That's So Chronic

That's So Chronic

Sharing patient stories and discussions while having a laugh and keeping it real. A weekly podcast where performer, writer, and MS-er Jess Brien interviews people from around the world that are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries and potentially disastrous diagnoses. @thatssochronic | @jessssbrien | #ThatsSoChronic Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Episodes

November 28, 2022 22 min

It’s the final (regular) That’s So Chronic episode of the year! How is that even possible!? Seeing as it’s the final Tuesday of the month it’s a That’s So episode. Today we are chatting about the two latest films to be released on Netflix all about serial killer Charles Cullen. It is of course The Good Nurse and Capturing The Killer Nurse

 

…and I have got a lot of fun facts to share with you all!!!

The Good Nurse is directed by T...

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Happy Tuesday! Welcome to That’s So Chronic. Today’s episode is with Olivia, who shares her journey navigating symptoms and trying to find a diagnosis. Olivia has been diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) but refers to that as a blanket diagnosis that doesn’t really explain the full picture.

In this episode Olivia talks us through her symptoms that started about a year ago, how her medical tea...

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Welcome back to That’s So Chronic! Today’s episode is with Monica Foster, and we are talking about her diagnosis of cushing’s disease (hypercortisolism)

In this episode Monica shares her diagnosis journey, the ups and downs that came with countless tests from various different medical professionals, the decision to go through with brain surgery for the tumours on her pituitary gland, an expensive medication, travelling to differ...

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Yay! Happy Tuesday! Today’s episode of That’s So Chronic is with Natalie Meyers and her mom Dr. Laurie, and we’re chatting about Natalie’s diagnosis of rheumatoid arthritis, lupus and pericarditis

** We had a couple of technical difficulties getting this video call to work, so thanks in advance for being understanding about the sound quality! **

 

In this episode, we basically talk about everything! Natalie and Dr Laurie take us...

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Today’s episode of That’s So Chronic is with Chelsea Haughton and we are talking about her diagnosis of polycystic ovarian syndrome (PCOS), premenstrual dysphoric disorder (PMDD), and hypermobile ehlers danlos syndrome (hEDS).

In this episode, Chelsea shares her experiences of seeking a diagnosis which includes flying to a different city for an appointment, how each of these conditions affect her, the importance of talking about p...

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October 24, 2022 39 min

Welcome to That's So Chronic! Today we are shining a spotlight on Hear Your Song, a non-profit organisation that is empowering children and teens with serious illnesses and complex health needs to make their voices heard through collaborative songwriting. If you know a bit about me, you’ll know that this is my cup of tea, so I was very excited to learn more and help share their story today!

In this episode I’m chatting to co-f...

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Happy Tuesday! Today I am chatting to Finn Iles/Violet Tendencies all about her diagnosis of hypermobile ehlers danlos syndrome (hEDS), as well as a variety of comorbidities that come along with this. 

In this episode, Finn explains the journey to get to a diagnosis (which is still continuing!), what on earth EDS is, and how medicinal cannabis has helped her symptoms. Finn also takes us through the amount of advocacy work, researc...

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October 3, 2022 46 min

Hi! Today’s episode is a little bit different. If you’re not following That’s So Chronic over on instagram you might have missed that recently I was a guest on Ben Hampton’s podcast A Gluten Free Podcast. You might remember Ben from his interview episode here on That’s So Chronic where he shared his story of being diagnosed with coeliac disease. 

I really enjoyed getting to chat to Ben all about my gluten intolerance diagnosis. It...

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How is it the end of September already?! I’m excited to share this months That’s So episode, because today we’re chatting about The Certainty Myth by Dr Toni Lindsay

** a content warning: while we share a lot of laughs, we do touch on the subject of death, so please take care while listening **

Dr Toni Lindsay is a clinical and health psychologist who has been working with both adults and adolescents for over 10 years. Currentl...

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Today’s episode is with comedian Maria Williams, and I must admit, I did have a moment where I cried with laughter while editing this episode! Maria is also a teacher, and lives with a diagnosis of ADHD, or attention deficit hyperactivity disorder. 

