The Game On Glio Podcast

Big Tree Memorial Fund, a 501c3 was started in honor of Erik Knapp who died from glioblastoma in his early 30's.  The fund is unique in that it doesn't just focus on brain cancer, but any family suffering from hardship due to a cancer diagnosis. The fund helps supports families and caregivers through resource and financial assistance.

Erik was Lauren's best friend, and to honor his memory and the man he was, she could think of noth...

There are people you meet in life, whether through words, groups, from a community or work that redefine how you interact with and see life. For me, it started with words; a little book I found one rainy Sunday morning at the bookstore-- Be Like Water. I flipped through this tiny paperback, it's first sentence reading, "More than 70% of the Earth's surface is water. Every living thing is composed of water." I was intrigued so I bou...

How can you comprehend become a widower at 35 years old after 16 years with the one you love? How do you make sense of losing that spouse (only 33) 11 months after giving birth to your first child?

This is exactly what Alan Johnstone faced when his young 33 year-old healthy wife Anneka was diagnosed with glioblastoma five months after giving birth to their daughter Sienna. Six months after diagnosis, Anneka was gone. Sienna not eve...

To kick off brain cancer awareness month 2024, I sit down with Roon app creators Rohan Ramakrishna & Vikram Bhaskaran in episode 1 of Season 4 of The Game On Glio Podcast.

We dive into the importance of real time information and the need for advocacy when it comes to serious diseases like Glioblastoma. My guests also explain why they felt the need to create an app like Roon.

The Roon app offers people an opportunity to get exte...

When Eric Wood sat in a delivery room supporting his wife as she gave birth to their child, he didn't expect to find out that his NFL career was over. It was 2018 and the middle of the football season; Wood had played his entire career for the Buffalo Bills football team, but his path there was narrow and included a bit of destiny. Wood knew full well how fortunate he had been, especially since he had already seen loss and challeng...

In this episode, Kate sits down with me to discuss the power of hope, faith, family, and never giving up--even when you think all hope is lost.

Her foundation, Hope Rises, shares hope-filled news every single day, as well as hosting powerful giveback projects. To date, they have raised over $300,000+ and change countless lives through charitable efforts of love which include the Shine Gold fundraiser for pediatric cancer and fundra...

When Amber Jackson met her husband Tim, she describes it, "He came across my sky and lit it up, and now he's gone just as quickly."

Amber and Tim were both nurses at the same hospital, and very quickly realized they were soulmates and meant to be together. Within five years they got married and had two beautiful kids.

Then it all came crashing down when Tim was diagnosed with brain cancer.

Amber shares her story of resilience, cari...

At the time of his diagnosis, Chris Baccash had a full time analytics job and spent his weekends racing and training with the Doylestown Bike Works elite cycling team. His accomplishments included the hardest event of the season — the 50-mile Bucks County Classic, in his hometown of Doylestown, PA, with a personal-best time.

Of cycling at the time, Chris says, “When else do you get to ride through a beautiful countryside, side by s...

It's hard enough to imagine a young adult getting glioblastoma. But to hear of a baby having it truly tugs at the heart strings.

Kelly Barnhart shares her incredible story with us of her 5 year old son Carson's GBM story.

A mother of three, a wife, and an educator in the Buffalo school system as well as through Buffalo Hearing and Speech, Kelly has made it her mission to share Carson's pediatric cancer story to highlight congenital...

  It's an old phrase, one that has actually been around since the 11th century when Saint George slayed his first "dragon." The more recent old English proverb is "Some days you get the bear, some days the bear gets you." Basically we win some, we lose some--BUT we always keep going, and we slay one dragon at a time.

That is life; life throws us curve balls and all we can do is wait for the next pitch and hope we connect in a pos...

StacheStrong is a 501(c)3 non-profit devoted to raising funds and awareness for brain cancer research in memory of the late GJ Gerner--Co Founder Colin Gerner's brother. The organization has become a beacon of hope for countless individuals and families afflicted by brain cancer.

In this episode, Colin recalls, “It all started with a seizure. My 29 year old brother had a seizure. We figured, well we hoped, that it was just dehydrat...

Mike was diagnosed with glioblastoma in April of 2022. 13 months in, he is doing well and stronger than ever--but it comes at a price.

“I know the statistics,” he said. “The statistics for glioblastoma are a median survival of 14 months; half the people are dead by 14 months. The five-year survival is four or five percent.”

Mike found the tumor after a seizure while driving home led to a car crash. He woke up in the hospital with a...

In this episode, we talk to Wade Lewis who was diagnosed with glioblastoma at the age of 43. Faith, fortitude, and fight all describe what this episode is about. 

Wade shares his brain cancer journey, the intriguing friendship he developed with Dr. Fonkem and how it led to their work in Africa together, and how ministry and his belief in God has given him a new outlook on the path that has been handed to him. We also discuss some i...

Lance Kawaguchi's motto is "working with heart" and it shows in all he does for the brain cancer community.

The CEO of Cure Brain Cancer Foundation, a nonprofit organization in Australia, Lance is also an internationally recognized executive leader with over 25 years of global finance and banking experience, and currently serves as the Chairman of the Asian Fund for Cancer Research (www.AFCR.org). Lance was featured on the cover of...

"It's hard when someone puts an expiration date on you," said Nick Adamski, glioblastoma thriver and one of our guests for episode 2 of Season 3.

Nick, with the support of his wife Diane (ABC7 Chicago News Journalist), has been beating the odds against glioblastoma since December 2020. Walking through this rare cancer is not pretty, nor is it for the faint of heart. When Nick and Diane sat down with us, he didn't hold back; paintin...

In this first episode of Season 3, we sit down with Dr.'s Elad Levy and Ken Snyder of UB Neurosurgery/Buffalo General Hospital and Gates Vascular Institute/Jacobs School of Medicine. They give us rare insight into the work they do, the cutting edge technology being used (including GammaTile Therapy now being offered) and even the emotional toll this field can take.

This season we are going to learn--together. "Navigate and Advocate...

Our guest today, Marie Alessi, is a celebrated author of the book "Loving Life After Loss" and podcast host of Upspiral Grief. Marie unexpectedly lost her husband and father to their two boys in 2018 to a sudden brain aneurysm. Using her own tools and strong intuition, she created a path back happiness and now shares that with others across the globe.

In our last episode of Season 2, Marie and I tackle the myths and peel back the m...

"I (insert name here) take you (insert name here) to be my lawfully wedded husband/wife. To have and to hold from this day forward. For better, for worse, for richer, for poorer, in sickness and in health, to love and to cherish until death parts us."

Sound familiar? When we say those vows, we say them theoretically. As if we know that this is what we truly vow, it's what we mean, but we never expect to have to uphold some of them ...

    It's hard enough being a parent (at least from everything I witness and see). So, what do you do when you suddenly become a widow, grieving the loss of your spouse while also trying to help your grieving child?

Whether the loss is a caregiver, a parent, or even a sibling, a child that experiences loss is going to experience grief differently than we as adults do. Young children may not even understand what death means, or that ...