That's So Chronic

That's So Chronic

Sharing patient stories and discussions while having a laugh and keeping it real. A weekly podcast where performer, creator, and MS-er Jess Brien interviews people from around the world that are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries and potentially disastrous diagnoses. @thatssochronic | @jessssbrien | #ThatsSoChronic Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Episodes

October 30, 2023 25 mins

It’s the final Tuesday of the month which means it’s time for a That’s So episode! A chance to chat about a piece of content that’s in our That’s So Chronic world. Today, we’re chatting about the feature documentary Designer $hit directed by Saffron Cassaday. 

In Designer $hit, director Saffron Cassaday, who has suffered from ulcerative colitis for nearly a decade, sets off on a journey to determine whether FMT (or fecal micr...

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Happy Tuesday! When I was passing through London, UK in July I was able to sit down and chat with Miranda Allen about her diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) 

In this episode, Miranda looks back with hindsight and explains where it’s possible her symptoms began, the years of not really knowing what was going on, how she got a diagnosis, what on earth ME even is, her day to day symptoms, ho...

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Welcome back to That’s So Chronic! Today - in the middle of the Edinburgh Festival Fringe - I was able to sit down with comedian Markus Birdman, to chat about his experience of having two strokes, as well as living with a diagnosis of homonymous hemianopia.

In this episode Markus explains how it it felt for him going through stroke number one and then stroke number two ten years later, what happens after you arrive at the hospital...

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Welcome back to That’s So Chronic! It’s the final Tuesday of the month which means it’s time for a That’s So episode, where we chat about something that’s in our That’s So Chronic world. 

Today, we’re chatting about The Surgeons’ Hall Museums and the Blood & Guts: The Twists and Turns of Edinburgh’s Medical History Walking Tour that I was able to check out while I was in Edinburgh, Scotland during August. 

Here are ...

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September 11, 2023 79 mins

Welcome to That’s So Chronic!. Today I am chatting to psychiatrist, comedian, and author Dr Jo Prendergast about her diagnosis of breast cancer, as well as her latest book When Life Sucks

In this episode, Jo talks us through her breast cancer diagnosis and what happened next. We chat about the amount of decisions you have to make after a diagnosis, the stark differences between public vs private health care here in New Zeal...

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September 4, 2023 42 mins

Welcome back to That's So Chronic! Today I am joined by Dr Saimun Singla and we are discussing her diagnosis of rheumatoid arthritis as well as her work as a paediatric rheumatologist and integrative medicine physician. 

In this episode, Dr Saimun shares her story of working for years in rheumatology and then going through her own rheumatoid arthritis diagnosis process. We chat about how she felt suddenly becoming a patient o...

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Welcome to That's So Chronic. It’s the final Tuesday of the month, which means it’s time for another That’s So episode. Today I am chatting to Olivia Shivas, the editor of The D*List - the home of disability culture in Aotearoa.

The D*List is an online culture magazine that creates space for disabled people to tell their own stories through features, columns and news reporting. It’s quickly becoming one of my favourite places on t...

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Today I am chatting to Nick Allen who is living with a diagnosis of functional neurological disorder (FND) and fibromyalgia. However, this was not always the case…

In this episode Nick talks us through the long process of initially being diagnosed with primary progressive multiple sclerosis, and the lifestyle changes that he implemented to manage his condition (one of these being the overcoming MS lifestyle). Nick then explains th...

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August 14, 2023 45 mins

It’s my favourite day of the week again! Welcome back to That’s So Chronic! Today’s episode is with Audrey Zannese and we are discussing her diagnosis of multiple sclerosis (MS).

In this episode Audrey opens up about how in denial she was when she first heard that her symptoms might be MS, and then the journey it took for her to make the decision to begin treatment. She also talks us through the practice of sophrology - a mind bod...

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August 7, 2023 62 mins

Welcome to That’s So Chronic! Today I am chatting to Sophie Ricketts, and she talks us through a hymenectomy surgery that she had while she was at drama school.

