Take the Next Step with Amy Julia Becker

E24—"I don't know what life can look like for my child." If you've ever felt that, this episode is for you. Sheli Reynolds, PhD, is a leader in disability innovation. She joins Amy Julia Becker to share free, practical tools that support individuals and families experiencing disability in planning for friendship, independence, employment, and joy.

00:00 Dr. Sheli Reynolds and Disability Advocacy
03:40 Underst...

E23—The meals stop coming. The texts slow down. And suddenly you feel like you’re navigating disability alone. Friends can be great at showing up in a crisis, but how do you find community for your family when life stays hard day after month after year? Katherine Wolf, stroke survivor, mother, and disability advocate, shares her story with Amy Julia Becker. They consider:

• Grief
• Limits of toxic positivity
• Finding community that hel...

E22—Is having a sibling with a disability hard on kids? Researcher Meghan Burke has spent years studying (and living) this question. Her findings might surprise you. In this episode, she joins Amy Julia Becker to share:

• what siblings actually say about growing up alongside disability
• why the "burden" narrative is mostly a myth
• the one conversation every family needs to have before a crisis hits

00:00 Introduction to ...

E21—As the mom of a daughter with Down syndrome, I have felt my fair share of complicated emotions over these past twenty years. And sometimes, I haven't known what to do with those emotions, especially the ones that seem negative, like grief or fear. I'm talking today with psychiatrist, speaker, and author Curt Thompson about all these things—how we can name our emotions in safe and trusted communities, and the way recei...

E20—Does your child struggle to understand who they are in a world that sees disability as a deficit? Renee Dollenmayer, founder of Even If Ministries, shares how living with cerebral palsy shapes her joy, sorrow, and purpose—and why every person with a disability needs to know their presence matters. 

00:00 Introduction to Renee's Story and Disability
03:15 Joy and Sorrow in the Context of Disability
05:56 Creating Spa...

E19—Many parents of children with disabilities carry deep spiritual questions and have very little space to process them. Amy Julia Becker talks with Pam Harmon about spiritual direction and why it can be a lifeline for parents navigating caregiving, uncertainty, and burnout. Together they explore practical ways to slow down, notice God in everyday life, and find renewed hope in the middle of disability parenting.

00:00 Introduction...

E18—Your child isn’t “misbehaving.” They’re trying to be understood. Many children with disabilities communicate through behavior, especially when spoken words aren’t available in the moment. Behavior analyst Emily Longino shares practical tools for recognizing communication signals before they escalate and helping parents build connection with their kids. Amy Julia Becker and Emily explore:

• How to look beyond behavior to unders...

E17—Is your family welcome at church? If Sunday mornings leave you more exhausted than encouraged, you’re not alone. Rebecca Wall, Executive Director of With Ministries, joins Amy Julia Becker to explore why so many disability families are leaving church—and the small, practical changes that can create real belonging. Find (or help build) a community where people with disabilities aren’t just accommodated, but welcomed.

Ask Me Anyth...

E16 — Parent and medical caregiver. Many parents of children with disabilities know the complexity of these two full-time roles. Juli Henderson, founder of In Our Arms, was the caregiver for her son Robert, who passed away at eighteen from a rare mitochondrial disease. She joins Amy Julia Becker to explore:

• Caregiver burnout, guilt, and isolation
• How to pace yourself
• Creating community (even when you’re exhausted)
• Practicing small,...

E15 — Tired of feeling like you have to “fix” your child—or turn their life into an inspiration story? Parents of kids with disabilities are often pushed toward two extremes: tragedy or triumph. But what if both miss the point? In this conversation, Amy Julia Becker and Matthew Mooney (co-founder of 99 Balloons) offer a healthier way to understand disability—rooted in shared humanity, vulnerability, and real relationships.

Plus: sim...

Ep 14 — If paperwork and clutter are exhausting you, you’re not alone. Professional organizer Angela O’Brien, mom to a young adult daughter with Down syndrome, talks with Amy Julia Becker about the unique organizing challenges of disability parenting. From managing medical appointments and IEP paperwork to creating a home that works for everyone, Angela shares simple, realistic steps to help you move toward greater peace and presen...

Ep 13 — There's a myth out there that raising a child with disabilities will doom a marriage. But the data tells a different story. In our conversation, authors Todd and Kristin Faith Evans join Amy Julia Becker to offer simple ways for couples to connect in the midst of both the ordinary and the most intense family circumstances. There's a lot of hope in this episode!

00:00 Intro: Marriage and parenting a child with a dis...

Ep 12 — What if inclusion in schools didn’t have to be a constant fight? Adrian Wood, PhD, shares what actually helped her son with autism thrive in their public school system. Adrian and Amy Julia Becker explore:

• Building trust with educators
• Collaboration and creativity
• Navigating IEPs and transitions
• Small changes that make a big difference

03:36 Navigating Public School for Children with Disabilities

05:59 Creative Thinking ...

Feeling alone in the hard parts of parenting a child with a disability? Hear how other families are finding support, encouragement, and practical ways to navigate the challenges while celebrating the joys. Plus, a quick review is the perfect Christmas gift to help more families discover Take the Next Step!

Mentioned:

• Niro Feliciano's Take the Next Step episode

00:00 Intro

00:31 Your Feedback

03:33 Backstory and Future Reim...

E11 — Feeling the holiday overwhelm creep in already? Psychotherapist Niro Feliciano, author of All is CALMish, unpacks why disability families carry extra emotional weight this time of year—and how small, doable shifts can bring more peace. We explore:

• realistic expectations
• micro-moments of delight
• asking for help
• building a holiday season that fits your family, not Instagram

MENTIONED IN THIS EPISODE:

• All is CALMish: How ...

E10 — From Frustration to Connection: If your home feels tense or chaotic, connection might be a missing piece. Recording artist Sho Baraka joins Amy Julia Becker to share how his family moved from daily breakdowns and aggression to a home marked by peace. Sho reflects on his story of parenting two sons with autism and the surprising power of proximity—how simply being with our kids can open doors to communication, trust, and calm.

...

E9 — Awkward questions about disability happen. Here’s how parents can respond. Carrie Hahn, a pediatric speech-language pathologist and mother, joins Amy Julia Becker to share actionable strategies to:

• navigate conversations and correct misconceptions
• make disability normal in play
• help kids feel seen and respected without feeling singled out

00:00 Intro
03:14 Myths About Disability
05:33 Talking About Disability in P...

E8 — Asking for help shouldn’t feel impossible. In this episode, Jordan Arogeti, CEO of SupportNow, joins Amy Julia Becker to talk about why asking for help can feel so hard, especially for disability families. They explore how SupportNow offers a simple path toward connection and lasting support.

Connect to Community download: A one-page guide to help families experiencing disability map out the connections that matter most within ...

E7 — Q+R: How do I take care of myself and avoid burnout? How do I make sure siblings aren't overlooked? Is it okay to grieve? Where can my child build lifelong friendships? How do I stop feeling guilty? In this episode, Amy Julia Becker and Matt Mooney, co-founder of 99 Balloons, respond to your questions. Thank you to our audience for your thoughtful contributions!

Chapter List

00:00 Introduction
04:30 I’m so tired as a pa...