen to the podcast: Take Care of Your Body by Ry on Spotify | Apple Podcasts

Email me at rylinrossano@gmail.com for collabs or guest inquires.


✨ Because taking care of your body means taking care of your heart, your story, and your truth. Let’s glow, together.


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