In this episode Sophie explains the process of discovering that she had a thick hymen, which involves several people telling her “she wasn’t ready” for sex, a gut feeling that wasn’t initially followed through, and a gynaecologist drawing a picture. This diagnosis resulted...

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Welcome back to That’s So Chronic! Today’s episode is with Dr Kara Wada, MD, and we are discussing her diagnosis of Sjogren’s syndrome and her work as an allergist, immunologist, and lifestyle medicine physician. 

In this episode Dr Kara shares her diagnosis story, as well as the symptoms that - with hindsight - are also pieces of the Sjogren's puzzle. She explains what Sjogren’s is (spoiler: it isn’t the name of a table at I...

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Welcome back to That’s So Chronic. It's the final Tuesday of the month, so we take a break from regular interviews. For today’s Spotlight On episode, I’m chatting to pain researcher and sole Survivor, Dr Hayley Leake.

In this episode Hayley chats about the pain research work that she is working on, her PhD, what excites her about the future of pain research, and of course, we chat about how she was able to incorporate her knowledg...

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July 17, 2023 40 mins

Welcome back to That’s So Chronic! Today’s episode is with Elizabeth, and we are chatting about her diagnosis of multiple sclerosis (MS)

In this episode Elizabeth shares the diagnosis process that eventuated after a bout of optic neuritis, how she felt when her symptoms had a name, her management plan including diet and Natalizumab/Tysabri infusions, and why she felt inspired to share her story today. 

This episode fe...

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Yay! It’s Tuesday! Which means a brand new episode of That’s So Chronic!

Today’s episode is with Ruby Quinn, and we are chatting about her diagnosis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), endometriosis, and ADHD (attention deficit hyperactivity disorder)

In this episode, Ruby starts by sharing her story of her ME/CFS diagnosis, and takes us through how she got a diagnosis amongst lockdowns, she des...

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Ahhhh!!!! WE’RE BACK! BRAND NEW EPISODES! Sorry for shouting but I’m SO EXCITED!

Welcome back! Today’s episode is with Allie Sharples, and we are chatting about her diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), as well as being born with a cleft lip and palate. 

In this episode, Allie takes us all the way back to the beginning and explains the countless surgeries that she went through up until the ag...

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Welcome to That's So Chronic (or if you're a long time listener, welcome back!) a weekly podcast where Jess Brien (@jessssbrien) interviews people from around the world who are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries, and potentially disastrous diagnoses... all while having a laugh along the way.

You can expect new patient stories every Tuesday, and on the final Tuesday of the ...

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It’s the final Tuesday of the month which means a That’s So episode! Today I am chatting about Dr Paul Biegler’s latest book Why Does It Still Hurt?

Throughout the book Paul begins to unpack the reasons behind why it might still be hurting, using his own chronic pain journey, as well as other patients’ stories, and interviews with some of the top pain researchers, scientists and doctors in the world.

In this episode, I sit down ...

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Welcome back to That’s So Chronic! Today, after a couple of technical difficulties, I’m joined by singer songwriter Annie Vander, and we’re talking all about her diagnosis of complex regional pain syndrome (CRPS)

In this episode Annie shares the accident that subsequently changed the course of her career, the diagnosis process, her definition of CRPS, how she manages her symptoms, the inspiration behind her latest single Falling I...

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Welcome to That’s So Chronic! Today’s episode is with Natasha Godetz, and we are chatting about her diagnosis of juvenile idiopathic arthritis and the journey that led her to a double hip replacement. 

In this episode, Natasha explains what it was like receiving a diagnosis when she was 10 years old, the effects university had on her health, the ups and downs of moving overseas and exploring the world on immunosuppressants (w...

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YAY! We’re BACK! Thank you for being so patient while I took a break for the summer holidays here in NZ! 

Today’s episode is with Shana Pereira, and we are discussing her heart and kidney transplant, and honestly, at times you will think it is actually the plot of a movie... But more on that towards the end of the episode!

In this episode Shana talks us through her story that starts on Christmas eve 2015, how she felt when s...

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