The HDSA Podcast

The HDSA Podcast

The HDSA Podcast hosted by Louise Vetter gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.

Episodes

June 11, 2024 37 mins

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 In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research. 

Phyllis is the Senior Manager, Advocacy at HDSA

Dr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors. 


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In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities.

Leora is the Assistant Director of Research and Patient Engagement at HDSA.

Kelly is the Coordinator of Research and Mission Programs at HDSA. 


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April 18, 2024 42 mins

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In this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew.

Leora is the Assistant Director of Research and Patient Engagement at HDSA.

Kelly is the Coordinator of Research and Mission Programs at HDSA. 


To learn more about Huntington's disease, please visit HDSA.org.  

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In this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick;   Dr. Jim Gusella and Dr. Marcy MacDonald.

Maryann is  HDSA's Manager, Youth & Community Services and an HD family member.

Dr. Gusella is a Professor of Neurogenetics at the Department of Genetics at Harvard Medical School.

Dr. MacDonald is a Professor of Neurology at Mass General Ho...

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In Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein. 

Chris Cosentino is HDSA's Director of Marketing & Communications and has been with the Society since 2014. 

Robi Blumenstein is President of CHDI and in 2002 organized CHDI Management to provide management services to non-profit organizations engaged in Huntington’s disease research.

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January 26, 2023 38 mins

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In this episode HDSA's President & CEO Louise Vetter is joined by Arik Johnson, PsyD and Teresa Srajer. They discuss the launch of the new HDSA Podcast, the 38th Annual HDSA Convention and a behind-the-scenes look at the Huntington's Disease Society of America. 

Dr. Johnson is HDSA's Chief Mission Officer and former Chair of HDSA's Board of Trustees. 

Teresa is an HD ...

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