In this episode, Maria shares the journey of her ADHD diagnosis, from a diagnosis in Hawai’i that she was convinced was a misdiagnosis to an eventual diagnosis at age 32. She also shar...

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September 12, 2022 33 min

It’s Tuesday! Which means another episode of That’s So Chronic! Today is the first in person interview for a little while (thanks to you know what) and I’m chatting to Caitlyn McMillan about her diagnosis of achalasia.

In this episode, Caitlyn shares her diagnosis story, the symptoms she experiences, the decision to go through with surgery to her oesophagus and stomach, how she managed uni and her mental health throughout all of t...

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How is it the end of August already?! Today we are taking a break from regular interview episodes to share another That's So episode. That's So is a monthly series where we dive deeper into a piece of content - be that a book, film, tv series, interview, literally anything! - that's in our That's So Chronic world. Today I am talking to Karra Eloff about her book titled The Chronic Pain Couple

The Chronic Pain Cou...

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August 22, 2022 40 min

Welcome to That’s So Chronic! Today’s interview is with Sean Prenter, and we’re talk about his experience living life after sustaining a traumatic brain injury.

In this episode, Sean talks us through the moment when he fell off a balcony, the recovery process, as well as how recovery looks when you’re a student, how he managed to complete a goal by being able to ski again, and why he wants to share his story. 

Sean is also a co-f...

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Yay! It’s Tuesday! Which means another interview here at That’s So Chronic. Today we are heading to the UK, and hearing from Rosie Wilson. Rosie is living with a diagnosis of coeliac disease and multiple sclerosis (MS) which is what we are chatting about today.

In this episode, Rosie takes us through her coeliac diagnosis (as well the important questions like what her final meal would be if suddenly the world ended in the next fiv...

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August 8, 2022 45 min

Welcome back to That’s So Chronic! Today I was able to sit down with Amber Tresca from the AboutIBD podcast to talk about her diagnosis of ulcerative colitis.

In this episode Amber talks us through her diagnosis of UC, the effects not having insurance had on her level of care, the decision to go through with J-pouch surgery, why she does the work that she does, and some excellent advice for anyone out there who has just been diagn...

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Happy Tuesday! Welcome back to That’s So Chronic! Today I was able to sit down with Ben Hampton from A Gluten Free Podcast to talk about his diagnosis of coeliac disease.

In this episode Ben runs us through his journey to a diagnosis, what coeliac disease even is, the somewhat silver lining of being diagnosed in the middle of a global pandemic, what he’s found the most difficult, and the importance of finding a community.

 

You ca...

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July 25, 2022 31 min

Happy Tuesday friends! For today’s Spotlight On episode, I’m chatting to Richard Little from Exsurgo - A company that combines neuroscience, engineering and data analysis to help treat a range of neurological conditions without the use of pharmaceuticals.

In this episode we’re talking about what inspired Richard to begin working in this space, his definition of chronic pain, what the latest piece of technology Axon is all about, a...

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We made it! It’s Tuesday! Another That’s So Chronic episode! Today we are hearing from Cheyenne Welham, and we are talking about her diagnosis of hypermobile ehlers danlos syndrome (hEDS) and living life with an ostomy bag.

In this episode Cheyenne explains what EDS is, the 10 year journey to her getting a diagnosis, the life changing decision to go through ileostomy surgery, the toll this has had an her mental health, and why she...

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Happy Tuesday! Welcome to That’s So Chronic! Today I was able to catch up with Megan, to talk about her diagnosis of vulvodynia, endometriosis and adenomyosis.

In this episode Megan talks us through her diagnosis story, what it was like being a part of the PIPI programme at Burwood Hospital, the importance of finding a good GP, her experience navigating the private v public aspect of the NZ health system, and everything in between...

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YAY! WE’RE BACK! Today’s episode is with Logan Donnelly (@_kiwidad) and we are chatting about his diagnosis of secondary hypogonadism, and what that means for his fertility. 

In this episode Logan talks about his diagnosis, the decisions he made in regards to treatment, how wildly different specialists’ opinions can be, why he poured so much time and energy into becoming an expert on his own condition, and what motivated him t...

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