Episode Transcript
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Speaker 1 (00:00):
Already and this is the daily art.
Speaker 2 (00:03):
This is the dailyahs. Oh now it makes sense.
Speaker 1 (00:14):
Good morning and welcome to the Daily Ours. It's Wednesday,
the twelfth of November. I'm Emma Gillespie.
Speaker 2 (00:20):
I am Billy Fitzsimon's.
Speaker 1 (00:21):
The Victorian government has released the final report from its
landmark inquiry into women's pain. The findings paint a stark
picture where thousands are suffering unnecessarily within a healthcare system
that has failed to address chronic pain. Today, we are
going to break down exactly what the inquiry found, what
it's recommended, what happens next, and what it tells us
(00:45):
about women's pain on a national scale.
Speaker 2 (00:52):
I feel like over the past few years, maybe the
past five or ten years, I have really heard more
and more people talking about women's pain in open places,
in media, in reports. What prompted this inquiry? Is it
that people are now just talking about it more.
Speaker 1 (01:09):
Yeah, you're absolutely right, Billy. There has been a shift
in the national conversation. Obviously we're talking about Victoria today,
but there has certainly been a change in the way
the media, educators, health institutes, governments, policymakers speak about women's pain.
But we first heard about this inquiry back in January
(01:30):
twenty twenty four, so nearly two years ago, and that
announcement came with the release of new data. That data
showed forty percent of women across Victoria live with chronic pain,
including pain associated with periods, pregnancy, and conditions like endometriosis.
Around half of those surveyed said pain associated with periods
(01:51):
affected their health and well being, One in three said
they have a health condition like ongrowing, migraines, cramping, endo
and that thatx their ability to work and keep a job.
And a third of respondents reported feeling stressed and frustrated
after receiving insensitive and disrespectful health care advice.
Speaker 2 (02:11):
Okay, so that initial survey showed significant issues. What was
the goal of this subsequent inquiry? Because they've established that
there is an issue here? Exactly what did the inquiry
want to establish that was different?
Speaker 1 (02:23):
Off the back of those findings, Health Minister Mary and
Thomas said an expert panel led by the Victorian Women's
Health Advisory Council would examine what she called a systemic
gender pain gap. Now, essentially, that means that the inquiry's
focus was on women's experiences and how the state's healthcare
system addresses pain caused by periods, pregnancy, and endometriosis. Victorian
(02:49):
premieres Into Allen did warn in advance that these findings
probably wouldn't be a mic drop moment for a lot
of women around the state, but she said it was
quote time we stopped eating women's health like a niche issue.
We deserve to have our pain believed and relieved.
Speaker 2 (03:06):
Interesting and so now we have this report, Yeah, what
did it reveal?
Speaker 1 (03:10):
Well, before we dig into the findings, I think it's
important to flag that this report specifically notes that references
to women and girls are quote intended to include anyone
who may experience similar health issues or gender based discrepancies
in care. So this includes those assigned female at birth,
anyone who identifies as a woman. That is the language
(03:31):
in the report. So that is the language that we
will use today, Billy. And in terms of how the
inquiry defines pain, it's such a common part of women's lives,
but there is a huge diversity of experience, and according
to the report, references to pain include any experience of
pain and pain care treatment or service that women and
(03:52):
girls have had over their lifetimes. So that could include
pain from an injury or trauma, joint pain, musco's coleegal pain.
It could also be related to reproductive pain, heart, neurological, autoimmune,
a range of health conditions. In terms of what the
final report actually told us, women were invited to make
(04:12):
submissions to the inquiry, and that was an offer taken
up by over thirteen thousand Victorians and the final report
released on Sunday shows ninety percent of respondents experienced pain
that lasted over a year, so that's chronic, ongoing pain
affecting their daily lives. Fifty four percent experience chronic pain daily,
(04:34):
thirty one percent. Nearly a third of women experience it constantly.
Sixty five percent of respondents rated their pain intensity between
seven and nine out of ten, ten being the worst pain,
and eighty nine percent said their pain impacts their mental health.
Half said it impacts their energy levels, their overall fatigue.
Speaker 2 (04:56):
Right, and I feel like every time I hear this
topic of conversation come up, a lot of women say
that when they go to their doctor, they don't feel
like their issues are necessarily taken seriously, or sometimes they
feel gas lit by the healthcare system. Did the report
say anything about women accessing the healthcare system.
