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January 4, 2025 39 mins

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Phyllis Stanger, who discusses her experiences living with CBS. Phyllis describes her journey from being diagnosed with macular degeneration to later developing CBS symptoms, which include visual hallucinations. She shares the challenges she faces, such as giving up driving and coping with daily hallucinations, and offers insight into how she manages her condition. Phyllis also speaks about the role of support groups and family and emphasizes the importance of changing environments and staying involved in activities. Her story offers hope and practical advice for others living with CBS.

For help with CBS call 1-704-389-0160

Contact me at info@cbsyndromepodcast.com

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.

For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org

The Charles Bonnet Syndrome Podcast Merchandise

https://cbsyndromepodcast.com/merchandise

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