The Arc Experience Podcast

The Arc Experience Podcast

The Arc Wisconsin - with support from the Wisconsin Board for People with Developmental Disabilities - is launching The Arc Experience Podcast. In this monthly feature you’ll hear from people with intellectual and developmental disabilities and their allies across the state – talking about their lives and the issues they think are important.This project was supported, in part by grant number 2001WISCDD-00, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.

Episodes

April 30, 2021 23 min

Twenty years ago Nelsinia Ramos not only had a young daughter with autism, but was struggling to learn English and navigate the special education system at the same time. It was intimidating to say the least. Looking back, that experience is what fuels her desire to help other families in her work at Wisconsin FACETS today. In this podcast, Nelsinia,  now the Associate Director at the statewide parent support organization, talks ab...

Share
Mark as Played

When businesses want to hire people with disabilities, a lot of things can get in the way: from building accessibility and workplace accommodations to understanding disability benefits and how to work with outside providers like the Division of Vocational Rehabilitation (DVR), IRIS or Family Care. Today’s podcast guests know all about these obstacles, both from inside the business and out. This episode features the mother and son t...

Share
Mark as Played

When Andrea Curley was 18 and had just graduated from high school, she lost her mother. That’s when she enrolled in Family Care, Wisconsin's long-term services and supports managed care program, and her journey toward learning how to be independent began. In fact, just recently she made the decision to disenroll from Family Care because she's met her goals! In this episode you'll learn how Andrea did it, with a little h...

Share
Mark as Played

In today's episode we hear from Stephen Graves, a renowned national Diversity, Equity and Inclusion expert who has spent time thinking about the intersection of race and disability.  Stephen advises us not to play the "Oppression Olympics" but to get on a  journey of cultural humility and start courageous conversations, wherever we work or live. Listen in and you'll come away with concrete tips for what you can do t...

Share
Mark as Played

Am I eligible for the vaccine? Should I get the vaccine? Where can I get the vaccine? So many questions. And we have all the answers right here! We  are joined by a 30-year veteran registered nurse who is taking the lead getting shots in people's arms all across Wisconsin. Sue Urban is a nurse consultant with the state's IRIS program and knows more than almost anyone in the state about how, where and why people with disabil...

Share
Mark as Played

"Mommy, when you die am I taking care of Phillip?" This question from a 7-year-old was the seed that planted WisconSibs, an organization that's been serving siblings of children and adults with disabilities for the past two decades. In this podcast episode we speak candidly with WisconSibs founder Harriet Redman about the secrets siblings sometimes keep, how a soccer game started it all and how a little complaining is a...

Share
Mark as Played

When a Dad wanted to save money for his daughter with a disability and realized things weren't fair, he set out to change the law. And thus the ABLE Act was born, giving people with disabilities the ability to save money without losing their Medicaid or Social Security eligibility. Today we talk to a Wisconsin Mom who has made it her life's work to answer your ABLE questions and take the confusion out of how to set up an ac...

Share
Mark as Played

If you live in Wisconsin, the term Family Care has a pretty unique meaning. The Family Care program was known nationally as an innovative program when it was created in 1999. More than 20 years later, Wisconsin's version of managed care for people with disabilities and older adults is not without its critics, but it is hard to argue that the program has made a huge difference in thousands of lives, particularly those who spent ...

Share
Mark as Played

Wisconsin's long winters can be hard on anyone, but the pandemic is keeping us indoors more than ever.  What if we told you you could still connect with friends and favorite activities safely? You might even learn something new! 

Virtual services are popping up all over Wisconsin, giving people with disabilities the opportunity to connect with others all around the state and choose from activities that range from exercise to art...

Share
Mark as Played

Social isolation is impacting all of us in this pandemic, but what are we missing in our advocacy for people with intellectual and developmental disabilities (I/DD)? A lot, it turns out. Prior to the pandemic, people with I/DD were among the most isolated in our communities, now they are facing even greater risks. Isolation brings on loneliness, but also mental health concerns, and even abuse. Join us as we talk to national expert ...

