The Butterflies: A Turner Syndrome Podcast

The Butterflies: A Turner Syndrome Podcast

Welcome to the butterfly podcast! We talk all about Turners Syndrome ( a genetic disorder where someone is missing part or all of the X chromosome) each week. We want to grow awareness and representation for girls with Turner Syndrome. Each week we choose a different topic that can rage from a wide variety of topics. We hope you enjoy listening to our rants!

Episodes

June 8, 2025 18 mins

This week we are discussing the things we do the manage our health and make having TS easier.


Contact us/website: linktr.ee/TheButterfliesPodcast

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Welcome back! This week, have a part 2 to our little mini series with Ava about her AP research project. In this episode, we talk about her findings and what doctors can do to improve patient care.

Website/Contact us : https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share

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April 27, 2025 30 mins

Welcome back! On todays episode we talk about the various ways TS can affect health. Ranging from pneumonia to anemia, all the way to the heart . We hope this episode helps you learn something new!


Website/Contact Info

https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=ed7f5d6e-a86b-4823-a99e-00a49c29602d

Mark as Played
April 13, 2025 18 mins

Welcome back! This week we’re diving into misconceptions about TS. From outdated stereotypes to misinformation circulating online, we’re breaking down the myths and getting to the facts. Whether you’re new to learning about Turner Syndrome or looking to deepen your understanding, we hope this helps!


Website & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=002d0022-594f-4412...

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March 30, 2025 20 mins

This episode of the Butterflies Podcast is going to explore a topic that is often ignored but a real struggle for people with TS: driving.

Driving can be a struggle for someone with Turner Syndrome, and that's what we will be going over throughout this episode. We will share ways that you can make the learning as well as the regular driving process- better for you!

Contact info and website: https://linktr.ee/TheButterfliesPodcas...

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March 23, 2025 18 mins

Welcome back! In this weeks episode we discuss on the importance of community for people with Turners Syndrome. Grab a snack and get cozy, we hope you enjoy!

Website & Contact info

https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=274e50cc-b075-482b-8f5a-21afc6ff0ddd

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March 16, 2025 8 mins

This week's podcast will discuss TS and its impact on someone’s life, and the various ways it affects everyone differently. We discuss the physical and mental toll that TS can have. While also highlighting the ways TS can make someone s more resilient. Tune in, and we hope to see you back next week!

Website and contact info:https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=4b8a993d-ce70-40ec-b14...

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March 9, 2025 16 mins

Welcome back! For this week's episode we discuss how we stay connected even while being so far away. Grab a snack and get comfy. We hope you enjoy!

Socials & Contact info:

https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=275afa92-be78-4dc9-a34c-b307c9b1df89

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March 2, 2025 13 mins

Hi everyone, welcome back to another episode! Today we are talking about camp and some of our favorite parts. We hope you enjoy.

Camp: https://www.ntscamp.org/

Contact info and socials: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share

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February 23, 2025 17 mins

In this weeks episode we discuss beauty standards, body image, and how these impact self-esteem and personal life. We cover how societal expectations and beauty standards shape and affect self esteem as well as how personal struggles and experiences can impact confidence.

Contact info & Website: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=2a163bbe-d365-4384-aab7-5ba2b390f703

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February 16, 2025 11 mins

This weeks topic is allout the ways TS can effect mental health with a special guest: Grace's dad! Grab a blanket, and a snack. we hope you enjoy.


Contact info & Socials

https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share

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February 9, 2025 19 mins

This weeks ep is all about how others and doctors can better support TS patients with a special guest! Grab a blanket, snack, and get cozy. We hope you enjoy!


Contact info & Socials

https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=f3d992ab-0448-451a-b9c8-89ab09dc10d0

Mark as Played
February 2, 2025 16 mins

Welcome back! This week's episode is all about Cardio/Sports and how choices regarding that can be affected by Turner Syndrome. Grab a snack, blanket, and get cozy! We hope you enjoy. Socials & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share


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January 26, 2025 19 mins

Welcome back! This week's episode is all about fertility and how it can be affected by Turner Syndrome. Throughout this episode we will be focusing on different aspects of reproductive health. Grab a snack, blanket, and get cozy!


Socials & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share&ltsid=a7acd542-fe7b-4232-844d-9a8d4f54a007

Mark as Played
January 19, 2025 10 mins

Welcome back! This week episode is an interview with Mary's parents. We hope you enjoy! Contact info, where to listen, and our socials: https://linktr.ee/TheButterfliesPodcast?fbclid=PAZXh0bgNhZW0CMTEAAaZtNgsmGkFA6_o151sTP06nMWFzcSGBdTkEExQk7hlumNRbUGPTTYrc7d8_aem_TxjIa5XMlivjwqH1RqlcoA


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January 12, 2025 14 mins

This weeks episode is all about how people tend to gravitate towards the arts as well as our personal experience with the arts. Grab a snack and a blanket. Get cozy! We hope you enjoy :)

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January 5, 2025 16 mins

This episode is all about the importance and why TS being shown in media is needed. Get a snack, blanket, and get cozy!

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December 29, 2024 19 mins

This weeks EP is all about TS and how it can affect our relationships with our families. Get cozy, we hope you enjoy! :)

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December 22, 2024 20 mins

This weeks EP is about TS and bullying and our experiences dealing with bullying and what we have noticed. We hope you enjoy!

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December 15, 2024 38 mins

This weeks EP is all about TS and Friendships. We talk about our experiences with friends and also laugh and chat about our friendships with each other.

Mark as Played

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