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May 3, 2024 33 mins

When it comes to being the mom to a child with a rare disease, Heather Mooneyham is an expert. Through the many emotions that came with finding a diagnosis for her daughter, managing to raise two children through the testing phase, and trying to convince her family of her reality, this mama is not afraid of a little advocating. And by little, I mean a lot.


Her story is inspiring, and for me, extremely relatable. Take a listen to her powerful story and how she continues to fight for all three of her children. "Motherhood. Not for the weak."


Follow her on TikTok @raremamaheather

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