In this special episode of thThe Desperate for a Diagnosis Podcast, host Laura Nozicka welcomes back Emma Smith and Olivia Goodreau. These inspiring GenZ young women share their ongoing journeys with long COVID and Lyme disease, discussing the healthcare challenges they have faced and the resilience they’ve shown. They highlight the importance of empathy, consistent care, and self-advocacy in the medical system.
Olivia introduces her new app, Long Haul Tracker, designed to help chronic illness patients track their symptoms, while Emma shares her progress and her new job focused on health equity. Together, they call for more awareness and systemic change in the healthcare system to support young people with chronic conditions.
00:00 Welcome and Introduction
00:50 Guest Recap: Emma and Olivia's Journeys
02:34 Olivia's Recent Achievements and College Life
04:18 Emma's Recent Milestones and New Job
07:06 Discussing the Healthcare System
09:15 Challenges and Biases in Healthcare
19:30 Finding Their Voices: Advocating for Themselves
29:47 Empathy in Healthcare: Personal Experiences
36:01 A Compassionate Doctor's Approach
37:12 Emma's Frustrating Medical Journey
40:57 Understanding Gaslighting in Healthcare
44:22 Advocating for Change on Capitol Hill
51:14 The Importance of Consistency in Chronic Illness Care
01:01:16 Support Systems and Community for Chronic Illness
01:10:49 Final Thoughts and Encouragement
Connect with Olivia!
Lyme Disease Non-Profit Organization | LivLyme Foundation
Get in touch with Emma!
Her Instagram and X are @3mm4sm1th and her Medium is @eesmithy
Link to Emma's Article "Ten Doctors, Two States, One Invisible Illness"
Connect with Laura
Email: lauramarie@desperateforadiagnosis.com
Website: www.desperateforadiagnosis.com
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