Share
Mark as Played

Nicki Vander Meulen is the only openly Autistic individual in the nation to serve on a school board. Wisconsin's second largest school board, in fact! She says while there are many disability rights activists who want to get into politics,  they are rarely encouraged to run for office. Nicki  was told her whole life what she couldn’t do, and she’s proven the doubters wrong. In this episode you will hear Nicki's incredible s...

Share
Mark as Played

Ask any person with a disability and transportation is likely one of their top three complaints. Since many people with disabilities don't drive it is not only hard to plan your day, but hard to hold a job, see your family and friends or just plain live your life. This episode features a conversation with Tami Jackson of the Wisconsin Board for People with Developmental Disabilities who is heading up the state's new Non-Dri...

Share
Mark as Played

Presidential candidates say lots of things during an election, but what will they actually do when they get into office? In this episode of The Arc Experience veteran disability advocate Lynn Breedlove takes a deep dive into the Biden platform to tell us about his promises to people with disabilities, what is possible in a new administration and what could happen in the next four years.


 https://www.theatlantic.com/politics/archive...

Share
Mark as Played

Just when you think it should be over, it's not over! What do we know and not know 24 hours after the polls closed in Wisconsin? What's at stake for the disability community, regardless of who is in office? Veteran disability advocate Lynn Breedlove shares his wisdom with us about election results, what he thinks will happen next and the issues disability advocates should be paying attention to. 

Support the show (https://ar...

Share
Mark as Played

November is family caregiver month and our special guest today works tirelessly on family caregiver issues. Helen Marks Dicks is the State Issues Advocacy Director for AARP Wisconsin, but she is perhaps better known  as the lady with the big red glasses! Helen shares with us some exciting initiatives to improve conditions for Wisconsin's nearly 600,000 family caregivers.

Resources discussed in the show:
http://wisconsincaregiver...

Share
Mark as Played

In this podcast episode we are joined by Maria Town, the President and CEO of the American Association of People with Disabilities.  In this role, she works to increase the political and economic power of people with disabilities. Maria is a former Obama Administration official who feels passionately about people with disabilities participating in our democracy. Hear what AAPD is doing in Wisconsin and across the country to rock th...

Share
Mark as Played

At the 2020 Self-Determination Conference Lisa Pugh, Executive Director of The Arc Wisconsin spoke with a zoom roomful of self-advocates about setting a vision and taking small steps toward personal goals.  We agreed that if your dreams don’t scare you, they’re not big enough! We recorded our discussion live at the conference and listened to the dreams of self-advocates Kristi and Jessica while others offered their expert advice! F...

Share
Mark as Played

These times can be discouraging. People are isolated and afraid of getting sick. Their lives have been turned upside down and it's hard to know when things will get back to normal, if ever. Lynn Breedlove  has been voicing concerns for people with disabilities in Wisconsin for more than thirty years since he served as director of Disability Rights Wisconsin. You might say he's seen it all. Even though a pandemic is new turf...

Share
Mark as Played

Ashley Mathy is a 24-year-old disability advocate and pioneer who wants you to know you might fail at first, but you can do anything if you set your mind to it. With the motto “cross out the dis and embrace the ability”, Ashley travels Wisconsin sharing her message, training other self-advocates to find their voice, and challenging a few policymakers along the way. Hear Ashley's tough talk and advice for organizations on how th...

Share
Mark as Played

In this episode we chat with Beth Swedeen, Executive Director of the Wisconsin Board for People with Developmental Disabilities and hear her take on the top five moments of disability history in Wisconsin. Does her list match yours? She reflects on great memories in the state capitol and what she sees as the future of the self-advocacy movement in Wisconsin. You won't want to miss it! 

Guest: Beth Swedeen, Executive Director of ...

Share
Mark as Played

Chat About The Arc Experience Podcast

Advertise With Us

Popular Podcasts

Crime Junkie
Dateline NBC

Dateline NBC

Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations.

Stuff You Should Know

Stuff You Should Know

If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks then look no further. Josh and Chuck have you covered.

For You

    Music, radio and podcasts, all free. Listen online or download the iHeartRadio App.

    Connect

    © 2021 iHeartMedia, Inc.