Speaker 1 (05:15):
Yeah, barriers to accessing care were a major part of
this report. They took up a big chunk of the findings.
And there is that common experience, that sentiment of feeling
gas lit, feeling left out by the system. Ninety five
percent of respondents said that they had sought assistance for pain,
and seventy one percent reported feeling dismissed by healthcare professionals
(05:40):
when doing so when seeking that help. They also identified
high costs and wait times as major barriers to accessing care,
and a third of respondents reported feeling stressed and frustrated
after receiving what they described as insensitive and disrespectful advice.
There are some specific examples of respondents store throughout the report.
(06:01):
One participant said quote, I had a doctor tell me
I was a drug addict because I asked for stronger
pain relief medication. That is a really common experience in
the findings. Another person described feeling guilty about clogging up
the system to use her words, because she often presented
to hospital emergency rooms with intense and chronic pain and
(06:22):
was sent home without diagnosis, without treatment, without support. Respondents
described having to visit multiple providers to receive a correct
diagnosis fifty two percent of respondents, so more than half
of women accessed six or more different services to help
manage their pain, with additional challenges for women in rural Victoria,
(06:44):
that is a.
Speaker 2 (06:44):
Lot six different services to try to treat the same condition.
Speaker 1 (06:49):
So it is the norm that women are seeking multiple perspectives, opinions,
appointments just to get to the bottom of their pain.
Speaker 2 (06:58):
And health is such a huge, huge part of all
of our lives, so I imagine that you know, if
you are having these issues in this area of your life,
it's actually also having a flow on effect with the
rest of your life.
Speaker 1 (07:10):
Absolutely. I mean some respondents have admitted to self medicating
or using unregulated treatment options just to manage their pain
just to get by. So that includes medicinal cannabis. That
can include taking prescription medication that wasn't prescribed to that
individual person, and an overall distrust in the system. The
(07:30):
report also acknowledged that misdiagnoses and delayed diagnoses cause widespread problems.
Fifty three percent of women have experienced delayed diagnoses, which
means that many of them have suffered unnecessarily four years
or even had their conditions worsen because they weren't receiving treatment.
(07:51):
More than half said their pain had impacted their intimate relationships.
Fifty nine percent said it affected their recreation and hobbies.
You know, that's more than half of women saying that
they haven't showed up to social events or they haven't
connected with their friends and family because you know, on
any given day they can't leave the house or they
are so uncomfortable. Forty four percent said it impacted their work,
(08:13):
their schooling, or volunteer activities. So we really are talking
about pain that is impacting every aspect of women's lives,
fundamentally changing how they engage with the world around them,
and a healthcare system that they say has not taken
them seriously.
Speaker 2 (08:31):
And I know that government inquiries like this they always
are accompanied with recommendations. What were the recommendations here, either
to the government or to the healthcare system.
Speaker 1 (08:41):
Yeah, they are far reaching and widespread. There are twenty
seven recommendations. I won't get into all of them at
an individual level, but there are some key themes, some
core areas. That includes more focus and funding for women's
health research, better education and awareness about pain, including more
training for healthcare professionals, expanding school education programs, destigmatizing a
(09:06):
lot of the kind of stereotypical attitudes towards women's pain.
It recommended creating clearer pathways for treatment so that women
don't have to bounce between different specialists, more clear pathways
to getting direct answers and assistants. There were recommendations around
growing the healthcare workforce, you know, getting more employed and
(09:27):
trained professionals to address women's pain conditions, and making support
more accessible and affordable. This was a really big one
given how many respondents cited cost as a barrier, especially
women in disadvantaged communities, regional and remote communities, and women
in LGBTQ communities.
Speaker 2 (09:47):
And those are recommendations to the government, to the government exactly.
And so then how has the government responded.
Speaker 1 (09:53):
So they have announced some immediate measures that they'll start
rolling out. There's a pilot rollout to come soon of
the Green Whistle Pain Relief in Haler for IUD insertion. Now,
for anyone who doesn't know what I'm talking about, UD insertion,
so think of something like the Marina that can be
an extremely painful thing to have to go through. Historically,
(10:14):
there has been inadequate pain relief offered, or it's been
incredibly expensive to pay for either a general anesthetic or
what's called twilight sedation, so that pain relief in Halo
will become more accessible. The Victorian government is also establishing
a reproductive health and Pain clinic for under eighteen year
olds that will be in Melbourne, and that's really significant
(10:36):
because young people often struggle to have their pain taken seriously,
and addressing women's pain in those earlier years of adolescence
can really set women up for better health outcomes and
a more positive experience throughout their adulthood.
