The HDSA Podcast
The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.
Episodes
In this episode of Let’s Talk About HD, hosts Tam Maiuri and MaryAnn Emerick are joined by Paul, Hannah, Rachel, Emily, Jenna, and Mariana for a meaningful conversation about Huntington’s disease, community, connection, and the experiences that shape the HD journey.
Together, they share personal perspectives, reflect on the importance of support, and highlight the power of open conversation in helping families feel s...
Let’s Talk About HD Awareness Month with Tam, Allison & MaryAnn
In this episode of Let’s Talk About HD, we recognize Huntington’s Disease Awareness Month with a meaningful conversation featuring Tam, Allison, and MaryAnn. Together, they reflect on the importance of raising awareness, and discuss how storytelling, advocacy, and community support help shine a light on the experiences of HD families.
Throughout the c...
Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services. Together, they bring expertise, insight, and a deep commitment to the Huntington’s disease community.
Don't forget to follow us on social media!
In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give back or just curious about HDSA’s miss...
In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps.
Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pressing challenges and opportunities id...
In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tune in for an insightful conversation!
Don't forget to follow us on social media!
In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research.
Phyllis is the Senior Manager, Advocacy at HDSA
Dr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors.
To learn more about ...
In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities.
Leora is the Assistant Director of Research and Patient Engagement at HDSA.
Kelly is the Coordinator of Research and Mission Programs at HDSA.
To learn more about Huntington's disease, ple...
In this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew.
Leora is the Assistant Director of Research and Patient Engagement at HDSA.
Kelly is the Coordinator of Research and Mission Programs at HDSA.
To learn more about Huntington's disease, please visit HDSA.org.
Don't forget to follow us on social media!
In this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick; Dr. Jim Gusella and Dr. Marcy MacDonald.
Maryann is HDSA's Manager, Youth & Community Services and an HD family member.
Dr. Gusella is a Professor of Neurogenetics at the Department of Genetics at Harvard Medical School.
Dr. MacDonald is a Professor of Neurology at Mass General Hospital....
In Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein.
Chris Cosentino is HDSA's Director of Marketing & Communications and has been with the Society since 2014.
Robi Blumenstein is President of CHDI and in 2002 organized CHDI Management to provide management services to non-profit organizations engaged in Huntington’s disease research.
Don't forget to foll...
In this episode HDSA's President & CEO Louise Vetter is joined by Arik Johnson, PsyD and Teresa Srajer. They discuss the launch of the new HDSA Podcast, the 38th Annual HDSA Convention and a behind-the-scenes look at the Huntington's Disease Society of America.
Dr. Johnson is HDSA's Chief Mission Officer and former Chair of HDSA's Board of Trustees.
Teresa is an HD family ...
Popular Podcasts
Ding dong! Join your culture consultants, Matt Rogers and Bowen Yang, on an unforgettable journey into the beating heart of CULTURE. Alongside sizzling special guests, they GET INTO the hottest pop-culture moments of the day and the formative cultural experiences that turned them into Culturistas. Produced by the Big Money Players Network and iHeartRadio.
Fear thrives in silence and confusion. Ana Navarro rejects both. Her voice is an antidote to today’s chaos. Her new podcast, Bleep! with Ana Navarro, takes on today’s most pressing issues with the voices most connected to it: decision-makers, political leaders, cultural shapers, and people on the frontlines of the story. The conversations acknowledge the emotions we all feel—despair, sadness, fear— but emerge with knowledge, perspective, and hope. The belief is simple: fearless dialogue can transform fear into courage, and courage into change. When fear dominates the headlines, this show digs deeper. Because information, debate, and conversation don’t just ease fear, they give us power to shape the future.
Hey Jonas! The official Jonas Brothers podcast. Hosted by Kevin, Joe, and Nick Jonas. It’s the Jonas Brothers you know... musicians, actors, and well, yes, brothers. Now, they’re sharing another side of themselves in the playful, intimate, and irreverent way only they can. Spend time with the Jonas Brothers here and stay a little bit longer for deep conversations like never before.
Thanks Dad with Ego Nwodim is back! And this time, she's sitting down with not just dads, but anyone with a dad...so everyone! Raised by a single mom, Ego Nwodim may have daddy issues, but she suspects you might too. This season, Ego has funny, heartfelt conversations with actors, comedians, musicians and athletes about life and their experiences with their own fathers. Each episode starts with a simple question: “who do you want to say thanks to?” and ends with a listener asking Ego and the guest for some personal advice. Produced by the Big Money Players Network and iHeartRadio.
A weekly podcast where host, Robert Smigel, and a rotating panel, his friends, assist callers seeking help in making something in their real life funnier. Anything. A best man speech, a eulogy, a breakup letter, a cover letter, an apology, a Tinder profile - Robert, with a panel of professional comedy writers and comedians, will punch it up and get results. Want help with your writing assignment? Submit it to: speakpipe.com/humorme