Speaker 2 (10:53):
So that's the response from the government. What about the
response from their healthcare industry.
Speaker 1 (10:59):
The response has been really widespread and broadly welcoming of
these findings of this inquiry in the first place. You know,
yes we are talking about one state, we're talking about
Victoria here, but it has certainly created a national conversation,
especially considering this is the first inquiry of its kind
in the country. So Endometriosis Australia has called for swift
(11:21):
action from governments and clinicians and researchers, saying, you know,
this is confronting evidence, but it's a powerful catalyst for change. Quote.
Women deserve timely, compassionate, evidence based care. The Australian Psychological
Society is calling for improved access to psychological care as
part of the Victorian government response. They want that psychological
(11:44):
care to be a priority for access women's health. Victoria
CEO Sally has called the report a really powerful and
courageous collection of women's evidence. She is calling for the
federal government to increase Medicare coverage for specially and complex
appointments so women aren't unfairly out of pocket, and that
is part of that national conversation that has been triggered.
Speaker 2 (12:07):
So it sounds like broadly most parties are really in
support of this inquiry and hope that it will galvanize
the industry and the government to take more action to
take women's pain more seriously. Yeah, and so then what
about the Victorian opposition.
Speaker 1 (12:23):
Yes, so we have heard from the Shadow Health Minister
Georgie Crozier. This is Victoria's Liberal opposition. She's acknowledged that
the report highlights important issues, but she's criticized the Labor
government for underfunding community health. Basically, the opposition says that
vital clinics have been forced to close because there's been
(12:44):
an underfunding in community health initiatives, and she argued that
women with chronic pain are going to be left without
support going forward because of the impact that this has
had on GPS, nurses, mental health support channels. So a
funding criticism there, got it.
Speaker 2 (13:00):
So they're saying they are in support of this inquiry,
but they're pointing the finger at the government for letting
all of these issues happen in the first place.
Speaker 1 (13:07):
Exactly, and suggesting that some of the policy initiatives may
not be feasible because of years of underfunding. In their words, basically.
Speaker 2 (13:16):
So what are the next steps from here?
Speaker 1 (13:18):
Well, over the next six months. The Victorian government has
committed to developing an action plan. This will be in
response to the findings from the report, and it says
that it will do so in consultation with the community,
including patients, women with lived experience, healthcare practitioners, you know,
the full kind of gamut of stakeholders. We've also heard
(13:39):
from Professor Danielle Masa. She's the head of the Department
of General Practice at Monash University, and she commended the
Victorian government for holding the inquiry, saying they quote opened
Pandora's box and had the courage to seek out and
hear what women had to say off the back of that.
Professor Masa has shed light on an interesting conversation about GPS. Now,
(14:01):
gps are ultimately the first line of defense for our
healthcare system. They are often the first practitioner that women
will be in contact with when it comes to addressing
their pain, and Professor Maser has pointed to a need
for GP care to evolve as a matter of priority,
that training models need a lot more focus on women's
(14:22):
health and women's pain needs, and for any of these
reforms to really overhaul women's pain, the first stop is GPS.
So I think we are going to see an interesting
conversation in the weeks and months to come at a
national level about that very first step and how we
are engaging with health practitioners in the GP consult room
(14:44):
and beyond to you know, specialists and surgeons.
Speaker 2 (14:48):
It'll be interesting to also see if any other states
or territories follow suit with this kind of inquiry. Absolutely,
thank you so much for breaking that down, thanks for
having me, and thank you so much for listening to
this episode of The Daily Oas we will be back
this afternoon with your evening headlines. But until then, have
a great day. My name is Lily Maddon and I'm
(15:10):
a proud Arunda Bunjelung Kalkotin woman from Gadighl country. The
Daily oz acknowledges that this podcast is recorded on the
lands of the Gadighl people and pays respect to all
Aboriginal and torrest Rate island and nations. We pay our
respects to the first peoples of these countries, both past
and present.